Official Twitter Account for SHARE - The Scottish Health Research Register. An NHS Scotland initiative for people interested in participating in health research
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ALT Jacqui Kerr, Network Manager (Neuroprogressive and Dementia), NHS Research Scotland, smiling in front of the quote: "We are immensely proud to be part of the READ-OUT team, assessing the promise which multiple new and existing blood tests potentially hold when looking at a range of dementia types, from Alzheimer disease and vascular dementia to frontotemporal dementia, and dementia with Lewy bodies. Ultimately, it’s about helping people with dementia receive a timely and accurate diagnosis." The URL www.nrs.org.uk is visible.
ALT Person stands smiling holding new born twins
ALT Quote graphic with text expressing a positive review about a clinical trial experience, attributed to Helen.
ALT Clinical Trials Day: Thank you for being part of research
ALT Clinical Trials Day 2025 Today’s topic is informed consent! What does informed consent mean? Why does it matter?
ALT Informed consent is when a person is told about the research and what it involves, choosing freely to take part in it. This generally happens before the research. This is an important part of ensuring research involving humans is carried out ethically. However, this was not always the case....
ALT In the 1930's, the US Public Health Service started the Tuskegee Syphilis study, to observe “the natural history of syphilis”. Black men with and without syphilis were involved in the study but informed consent was not taken. In the 40's, penicillin was being used widely as a treatment but this was not offered to the men. In the 70's, a story about the study was published, resulting in the trial being stopped. By that time, 74 were still alive. 128 had died of syphilis or complications, 40 wives were infected and 19 children had congenital syphilis.
ALT International Clinical Trials Day 2025 20th of May is International Clinical Trials Day. Read for a brief history of some key milestones. Arrows pointing right
ALT 20th May 1747 James Lind started the first clinical trial on this day. Lind was looking into scurvy treatments for sailors on long sea voyages. Lind compared various treatments including cider, vinegar, oranges and lemons. 1863 First clinical trial using a placebo. If someone is given a placebo, then that means they are not given the ‘real’ medicine or active ingredients being researched. Instead they get a ‘fake treatment’. This lets people see whether any results come from the medicine being researched or not.
ALT 1943 The first double blind trial was carried out. A double blind trial means that that neither the participant nor the researcher knows which study group the participant belongs to. For example, the participant could be getting a placebo or the medicine being researched. This is done to reduce the risk of bias - meaning it is more likely that the results are accurate. 1947 The Nuremberg Code was drafted. This is a set of 10 ethical principles for human research, developed following the war crimes of Nazis around WW2. An example of one principle is informed consent.
ALT Clinical Trials Day: Thank you for being part of research
ALT Sarah Kennedy, VPAG Network Manager at NHS Research Scotland, is featured in a promotional graphic that includes the quote: "Fast-tracking trial approvals while protecting patient safety and contributing to a financially sustainable NHS are all of paramount importance and that is what this investment is expected to achieve, hand in hand with valuable breakthroughs in cost-effective medicines and therapeutics." The NHS Research Scotland logo is visible, and the website www.nrs.org.uk is mentioned.
ALT Photo of Joy. Text: “When someone tells me after their procedure that it wasn’t as bad as they feared, I know I’ve done my job, not just clinically, but in helping them feel comfortable and cared for. That’s what nursing is all about.”