Simon Fifer retweeted
If you’re over 18, live in Australia and have a rare disease, CaPPRE would love you to complete an online survey on your priorities and concerns relating to genomic testing. Insights will be shared with government policy-makers. Start the survey at: bit.ly/3NWGOkY
Simon Fifer retweeted
Access the CaPPRe partnership opportunity using the CIHR partner search tool available here: lnkd.in/gRH6dbz7
Are you a PhD or post-doc researcher interested in Health Technology Assessment decision-making? Address health system challenges as a #CIHR_ImpactFellow. Applications due Feb. 22: loom.ly/8zFWOsE
@Marshall_HEcon @CaPPRe_research @CIHR_IRSC @TIPS_SPIIE #OneChildEveryChild
Simon Fifer retweeted
Access the CaPPRe partnership opportunity using the CIHR partner search tool available here: lnkd.in/gRH6dbz7
Simon Fifer retweeted
Are you a PhD or post-doc researcher interested in Health Technology Assessment decision-making? Address health system challenges as a #CIHR_ImpactFellow. Applications due Feb. 22: loom.ly/8zFWOsE
@Marshall_HEcon @CaPPRe_research @CIHR_IRSC @TIPS_SPIIE #OneChildEveryChild
Simon Fifer retweeted
Have you seen the difference patient participation can make in the HTAi AM? Witness this success by watching this video by Patient Voice Initiative, showcasing Patients at HTAi 2023 Adelaide, where more than 70 patients enriched our discussions:
youtube.com/watch?v=NlBCrxVl…
Simon Fifer retweeted
CaPPRe's @MayaHoensJoshi presented last night at #Blood2023 on "Using digital health to empower multiple myeloma patients in shared decision-making: Findings from the ChoiceApp® pilot study".
To learn more about ChoiceApp®, visit choiceapp.com.au/
Simon Fifer retweeted
CaPPRe's Jenni Godsell is presenting on "Treatment Preferences and Goals Among People Living with CLL" tonight at #Blood2023. Stop by board H53 to check out the poster!
To learn more about the project visit: lnkd.in/g98F3g6s
Simon Fifer retweeted
CaPPRe is excited to be attending #Blood2023 in Melbourne! We’ll be sharing information about ChoiceApp, a new shared decision-making tool for people with myeloma, at Myeloma Australia’s exhibition stand. Come say Hello!
Simon Fifer retweeted
Today is World CLL Day! It's important for #CLL patients to receive comprehensive information & to properly understand all aspects of the disease. Knowledge empowers patients to take decisions that are right for them. #WCLLD23 #WithTeamCLL #MentalHealth @CLLAdvocates
Simon Fifer retweeted
Last week, ausEE Inc.’s CEO and Founder, Sarah Gray, was in Adelaide for the Health Technology Assessment international (@HTAiOrg) 2023 Annual Meeting.
Such an amazing opportunity!
Image credit: @PCISG some of the 70+ patients and patient community reps at #HTAi2023Adelaide
Simon Fifer retweeted
I'm grateful to have spent the week at #HTAi2023Adelaide ! It was truly inspiring & I had the privilege of connecting with numerous dedicated individuals who share a common goal: centering the patient voice & patient values in healthcare decision-making… linkedin.com/posts/maya-josh…
Simon Fifer retweeted
Important topic discussed by @Marshall_HEcon and other panellists during this morning’s session at #HTAi2023Adelaide
There is more to a #diagnosis than a name. Information is knowledge which leads to inform decision making and empowerment. A diagnosis can lead to getting the supports you need; clinical, education and social supports. @HTAiOrg #HTAiAdelaide2023
Simon Fifer retweeted
Happening at 9:10 in Riverbank 3. If you're at #HTAi2023Adelaide, come join the conversation with @RareVoices @jacknunn @simonfifer @Marshall_HEcon @gillyminn & Prof Sarah Norris 🗨️
Simon Fifer retweeted
“Understanding what’s important to patients & how satisfied they are with different aspects of the healthcare pathway allows us to target areas for improvement”- CaPPRe’s Jenni Godsell presenting on the #MM Patient Experience Index ➡️ cappre.info/mmpei.pdf #HTAi2023Adelaide
Simon Fifer retweeted
CaPPRe's Samson Kong presented findings from a choice experiment exploring community willingness to fund new treatments at #HTAi2023Adelaide. Key takeaway: "Australians are willing to fund new treatments not already covered by the government". Learn more➡️ cappre.info/CaPPRe-HTAi%20Co…
Simon Fifer retweeted
Thanks to all panelists and audience for a fabulously engaging discussion on ‘speed and rigour’ in patient preference studies #HTAi2023Adelaide
Simon Fifer retweeted
Replying to @simonfifer
@simonfifer presenting some high-level findings from collaborative workshops with HTA members. One of the work streams being run by the @PCISG patient preference project subcommittee #HTAi2023Adelaide
Patient Preference studies can complement and enhance other input to HTA including patients experiential data if done with rigour #HTAi2023Adelaide #Hta #patientpreferences #CADTH #INESSS
Simon Fifer retweeted
We're looking forward to this evening's panel session with @simonfifer, @Marshall_HEcon, Evi Germani, Stella O'Brien, and @bliden at #HTAi2023Adelaide!
Simon Fifer retweeted
Curious about incorporating patient preferences research into health technology assessment (HTA)?
Deborah Marshall will speak on this topic in two presentations Monday afternoon (ACST) at #HTAi2023Adelaide






























