Founder @jarproject charity #ThinkJIA #JIA (Juvenile Idiopathic Arthritis) research, awareness & support PhD student @CfE_UoM @OfficialUoM Views my own
Joined January 2012
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Richard Beesley retweeted
To accompany the leaflet, we have created a dedicated website at stillsdisease.uk
@evemdsmith_eve @eular_org @R_tattersall @RheumatologyUK @jialearn @NHSGIRFT @nv_tweeting @angela_migowa @ReumatologiaU @def_causas_perd @cluster_tweet
Richard Beesley retweeted
Today is the day!
Our new resources for Systemic JIA (also known as Still’s disease) are launching today. We have a new leaflet explaining what #sJIA is with an accompanying website at stillsdisease.uk
Great to see these incredibly important EULAR/PReS recommendations published, first shared at #EULAR2024 earlier this year. Thank you to all involved for your work on this to make life better for children, young people and adults with #StillsDisease / #sJIA. @JARProject
Richard Beesley retweeted
WIN with RUSTLER this #NisaMonthly!
Boost your food and your mood with rustlers RT+FOLLOW for your chance to WIN 6 months free Spotify Premium.
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Richard Beesley retweeted
Follow & Repost to stand a chance to #win a copy of Blind Not Broken by Lucy Edwards. We have a book every day to giveaway. Every entry supports disabled awareness. (UK only) Our Tuesday competition closes tonight at midnight @lucyedwards
ALT Copy of blind not broken
Richard Beesley retweeted
Dr Daniel Aletaha opening #eular2024 @eular_org with patients at the centre of the EULAR manifesto.
Richard Beesley retweeted
‘Behind every statistic is a heartbeat’ Moving patient stories from Peter, Rebecca and Trinity #eular2024
Richard Beesley retweeted
Some exciting activities ongoing and on the horizon, including RheumaFacts, ENTRI, the impact of RMDs survey, and education #EULAR2024
Richard Beesley retweeted
What a special honour to have some of my story shared during the #EULAR2024 Opening Ceremony along with the amazing Beesley family, patient-centredness is to the fore of EULAR activities
Richard Beesley retweeted
RT this + follow @RunBournemouth� for your chance to be in the 28th April 9pm draw to win 1 of 3 Gold Package Half Marathon entries worth £160 each, including a Bournemouth Half Marathon entry, medal insert, training plan + kit bundle. 3 winners. UK entrants only. #ukrunchat #ad
A beautiful sunny start to the final day of #BSR24. Today will bring talks on biologics registers, JAK inhibitors, adults with JIA and more, plus findings from 3 of @JARProject studies, and meeting lots more teams supporting children with JIA. #Rheumatology @RheumatologyUK
If you are at #BSR24 come and visit us at stand 50 to say hello and find out how we at @JARProject support children, young people, and adults with JIA and their families, and how we can help you reach the patient voice in your #QI or #research projects.
Plus find out about the wide-ranging awareness work we do, and how we can help you raise awareness that children and young people get arthritis too. #ThinkJIA
Lovely to meet @DrAiLynTan this morning at #BSR24, chatting about research, community awareness of #JIA and running. Dr Tan, a keen runner, now has a @JARProject running top, helping raise awareness of JIA as she runs.
Early morning 5k with @RheumatologyUK to start day 2 of #BSR24, wearing our @JARProject running top to raise awareness that children and young people get arthritis.
Please take a few seconds to nominate Juvenile Arthritis Research in the Movement for Good awards today. An award of £5000 would make a huge difference to the work we can do to support families with #JIA #Rheumatology #BSR24
bit.ly/NominateJAR
Take 1 minute to make a difference!
For this week only the @benefactgroup Movement for Good ‘Health & Wellbeing’ awards are open.
Please nominate Juvenile Arthritis Research to be entered into the draw to win £5,000 at
bit.ly/NominateJAR
Thank you for your support!
#JIA
Richard Beesley retweeted
WEBINAR happening today! There's just one hour to go until this year's WORD day webinar. It's not too late to sign up to watch the free webinar and submit your questions at wordday.org
#ThinkJIA #Wordday2024 @wordday_org #JIA #Lupus #FMF
Richard Beesley retweeted
Cuando sumados a de los síntomas del #lupus tales cómo dolor y fatiga tienen que luchar con la sintomatología neuropsiquiátrica, la vida de niños y adolescentes se torna muy difícil.
El acompañamiento escolar, médico, familiar y de sus pares es de vital importancia.
#WORDDAY2024
♦️El 50-80% d niños con #lupus sufre afectación renal.
♦️Las manifestaciones neuropsiquiátricas son frecuentes en niños con #LES. Pueden incluir cefalea, crisis epilépticas, trastorno del ánimo, enfermedad cerebral vascular, corea, meningitis aséptica, neuropatía.
#WORDDAY2024
