Meriam Rllb (@lowbatterydream) header
Meriam Rllb (@lowbatterydream) profile picture

PharmD, 29, Long Covid March 2020 | ME/CFS | POTS | Personal IG : meriamrhallab | Chronic illness IG : lowbatterydreams

Rabat, Morocco
Joined May 2020
Photo by Meriam Rllb (@lowbatterydream)Photo by Meriam Rllb (@lowbatterydream)Photo by Meriam Rllb (@lowbatterydream)Photo by Meriam Rllb (@lowbatterydream)Photo by Meriam Rllb (@lowbatterydream)Photo by Meriam Rllb (@lowbatterydream)Photo by Meriam Rllb (@lowbatterydream)Photo by Meriam Rllb (@lowbatterydream)Photo by Meriam Rllb (@lowbatterydream)Photo by Meriam Rllb (@lowbatterydream)
2 years of Long Covid today. I'm 24. I was naively happily then. Now I've aged 20 years mentally and physically. Please keep protecting yourself, you can't imagine how hard this is. #LongCovid #MECFS #TreatLongCovid
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Hey guys! If you were very slowly improving over 5 years, would you try more (risky) interventions (i.e rapamycin) I have improved from very severe to severe-mod. What would your approach be? #pwme #MECFS #LongCovid
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Meriam Rllb retweeted
I believed them - for years. I believed the doctors and accepted and internalized that I must have a 'conversion disorder'. For three years all the treatment I had was focused on my mind or was for pain - during this period my physical function collapsed from mostly normal to being bedridden and on full-time disability leave. No one ever mentioned MECFS. No one ever raised issues with polypharmacy of psych meds. They just watched the decline. Until I was dx'd with hEDS (I had never heard of it) by a visiting specialist who just happened to be on staff for a couple of weeks - my file was psychological issues + fibromyalgia (maybe). Tragically, sadly, I trusted and believed them (the doctors, the shrinks, the experts). For three years I accepted that somehow I was doing it to myself and if I only did the right type of therapy and thought the right type of thoughts I would get better. I did all the stuff: CBT, GET, hypnosis, EMDR, meditation, breath work, qi gong (and many many more). I jumped in 1000% and did it all - as hard as I could - because I wanted to get better. You all know how the story went (bedridden in a dark room 24/7, full-time disability, had to sell home and move in with family). When people claim to have had MECFS and to have gotten better just by deciding they are not going to be sick anymore - it is dangerous - its insidious - its cruel. I am sick of being nice. If you do this I am going to shame you.
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“We Can’t Do This Alone”: A Doctor’s Plea for Support in Caring for Long COVID and ME/CFS Patients danilobuonsenso.substack.com…
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Meriam Rllb retweeted
The results from DecodeME are significant because they give scientists a roadmap to uncovering the disease mechanisms behind ME/CFS, and more confidence for funders, regulators and industry partners to get involved.
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Is trying Rapamycin worth it? Would love some support and info please🙏 esp about sleeping and insomnia #MECFS #LongCovid
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Approximately 1/3 of all wheelchair users are ambulatory. This means, 1/3 of us are able to move or walk to some extent. It DOES NOT mean we are 'fake disabled' or not 'genuinely disabled'. Reminder: you can't SEE health/pain/fatigue. Both are me, still disabled.
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Meriam Rllb retweeted
green expert here: this is a good one
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Hey doctors? If you’re reading this, I genuinely would like to know something. Why are so many of you so quick to dismiss us? Nobody wants to be sick. Nobody wants to spend their free time in waiting rooms, seeking referrals, or begging to be taken seriously. Yet, that’s what so many of us are forced to do, especially women. Listen, if a patient takes time out of their day to come to your office, it’s not because they’re bored or lonely. It’s because something is wrong and they need help. Patients are waiting 6-8 months just to see a specialist. That’s after countless hours, even days, searching Reddit, Facebook groups, Twitter threads, trying to figure out what their symptoms mean and which doctors will take them seriously. We miss work, birthdays, holidays, life itself, because our bodies are malfunctioning and no one will help. We’re not doing this “for attention.” We’re doing this because we’re sick. And we know our bodies. It makes zero sense for someone to go through all of this just for fun. Yet somehow, it makes sense to some doctors to call us dramatic, anxious, or fakers. If you don’t know what’s wrong, just say that. Don’t gaslight us. Dont write us off. Research for us, refer us out or consult with someone. Patients are doing so much just to be believed. Meet us halfway!
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Meriam Rllb retweeted
I’m finding more cases every single day. It’s terrible. People need to warned about this risk.
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A reminder that ME/CFS has one of the lowest qualities of life of any disease
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Meriam Rllb retweeted
Clip from BBC Look North - Dr Alexis Gilbert (@alexis___me) who is almost entirely bed bound with #LongCovid and has been diagnosed with #MECFS feels "abandoned by the government... Its taken away all my dignity, all my joy its been devastating".
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What would it say about your MECFS profile if LDN helped you? (my own case) I have no sign of autoimmunity or immunodepression so feeling lost about which way to go. #pwme #MECFS #LongCovid #mecfsawareness
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Meriam Rllb retweeted
I was so confident that the 5 year covid anniversary wasn’t getting to me but I admit defeat. It is. It feels so heavy, never-ending, and impossible. No one’s really asked me how I’m doing because no one wants to talk or think about it. I can’t believe this is just how it is now.
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Meriam Rllb retweeted
I hear you. I see you. I care. #LongCovidAwarenessDay #LongCovidAwarenessDay2025
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How long do we have to suffer? How long will this illness be ignored by politics? #LongCovidAwarenessDay2025 #LongCovidAwareness #MECFS
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Has anyone with #MECFS benefitted from IVIG? If yes, how did it benefit you? #MedTwitter
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CW: This 🧵 mentions suicide, euthanasia, medical neglect. And anger. Lots and lots of anger. #MECFS
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