100% committed to curing CF for 100% of CF'ers by raising funds for the CFF & advocating at the State & National level. #cff #curecf #cysticfibrosis #cfdad
Joined March 2013
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If I learn one really cool thing from #NACFC it's about antisense oligonucleotides (ASOs). ASO approach to fix splicing mutations in #cysticfibrosis is way cool & is already showing success in the lab.
#NACFC2022 @CF_Foundation
Dr. Rowe, "Much to be optimistic about" in the hunt for therapies for those with rare #cysticfibrosis mutations. #NACFC2022 @CF_Foundation
Dr Rowe the Chief Scientific Officer at @CF_Foundation gives the opening keynote/plenary at #NACFC2022. No one better to lead the fight.
Thank you @cfkcwhite for kicking off #NACFC2022 and inspiring the 5000 researchers & caregivers with your heartfelt words. @CF_Foundation
The #GOAT #cysticfibrosis volunteer Cam McCloud accepting thanks from the @CF_Foundation for her years of service leading the Board, in front of 5000 attendees at #NACFC2022
Thank you Cam.
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I only made it 27miles ystrday with 17K ft of elevation change. The 3miles I didn't do are a reminder we still have more to do to get to the finish line of a cure for #cysticfibrosis #xtremehike @CF_Foundation
Donations greatfully received at:
on.cff.org/3T40c0F
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When you have 4.5 miles to go all downhill & your knees are on fire what do you do? Wrap them up of course & deal with it cos we have to cure #cysticfibrosis.
Done! #xtremehike @CF_Foundation
Donations greatfully received at:
on.cff.org/3T40c0F
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This climb up to snowbird is zero point zero fun. 21 miles in 10hr 30mins
Let's go do this! #xtremehike @CF_Foundation
Donations greatfully received at:
on.cff.org/3T40c0F
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1.30pm and 19 miles in. Phew. I got a blister on my big toe but hey that's just pain.
Let's go do this! #xtremehike @CF_Foundation
Donations greatfully received at:
on.cff.org/3T40c0F
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13miles & 5hr25mins, Top of Max Patch. Let's go do this! #xtremehike @CF_Foundation
Donations greatfully received at:
on.cff.org/3T40c0F
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Yeah this climb is what I'm starting my day off with. How about you?
Let's go do this! #xtremehike @CF_Foundation
Donations greatfully received at:
on.cff.org/3T40c0F
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Yup its that time again when curing CF means getting up at 2am & hiking 31miles on the AT.
Let's go do this! #xtremehike @CF_Foundation
Donations greatfully received at:
on.cff.org/3T40c0F
Yesterday my youngest graduated college. I owe so much, to so many, for this moment. Thank you to everyone who has helped in the fight to cure #cysticfibrosis and keep her healthy. @CF_Foundation
My latest adventure to raise the money, that will buy the science, that will cure #cysticfibrosis @CF_Foundation
linkedin.com/posts/peter-hod…
Another #xtremehike in the books. Amazing group of hikers achieved $250K worth of steps closer to a cure for #cysticfibrosis @CF_Foundation
As a warm up to tmrws Xtreme Hike to cure #cysticfibrosis I hiked across New Jersey. Here's what I learnt.
linkedin.com/pulse/how-you-d…
#cysticfibrosis isn't going to be cured sitting on the couch. My latest LinkedIn article from the Appalachian Trail. @CF_Foundation
linkedin.com/pulse/decision-…
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KC is the literal walking embodiment of the dedication of the CFF to cure #cysticfibrosis across so many years & the hope for ALL with CF, children & adults alike of things to come. What an amazingly inspired choice for Board Chair.
We’re thrilled to announce that KC White has been elected by the Foundation’s Board of Trustees as its next Board Chair. This marks the first time in our history that the Board will be led by a person with #cysticfibrosis. on.cff.org/KC-White-Next-Cha…
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