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Rare Lives

@RareLives
Joined September 2014
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Photo by Rare Lives (@RareLives)Photo by Rare Lives (@RareLives)Photo by Rare Lives (@RareLives)Photo by Rare Lives (@RareLives)Photo by Rare Lives (@RareLives)Photo by Rare Lives (@RareLives)Photo by Rare Lives (@RareLives)Photo by Rare Lives (@RareLives)Photo by Rare Lives (@RareLives)Photo by Rare Lives (@RareLives)
“I’m holding my life saving blood, going through all the information printed… instagram.com/p/BiR8Wj4A_l1/… – at Manhattan, NY

@rarelives • Instagram photo

instagram.com
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Today is the #InternationalPompeDay and we really want to share Viola’s story: "Viola is… instagram.com/p/BhmRrMNBMzA/
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"For his health, Riccardo needs an enzyme that his body cannot produce. So, every week we have… instagram.com/p/BhJaTDJl-jJ/
@rarelives • Instagram photo

@rarelives • Instagram photo

instagram.com
"When you are diagnosed with a rare disease, they should explain to you that it will be a hard… instagram.com/p/BhCkTaxFvbD/

@rarelives • Instagram photo

instagram.com
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"Before starting the treatment I did not realize the reason why I was so tired. In 1988, I… instagram.com/p/BgylAu_FU0O/ – at Modena, Emilia Romagna
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Vogliamo condividere l'e-book di @RareLives, che riassume 5 anni di progetto, per diffondere volti, voci e speranze di tutti i malati rari. Grazie ad @AldoSoligno, ai pazienti che si sono messi in gioco e a @SanofiIT per il sostegno bit.ly/2HhQ92K
Image from uniamomalattierare (@uniamofimronlus)
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Rare Lives: a Trieste la mostra dedicata a chi vive una “Vita rara” dal 2 marzo al 10 aprile al Palazzo del Consiglio Regionale del Friuli-Venezia Giulia. Dopo il grande successo al Parlamento Europeo, ancora in mostra il lavoro del fotografo @AldoSoligno bit.ly/2FaLG1e
Image from uniamomalattierare (@uniamofimronlus)
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More of the beautiful photos from the @rarelives exhibition held at the @Europarl_EN today to mark #RareDiseaseDay Thank you to @AldoSoligno for shining a light on the challenges and also the joys that come with living with a #raredisease #ShowYourRare @uniamofimronlus
Image from EURORDIS-Rare Diseases Europe (@eurordis)
Image from EURORDIS-Rare Diseases Europe (@eurordis)
Image from EURORDIS-Rare Diseases Europe (@eurordis)
Image from EURORDIS-Rare Diseases Europe (@eurordis)
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The sun is out in Brussels for @rarediseaseday 2018! Excited to see the opening event @RareLives exhibition. Photos by @AldoSoligno @uniamofimronlus
Image from EURORDIS-Rare Diseases Europe (@eurordis)
Image from EURORDIS-Rare Diseases Europe (@eurordis)
Image from EURORDIS-Rare Diseases Europe (@eurordis)
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.@AldoSoligno introduces his beautiful photos that show the #reality of living with a #raredisease He visited 70 families across 7 countries to take photos of the challenges people & families with a rare disease face on a daily basis @uniamofimronlus @RareLives @rarediseaseday
Image from EURORDIS-Rare Diseases Europe (@eurordis)
Image from EURORDIS-Rare Diseases Europe (@eurordis)
Image from EURORDIS-Rare Diseases Europe (@eurordis)
Image from EURORDIS-Rare Diseases Europe (@eurordis)
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La mostra @RareLives al Parlamento Europeo per ricordare ai decisori che dietro ai numeri ci sono persone, famiglie e #storie di #coraggio e #resilienza. #Rarediseaseday #RDD #GiornatadelleMalattieRare #Showyourrare #Conlaricercasipuò
Image from uniamomalattierare (@uniamofimronlus)
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Da Modena al resto del mondo: l'importanza della ricerca per le Vite Rare. Oggi su @gazzettamodena #RareDiseaseDay #Run4Rare #buongiorno #19febbraio
Image from Sanofi Italia (@SanofiIT)
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Oggi a Modena per la #biotechweek si parla di biotecnologie per le #malattierare. Ci accolgono gli splendidi scatti di @RareLives
Image from Alice Manfredini (@AliManfredini)
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Rush finale per sottomettere un progetto a #MaketoCare --> go for it!!! #maker #innovation
Image from Filippo Cipriani (@CiprianiF76)
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Bisogni, speranze, piccole gioie quotidiane: torna a Modena il viaggio fotografico di @RareLives , oggi su @gazzettamodena #buongiorno
Image from Sanofi Italia (@SanofiIT)
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#MakeToCare aspetta progetti per lo sviluppo di bambini con disabilità agenziaimpress.it/in-evidenz… via @agenziaimpress.it – at Milan, Lombardy
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Progetti innovativi per sfidare la #disabilità: torna #MakeToCare, il contest di @SanofiGenzymeIT a #MFR17! ow.ly/jZ0f30dTlX3
Image from Maker Faire Rome - The European Edition (@MakerFaireRome)
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I volti e le vite coraggiose raccontate dai 7000 scatti del progetto #RareLives, da #MeetSanofi bit.ly/2hqcyme
Image from Sanofi Italia (@SanofiIT)
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Watch the video of Aldo Soligno's journey across Europe for the @RareLives project. #RAREvolution #RareDiseases vimeo.com/120137271
Rare Diseases, Rare Lives

Rare Diseases, Rare Lives

In Europe, 30 million people live with a rare disease. This project wants to give them visibility and strength, raising awareness and attention of the citizenship on rare diseases through the...

vimeo.com
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Have you heard of @RareLives ? Discover the photographic journey dedicated to those living with a #RareDisease! rarelives.com/
Image from ERN EuroBloodNet (@ERNEuroBloodNet)
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