Director of Programs/Outreach, Neuroendocrine Cancer Foundation @NCFCancer (formerly @LACNETS); NP Hospitalist turned NET caregiver+pt advocate. Tweets mine

Los Angeles, CA
Joined May 2012
What an incredible day at the Neuroendocrine Cancer Patient Conference in Atlanta, with over 100 incredibly engaged guests! We are so grateful to @UGrewalMD, our speakers, patients, caregivers, clinicians, advocates and sponsors for coming together to learn, connect, and support one another. Seeing such a strong turnout reminds us of the power and resilience of this incredible community. A special thank you to our outstanding speakers from Emory, Vanderbilt, and UAB, as well as our generous sponsors, for helping make this event possible. 💚 #neuroendocrinecancer #netcancer #netawareness
1
5
11
510
Join us in Los Angeles on Sunday, May 31, for this dynamic patient education event—a collaboration between @norcalcarcinet and the @NCFCancer, in partnership with the Society of Nuclear Medicine and Molecular Imaging (SNMMI). Dr. Eric Liu and Dr. Erik Mittra discuss the upcoming Neuroendocrine Cancer Patient Education Day at the 2026 SNMMI, highlighting what attendees will learn about neuroendocrine cancer—including PRRT, imaging, and treatment options—and why in-person events offer valuable opportunities to ask questions and connect with experts and other patients. Learn More at: 📌ncf.net/events/snmmi #NeuroendocrineCancer #NETCancer #CarcinoidCancer #PRRT #RareCancer #CancerEducation #PatientEducation #CancerSupport #Oncology #Healthcare
1
98
Join us in Atlanta on Saturday, May 16th. It’s going to be great! ncf.net/events/atlanta @UGrewalMD @SethConcorsMD @PoHienEar @GG_ONCMD @WinshipAtEmory
Lisa Yen and Dr. Daniel Halperin of the Emory Winship Cancer Institute discuss the value of attending their upcoming in-person patient education event in Atlanta on May 16. They highlight the importance of community connection, the opportunity to engage with patients, advocates, and experts, and why this moment—amid rapid advancements and ongoing clinical trials—is especially meaningful for those affected by neuroendocrine cancer. To learn more about the event in Atlanta, visit ncf.net/events/atlanta.
3
1
8
2,215
We did sneak in some NET time at #GI26 @lisayentwin @ChandrikhaC @PamelaKunzMD @NANETS1 Hoping @ASCO will see the importance of focusing more on rarer cancers like Neuroendocrine tumors. It would mean so much for our field and for the patients that we care for.
2
2
26
1,061
Missed our December webinar with @AmanChauhanMD? You can now watch the full December webinar at your convenience. 💻Watch here: ncf.net/events/dec2025 After viewing, please take a moment to complete our short survey—your feedback helps shape future programs and better support our community. ➡️Take the survey: forms.gle/SBWAftnpUWbB1MDJ9 @CarcinoidNETs @NANETS1 #NeuroendocrineCancer #NETCommunity #CancerEducation #PatientSupport #ncfcancer #NeuroendocrineTumor #NETCancer
1
3
257
📢New Read Worth Sharing AARP recently published a moving article by @JamieMetzl about his family’s experience navigating a neuroendocrine cancer diagnosis and the important lessons they learned along the way. Written with honesty and insight, the piece offers both a heartfelt perspective and practical guidance for anyone impacted by cancer. Read the full article here: jamiemetzl.com/wp-content/up… Jamie Metzl’s story reminds us of the power of resilience, informed care, and the support of loved ones in the face of life’s toughest challenges. His writing brings both compassion and clarity to a deeply personal journey that many can relate to. #cancerawareness #cancercare #jamiemetzl #AARP #PatientStories #HopeAndSupport #ncfcancer #NeuroendocrineCancer #NeuroendocrineTumor #NETCancer #NETcancerawareness
1
1
160
💟 "The email that changed everything." After being diagnosed with a neuroendocrine tumor, Dusty felt scared, isolated, and unsure of where to turn. One of the first emails she received from NCF said, “You are not alone. We are here to help.” That message became the start of community, education, and empowerment. Read Dusty’s story: 👉ncf.net/post/the-email-that-… #NeuroendocrineCancer #NETCancer #PatientStory #youarenotalone #ncfcancer #NETcancerawareness #NeuroendocrineTumor
1
1
186
✨Thankful Today and Every Day This Thanksgiving, @NCFCancer extends heartfelt gratitude to the patients, families, caregivers, clinicians, researchers, and advocates who make up our global NET community. Together, you bring strength, connection, and hope — and you remind us that no one facing neuroendocrine cancer walks alone. We invite you to revisit the impact and inspiration of this year’s NET Cancer Day Symposium — a celebration of community, progress, and legacy: ncf.net/post/world-net-cance… This year, we give thanks for: 🤎Patients who persevere with strength and grace 💛Families and caregivers who provide unwavering support 🤎 Clinicians delivering compassionate, specialized care 💛Researchers advancing science and treatment options 🤎Advocates raising awareness and amplifying patient voices 💛A global community united by purpose, empathy, and hope Today, we honor lives, celebrate resilience, and express deep appreciation for every person helping raise awareness and advance our mission. From all of us at NCF — Thank you for your courage, your voice, and your partnership. @CarcinoidNETs @AmanChauhanMD @UGrewalMD @SylvesterCancer @Latinamd #Thanksgiving #NETCancer #NETStrong #NETcancerday #WorldNETCancerDay #Gratitude
2
1
4
1,449
Calling ALL HCPs who see #NET — we need your voice in this global research effort. Your perspective matters! Only 10 U.S. HCPs have completed the survey. 👉 Take the #SCAN2025 survey: incalliance.org/scan2025/ 📣 Spread the word @NANETS1 @OncBrothers @UGrewalMD @OncoThor
Patients, caregivers, and healthcare professionals — your voice matters. Take part in the Survey of Challenges in Access for Diagnostics and Treatment for NET Patients (SCAN) 2025, available in 15 languages. 🗓️ Don’t miss your chance to make an impact — the survey closes November 30, 2025. Take the global SCAN 2025 survey today and help improve care for the NET community! 💛 @netcancerday #NETCancer #SCAN2025 #PatientVoice #Healthcare #NeuroendocrineTumors #GlobalHealth
1
1
3
1,012
Meant so much to make it out to Miami for this year’s #NETCancerDay Symposium — a bright spot in a challenging time. Grateful for the hope, strength, and connection this community brings. 💛 @UGrewalMD @AmanChauhanMD @altoubaht
🦓Yesterday's 2025 NCF #NETCancerDay Symposium in Florida was one for the books! We are deeply grateful to everyone who joined us — our incredible speakers, advocates, patients, caregivers, and supporters. Your passion and dedication drive our mission forward every single day. A special thank you to @AmanChauhanMD for his leadership and commitment to advancing education and care for the NET community. Together, we continue pushing meaningful conversations, awareness, and progress in neuroendocrine cancer. Events like this remind us why our community is so strong — because we learn, uplift, and advocate together. @UGrewalMD @CarcinoidNETs @SylvesterCancer #NETCancerDay #NETs #NeuroendocrineCancer #ncfcancer #CancerAwareness #NETCommunity #PatientAdvocacy #NeuroendocrineTumor
1
2
11
711
It was an honor to work on this piece. Thank you for your kind words @UGrewalMD
Delighted to read this timely patient-facing review on the evolving role of radioligand therapy in the care of patients with NETs. With all the on-going progress, understanding patient perspectives, access barriers, and treatment sequencing priorities is more important than ever. Kudos @lisayentwin @jsalinisthomas and @marklewismd @NANETS1 @NCFCancer @CureNETs ascopubs.org/doi/10.1200/OP-…
1
1
610
You rocked @UGrewalMD !
Wrapped up a great NET Cancer Day Symposium in Miami ☀️ 🏝️ Kudos to @NCFCancer @lisayentwin Great time interacting with colleagues, patients and caregivers. Grateful to be a tiny part of this wonderful community. 🦓 ❤️ Until next time! @AmanChauhanMD @SylvesterCancer @Latinamd @NANETS1 @WinshipAtEmory
1
1
1
399
Thank YOU for a special event!
This quoted post is unavailable.
2
128
Thank YOU for being an important part of our day! You inspire us all!
#NETCancerDaySymposium @SylvesterCancer Thank you @NCFCancer and @AmanChauhanMD for inviting me to join the community of 🦓#NETwarriors and speak about the power of #patientadvocacy and #physicianadvocacy to : ➡️Move the science ➡️Find community ➡️Share resources ⬆️Increase funding
2
4
488
It was so good to see you, my friend!
Lovely to be here in Miami, FL ☀️ 🏝️ for the NET Cancer Day Symposium organized by @NCFCancer @lisayentwin and @AmanChauhanMD @SylvesterCancer Wonderful to witness the drive, enthusiasm and commitment of our patient, caregiver and patient advocate community. It is truly what makes everything that we do worthwhile. #NETCancerDay @NANETS1
1
1
1
456
Sharing what we learn at national and international meetings with our patients is one of our core missions. In just three short years in Miami, we’ve hosted two NCAN conferences and one Regional NANETS meeting—and we’re closing out a stellar 2025 with a fantastic NCF Patient Symposium. And what better time than NET Cancer Awareness Month to bring our community together? Join us this weekend in Miami—perfect weather, great energy, and important conversations ahead. @UGrewalMD @Latinamd @SylvesterCancer @NCFCancer @lisayentwin
2
1
14
1,743
Calling ANY HCPs who sees #NET + patients + caregivers to contribute to global research 👉Take this important global #SCAN2025 survey: incalliance.org/scan2025/ 👉Spread the word! @NANETS1 @OncBrothers @UGrewalMD @AmanChauhanMD @OncoThor @marklewismd @PamelaKunzMD @HalletJulie
Patients, caregivers, and healthcare professionals — your voice matters. Take part in the Survey of Challenges in Access for Diagnostics and Treatment for NET Patients (SCAN) 2025, available in 15 languages. 🗓️ Don’t miss your chance to make an impact — the survey closes November 30, 2025. Take the global SCAN 2025 survey today and help improve care for the NET community! 💛 @netcancerday #NETCancer #SCAN2025 #PatientVoice #Healthcare #NeuroendocrineTumors #GlobalHealth
8
2
12
4,346
New Research Update: Promising Results for Alpha Therapy in NETs October 8, 2025 — Sanofi announced that its investigational treatment AlphaMedix™ (²¹²Pb-DOTAMTATE) met all primary goals in a phase 2 clinical trial, showing meaningful benefits for patients with gastro-pancreatic neuroendocrine tumors (GEP-NETs)—including those who had previously received radiation therapy. The treatment was generally well tolerated, and these findings pave the way for future discussions with regulators toward potential approval. 📰 Read the full press release: sanofi.com/en/media-room/pre… 📺 Learn more about alpha therapy and the evolving PRRT landscape: Watch our recent webinar at ncf.net/events/sep2025 ➡️ Explore additional PRRT resources: ncf.net/prrt
1
6
7
939