
Co-Lead paediatric advocacy group for children with spina bifida &/or hydrocephalus @sbh_pag Proud mam, social care worker, special needs/disability advocate
IRELAND
Joined December 2011
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Replying to @SimonHarrisTD
@SimonHarrisTD is it just words & rhetoric that my boys spine is so twisted drs can't see what's happening in his chest via xray so he had to have a CT last week in hospital, I spoke to @MaryLouMcDonald I am the mother of a failed child his name is TJ. Stop failing his friends.
To learn more about why families are calling for a Public Tribunal of Inquiry into scoliosis and spina bifida care, visit
➡️ sbhpag.com
#BackUs @SBH_PAG
Amanda Coughlan retweeted
Well done for speaking out Rachel ❤️ I’ve been in contact with Rachel for a while now we’ve been sharing our stories and the fact some of what we faced is similar is shocking it’s not an isolated incident this is happening to many children with scoliosis!! @scolionetwork
(For those without Tiktok)
This is powerful from Rachel - diagnosed with scoliosis back in 2008. Sadly her experience has been the experience of very many children - @CarrollJennifer @SimonHarrisTD @MichealMartinTD - why are you not interested in getting the whole story?
Who are you protecting ?
#BackUs #PublicInquiryNOW #JusticeforHarvey #JusticeForSophie #JusticeforRachel
Amanda Coughlan retweeted
The Lindsay Tribunal was a public Tribunal of Inquiry into how people with haemophilia became infected with HIV and Hepatitis C through contaminated blood products.
Children were among those affected, including children infected and diagnosed at a very young age.
It dealt with some of the most sensitive medical information imaginable.
Yet identities could be protected and the Tribunal still sat in public for 196 days.
So please stop presenting this as a choice between protecting children and having transparency.
Protect the children’s identities. Protect their medical privacy. But do not use their privacy to shield institutions @CHI_Ireland, Ministers, including @SimonHarrisTD @CarrollJennifer @MichealMartinTD, or decision-makers from public scrutiny.
#scoliosis #justiceforharvey #BackUs @SBH_PAG @GillSherratt23 @tivnana @LalorMaher33771 @caulmick
Privacy and accountability can coexist.
A gentle reminder - “by the end of this year (2017) no child will wait longer for a scoliosis procedure than 4 months”. Aug 2018 and children continue to languish on lists. Do you still feel ashamed @SimonHarrisTD ?
Amanda Coughlan retweeted
Replying to @caulmick
Taoiseach! We have fought for justice & accountability for our children for over a decade. We all know that patient testimonies can be taken in a child-centric & non adversarial way.
It's the shielding of the perpetrators that requires a Commission & not our children's suffering!
They are liars who don't care a jot about the abuse & suffering they've enabled and perpetuated.
This will join the Magdalen Laundries scandals in years to come, and the legacy of SlyMon and Jenny will be in the sewer!
#JusticeForHarvey #resignharris
youtu.be/2QplbPBaLgs?si=XKPc…
My son is a Crumlin orphan, failed by CHI and the state. His journey matters—lack of access to care changed his life. He’s done nothing wrong. We won’t be intimidated by @CarrollJennifer’s misinformation and scare tactics about a public inquiry. #publicinquirychi
If it looks like a, 'political cover-up' & smells like a, 'political cover up'..
People remember the pledge from the then Health Minister @SimonHarrisTD in 2017 - 'that no child would wait longer than 4-mths for spinal surgery', why is the proposed inquiry into the failings of children's healthcare only looking at the years 2019 - 2025 ? - Muireann O'Connell
#JusticeforHarvey #CHI #BackUs #PublicInquiryCHI #Dáil
A gentle reminder - “by the end of this year (2017) no child will wait longer for a scoliosis procedure than 4 months”. Aug 2018 and children continue to languish on lists. Do you still feel ashamed @SimonHarrisTD ?
Amanda Coughlan retweeted
Replying to @CarrollJennifer
@CarrollJennifer
@SimonHarrisTD
Why was my child left on an urgent waitlist for 4 years then removed . Why was her scoliosis left to progress to 80 degrees without any intervention. Why were we blocked from funding go abroad ?
Public inquiry please
#BackUs #JusticeForHarvey
Amanda Coughlan retweeted
Where’s the answers to why I was left like this at 11 years old in 2014? A little girl who had to face that she’d never be able to play sports again and had to be careful for life and faced multiple surgeries ahead and a lifetime of pain as result of waiting lists.@scolionetwork
Amanda Coughlan retweeted
The absolute irony of @CarrollJennifer saying they want to protect children’s privacy. So many of us have not had the luxury of privacy as the failures in care and the harm they have been caused has forced up to already speak publicly to get this abysmal government to even pay attention!
#JusticeForHarvey #ResignHarris #PublicInquiry
Amanda Coughlan retweeted
The Irish Times view on the scoliosis inquiry: families must be heard
The advocacy groups’ response has been scathing. They were promised a public inquiry last November and are now offered a process conducted mostly behind closed doors. They argue a 2019 starting point ignores years of delay, broken pledges and outsourcing that came before it. They fear an exercise preoccupied with systems rather than what happened to individual children. It appears Harvey Morrison Sherratt’s case, which did so much to force the issue, will not be examined individually.
Public tribunals are slow and costly, and duplicating existing reviews would serve nobody. But it is far from clear that the recommendations go as far as possible to accommodate the families, and several of their objections seem justified. The arbitrary start date is hard to defend, while a process that only hears from families in one narrow module risks treating their testimony as an adjunct rather than the heart of the matter.
#JusticeforHarvey #BackUs
irishtimes.com/opinion/edito…
Amanda Coughlan retweeted
Disgraceful, but by now entirely expected, duplicitous and disingenuous remarks from the Health Minister.
As a Barrister she knows full well that individuals who would seek anonymity during hearings can be afforded such, similarly the health records of individuals can be anonymised to protect identity.
Stop with the disrespectful deceit and disinformation, @CarrollJennifer and display some humility and accountability for not only your failings but that of your predecessors (including, especially, @SimonHarrisTD).
#JusticeForHarvey
Amanda Coughlan retweeted
Please find below our official statement regarding the upcoming inquiry into Spina bifida and hydrocephalus care in Ireland . Again our families are being let down.
Many thanks to @TheHardShoulder for having me on yesterday to respond to @CHI_Ireland latest PR piece , let's be real any decline in children waiting is a good thing but 208 children still wait !! link.goloudplayer.com/s/pGSO…
We will never forget or give up #backus ##justiceforharvey
In the 12 months since Harvey passed we have had:
One protest
Two government meetings
One meeting with the HSE
One AV room meeting
One petition
One Whistleblower disclosure
Approximately 30 TV and Radio interviews
Many newspaper interviews
One secured Statutory Inquiry
And now multiple broken promises from @CarrollJennifer and @SimonHarrisTD
In the same 12 months we have also seen:
At least 13 controversies around CHI and their treatment of children
At least 80 articles around scandals or governance failures in CHI
And many many evasive answers and promises from government.
@CarrollJennifer since I know your team is watching, release those reports and allow this inquiry be the turning point in how these children are treated. Until they’re published, we cannot have meaningful engagement in this inquiry.
Choosing to turn a blind eye now after everything you have heard and seen makes you just as culpable if more children come to harm that could have been prevented.
#JusticeForHarvey #NoChildWaiting
Amanda Coughlan retweeted
This merits further comment. Grab a coffee and read on, if you’re interested.
First, the contractor BAM, easy to attribute blame to them and the government has spared nothing, however it is cheap and lazy to do so.
A cursory review of the procurement of the project, breaking ground in the absence of a meaningful and detailed specification meant that any costings were, at best, guesstimates; subsequent ‘on the hoof’ design modifications and late changes to ‘use requirements’ can only result in completion time drift and disproportionately high costs. Thank you, @SimonHarrisTD, the man who you wouldn’t trust with your immersion heater switch, let alone a budget and project of this magnitude.
The project was hit by considerable cost increases and, for a period, material shortages as a result of the war in Ukraine to which the government has contributed financially and materially to sustain - cut your nose to spite your face. A farther complication has been the availability of resources for hundreds of tradespeople essential for multiple phases in construction; who can afford housing in the Dublin area to work on this project? Answer: not that many who aren’t already busy in the construction sector, so government policy has actually impacted the availability of labour.
So, we’ve started a project without a comprehensive specification, we thus have no real budgetary control, and available labour is not assured while at the same time material and energy costs are spiralling out of control. All of these factors are contributing to significant delays, an unimaginably incompetent Minister cannot make sense of it and hits low against those charged with building something without a specification and demands of last minute changes. It’s everyone’s fault except the Minister of the Department whose responsibility it is - @caulmick has a video of #SimpleSimon denying his responsibility during a Leadership debate at the last election, you have to see it to believe it.
The site for the hospital is entirely the wrong place, devoid of ease of access for emergency cases, challenging (at best) for users of the service to get to, and god help you if you need to park a car because of insufficient parking space for staff and families of patients. To further complicate matters with regard to location, the new hospital doesn’t incorporate maternity so a newborn with a complexity only treatable at the Children’s Hospital will have to be ‘blue lighted’ from the new National Maternity Hospital to the new Children’s Hospital… make that make sense.
Now that the building skeleton is mostly complete it’s inevitable that snagging will be nightmarish in scope. Operating Theatres are hugely complex facilities, Radiology suites have very specialised support utilities in relation to power and exhaust needs for CT & MRI equipment, in addition to floor integrity and flatness, walls and doors preventing unwanted radiation escape. In-house labs and haematology services have specific requirements for equipment and contamination control. In-house sterilisation services, RO water systems, medical gases, IT infrastructure, the list goes on.
Meanwhile, in Finland, children in need of critical and highly specialised care such as organ transplants, neurosurgery, musculoskeletal surgery, can avail of a new Children’s Hospital in Helsinki. The Helsinki hospital cost €170m and 4 years to construct and commission to the point of accepting the first patients. “Ah, but it’s a much smaller hospital with reduced bed capacity compared to Dublin.” Yes, that’s right, because children in Finland can avail of regional centres capable of pr surgical services, including ICU, without the need for them and their families having to travel to the capital; it would be equivalent to us having a dedicated critical care level children’s hospital in every province with the smaller highly specialised and transplant hospital in Dublin… who’d have thought? We could have had a new hospital in each Province and a centre of excellence in Dublin for less and sooner than the spend today on the Dublin New Children’s Hospital. Why have Ministers @SimonHarrisTD and @CarrollJennifer not resigned nor sacked? Why has the life-ending scandal of persistently failing healthcare for our children not resulted in the fall of this government? Have we, as a nation, stopped caring? Wednesday next will mark a year since the untimely passing, the avoidable death, of Harvey Morrison Sherratt, a courageous little boy betrayed by his Country; others went before him and others have since. This must stop. #JusticeForHarvey #BackUs To Harvey’s parents @Stephen63224725 @GillSherratt23 and friends who are celebrating his life today, I’m so very sorry for your loss, but the memory of Harvey and his fight continues, we shall succeed, this government will be held to account.
Amanda Coughlan retweeted
Please read in full:@CarrollJennifer and her Department chose to set 29 July the anniversary of the day Harvey died as the final deadline for submissions to the statutory inquiry. To us, that decision feels deeply insensitive.
That makes four. What did you say, @CarrollJennifer? Only one group hasn’t engaged? Do you need a dictionary to understand what 'transparency' means? That wasn’t exactly true, was it?"
On behalf of @orthokids_irl , I confirm that we are not participating in an inquiry which was flawed from the outset. Once again assurances given at meetings were reneged upon. @CarrollJennifer
3 groups have now withdrawn as its not the in the best interests of families to engage , we cant all be wrong @ScolioIreland we stand united
We stand in solidarity with Gary Farrell and everyone at Scoliosis Ireland.
Patient advocacy groups repeatedly raised concerns.
The Minister @CarrollJennifer chose to proceed with the process rather than address those concerns through direct engagement.
Three organisations have now publicly withdrawn. We understand others have similar concerns.
An inquiry into children must start by listening to the voices of children and their families. @SimonHarrisTD @MichealMartinTD
irishexaminer.com/news/arid-…
@SBH_PAG #BackUs
Honored to be invited & to attend the President's Garden Party at Áras an Uachtaráin today. Grateful for the chance to discuss our position on the scoping exercise for the statutory inquiry into @CHI_Ireland with fellow advocates and supporters. Your engagement is appreciated.




























