PF (Patricia/Pat) Anderson (@pfatech) header
PF (Patricia/Pat) Anderson (@pfatech) profile picture

This was the livetweeting account for @pfanderson. Have been locked out & am unable to access help from @TwitterSupport Librarian, LongCOVID March 2020

Ann Arbor
Joined September 2010
Photo by PF (Patricia/Pat) Anderson (@pfatech)Photo by PF (Patricia/Pat) Anderson (@pfatech)Photo by PF (Patricia/Pat) Anderson (@pfatech)Photo by PF (Patricia/Pat) Anderson (@pfatech)Photo by PF (Patricia/Pat) Anderson (@pfatech)Photo by PF (Patricia/Pat) Anderson (@pfatech)Photo by PF (Patricia/Pat) Anderson (@pfatech)Photo by PF (Patricia/Pat) Anderson (@pfatech)Photo by PF (Patricia/Pat) Anderson (@pfatech)Photo by PF (Patricia/Pat) Anderson (@pfatech)
Replying to @pfatech
Annnnd ... now my Facebook was deleted, too. I've been trying to fix that problem for about 6 months.
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PF (Patricia/Pat) Anderson retweeted
I hope those who follow my timeline appreciate my willingness to share deeply personal aspects of my life. Some are difficult to discuss. This is one of them. I’ve been prescribed benzodiazepines by the VA every single day since I was 29 years old. I’m now 46. Seventeen years of continuous use. Today, I take 5 mg of lorazepam (Ativan) daily. My severe anxiety traces back to my general discharge (under honorable conditions) from the Marine Corps during the Don’t Ask, Don’t Tell era. I loved being a United States Marine. I wanted to make the Corps my career. During my service, I was navigating questions about my sexual orientation, without fully understanding or defining that part of myself. I faced the loss of the military career I’d envisioned. I believe my commanding officer thought a relatively favorable discharge would soften the blow. But no characterization of service could erase the humiliation, the profound sense of rejection, or the crushing disappointment of knowing I would never again have the privilege of wearing that uniform. That loss and anxiety followed me long after I left the Corps. I remember sitting across from my VA psychiatrist in 2009 when she first prescribed Xanax. I remember her face and taking that first dose. I was working as a corrections officer at the time. For the first time in years, the relentless noise in my mind went quiet. The apprehension, hypervigilance, and overwhelming anxiety seemed to dissolve. I experienced a sense of peace I’d almost forgotten existed. Over the years, Xanax became Klonopin, then Valium (at one point 20 mg daily), and eventually lorazepam. The initial relief faded as tolerance developed, but the medication continued helping me manage anxiety that threatened to consume my life. I genuinely question whether I could have navigated some of my darkest years without it. And yet, seventeen years later, I find myself grieving a version of myself I’ll never know. What if someone had helped me confront the underlying trauma more effectively? What if I’d received intensive, individualized psychotherapy instead of spending nearly two decades dependent on medication? The VA did try antidepressants. Several left me emotionally numb, profoundly depressed, and sometimes experiencing passive suicidal thoughts. Tapering was discussed over the years, but my anxiety was severe, and I resisted. Today, my psychiatric care often consists of a five- or ten-minute telehealth appointment, a handful of routine questions, and another three months of refills. Now I live with long COVID, POTS, dysautonomia, MCAS, vEDS, SRS, and chronic pain. At my most recent VA telehealth appointment, my psychiatrist asked the same routine questions, checked whether I needed more lorazepam refills, and that was the extent of our conversation. So here I am, seventeen years later, physiologically dependent on a medication that once gave me my life back. And I wonder about my future. What will another decade or two mean for my memory, cognition, and neurological health? Research concerning benzodiazepines and dementia remains inconclusive, but the uncertainty is unsettling. I’m grateful for the relief these medications provided. I’m deeply saddened that I may never know whether another path could have given me that peace without lifelong dependence. To my chronic illness, chronic pain, mental health, and veteran communities: Has anyone else spent 10, 15, or 20-plus years on prescribed benzodiazepines? Have you experienced cognitive changes, attempted tapering, or questioned the long-term consequences? I’d genuinely appreciate hearing your experiences. At 29, I thought I’d finally found relief from years of psychological suffering. Seventeen years later, I’m wondering what that relief may ultimately cost me.
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Wordle 1,959 4/6 ⬛🟨🟩🟨⬛ ⬛⬛⬛⬛⬛ ⬛🟩⬛⬛🟨 🟩🟩🟩🟩🟩
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PF (Patricia/Pat) Anderson retweeted
Today, we're launching medoctors.org, the most comprehensive listing for ME doctors worldwide, with 651 doctors and clinics in 19 countries. Many people with ME bounce around between dismissive medical appointments for years before a word-of-mouth reference or a one-off review in a patient community finally leads them to a doctor who truly gets it. That's not acceptable. We believe everyone deserves access to information about competent doctors, no matter if they're newly suspecting an ME diagnosis or have been disbelieved for years. ME Doctors shows patients only information that actually matters: how helpful each doctor is, what they tend to prescribe, whether they offer telemedicine, their cost per visit, and how long their waitlist is. This launch is just a start: our eventual goal is a listing of thousands of doctors across dozens of countries. But we need your help to get there: - Look over the doctors listed in your country and tap “Add a doctor” if you see any that are missing. - If you know of an existing doctor directory in your country that we can link to, let us know!
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PF (Patricia/Pat) Anderson retweeted
Daily N95 wear has been a life-changer for me. Not being sick for 6 years was like getting 14-21 days back per year from a single acute illness. Let’s say 84-126 extra healthy days. It’s incredible when you think about it. Masks on planes =no brainer. Daily public masking? Same.
University of Hong Kong researchers analyzed 40 airplane outbreaks of COVID-19 and flu. Infection risk was highest near infected passengers. Models found N95 masks nearly eliminated transmission, while doubling ventilation alone was insufficient. pubs.acs.org/esthag/article/…
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Le Mot (@WordleFR) #1755 5/6 🟨⬛🟨⬛⬛ ⬛⬛⬛⬛⬛ ⬛⬛⬛⬛⬛ ⬛🟩🟨🟩⬛ 🟩🟩🟩🟩🟩 wordle.louan.me
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PF (Patricia/Pat) Anderson retweeted
NEW: Pope Leo XIV is set to become the first sitting pontiff in the Catholic Church’s two-thousand-year history to vote in a secular election. Leo requested an Illinois mail ballot on Oct. 3, and it was sent to his brother John’s home in New Lenox, Ill. John Prevost visited the pope at the Vatican on Wednesday and may now be carrying the ballot back to the Will County clerk by hand. thelettersfromleo.com/p/pope…
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Connections Puzzle #1236 🟦🟦🟦🟦 🟪🟪🟪🟪 🟩🟩🟩🟩 🟨🟨🟨🟨
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PF (Patricia/Pat) Anderson retweeted
In 1952, an English teacher named Cecil Dormand secretly paid for a dirt-poor 11-year-old to take a drama course. He never told him and the boy didn’t find out until decades later. By then, he was a knight, that little boy’s name was Patrick Stewart. He was born into a poor family in Mirfield, a small mill town in Yorkshire and his father came home from World War II a violent man, and he was violent toward Patrick’s mother. Young Patrick learned exactly when to step between his father’s fist and his mother. An English teacher put a copy of Shakespeare in his hand and told him to get up and perform. He never stopped and left school at 15. By 19 he was completely bald... most agencies told him he'd never make it because of that. In 1987, the LA Times called him an “unknown British Shakespearean actor” when he was cast as Captain Picard. Then he became one of the most famous faces on Earth. You’ve probably heard that part. Here’s the part you haven’t: He spent decades as a patron of Refuge, sheltering women and children from domestic violence. But he never stopped trying to understand his father. He dug up a 1940 newspaper clipping that said his dad had come home with severe shell shock. He went to France and walked the ground where his father’s unit was pinned down under bombing for hours. He learned his father had PTSD, and nobody ever helped him. So Patrick became an ambassador for Combat Stress, a charity that helps veterans. In 2013, a young woman at a Texas convention told him she was a survivor of domestic violence. He asked, “My dear, are you okay?” Then he hopped off the stage, held her, and told her: “You never have to go through that again, you’re safe now.” At Dragon Con, a Make-A-Wish girl dressed as Spock came to meet him. 2,000 people were waiting for him to speak... he sat down and talked with her for 15 minutes, making all of them wait. He told her that since they were friends now, whenever she saw him on screen she could wave and say, “Hello Patrick.” After 9/11, he felt helpless, so he brought his one-man A Christmas Carol back to Broadway for a full week of charity shows. He played every character himself and donated every cent. In 2019 he did it again, and every dollar went to feeding hungry New Yorkers. In 2017, he fostered a pit bull named Ginger, who had been rescued from a dogfighting ring. She was his first dog in more than 50 years. He couldn’t bring her home to England, so he found her a family. Then he kept fostering more. When he said he was done with Star Trek so many people told him the show had gotten them through the hardest times of their lives. So he wanted to see if Picard could do it one more time. Rest in Peace, Sir Patrick 🖖
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Strands #970 “Double, double toil and trouble” 🔵🟡🔵💡 🔵🔵🔵🔵 🔵🔵
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Phoodle #1635 5/6 ⬛⬛⬛⬛🟨 ⬛🟨⬛⬛⬛ 🟨⬛⬛⬛🟨 🟨⬛🟨🟩🟨 🟩🟩🟩🟩🟩 phoodle.net
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PF (Patricia/Pat) Anderson retweeted
The brain fog lived experience. When someone with Long COVID says “I can read a page, but I can’t retain it,” I don't think “fatigue” captures it. A 2026 study (24,095 people; 548 with ongoing Long COVID symptoms) found deficits in sustained attention. Researchers found links between Long COVID symptoms and attention/memory difficulties beyond fatigue alone. Fatigue building during tasks mattered too. In clinic, we need to ask about cognition—not just tiredness. What does brain fog feel like for you?u? PS. Observational modelling cannot prove a mechanism. doi.org/10.1093/braincomms/f…
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Le Mot (@WordleFR) #1754 5/6 🟨⬛⬛🟩⬛ ⬛⬛⬛⬛⬛ 🟨⬛⬛⬛🟨 🟩🟩⬛🟩🟩 🟩🟩🟩🟩🟩 wordle.louan.me
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Connections Puzzle #1235 🟨🟩🟦🟦 🟨🟩🟨🟨 🟨🟨🟨🟨 🟦🟦🟦🟦 🟩🟩🟩🟩 🟪🟪🟪🟪 if they didn’t mispronounce the clue it would have made more sense
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