Tim Buckinx retweeted
Big news ! 💥We've teamed up with @BrightMindsBio to bring our real-time seizure detection tech to their phase 2 trial for drug-resistant #epilepsy.
Making invisible seizures visible → right from home
📱🧠💡
#digitalhealth #EEG #clinicaltrials
🔗 hubs.la/Q03tk5xR0
Tim Buckinx retweeted
@Dr_Rhys's poster attracted a lot of visitors yesterday. 🙏for sparking conversations & new interest in r(20) #epilepsy. Together with @timbuckinx,Trustee, Margaret, r(20) family member rep Ring20 USA & Kentaro Tokumoto (SAB member fm 🇯🇵) r(20) is breaking new ground at #AES2024
Tim Buckinx retweeted
How can breathing, sound & music can promote #BrainHealth and combat brain disorders? 🎶🧠
The #BIDays attendees experience firsthand the effects of breathing, sound and music in their bodies.
What a great first day already!
🥂After an exciting first day, we break for the evening to celebrate the 4th edition of #BIDays.
Join us and unwind at our networking cocktail reception and walking dinner in the Innovation Hall!
Tim Buckinx retweeted
🌍 On November 13-14, join us in Brussels for the #BIDays!✨
Speakers from all over Europe & beyond will cover all kinds of exciting topics within the general theme "Navigating the Brain Across a Lifetime".
Check out the programme and register now 👉 braininnovationdays.eu/progr…
Extremely excited to be speaking at the #Brain #Innovation Days about the pioneering @wrepihunter DTx strategy using auditory neuromodulation. Sound as the medicine for brain disorders!
🗓️ 13-14 Nov. 2024
📌 Brussels, Belgium
#BIDays Register now:
👉 braininnovationdays.eu/
Tim Buckinx retweeted
Big audience for #EEC2024 session on genetic testing.
@SarahWeckhuysen very explicitly speaking about the need to do karyotyping if r(20) syndrome is suspected as it is frequently mosaic.
#epilepsy #diagnostics #karyotype is still important!
Happy to participate in the great conversations for this important and insightful work!
📅Today is International Phenylketonuria Day!
EBC has released Study Insights on "The Value of Education: Digital Care Pathways for Rare Brain Diseases research project – The Case of Phenylketonuria"
#PKUDAY2024 #adultPKUawareness
🔍Read the report here: bit.ly/4eL8aqv
Tim Buckinx retweeted
📅Today is International Phenylketonuria Day!
EBC has released Study Insights on "The Value of Education: Digital Care Pathways for Rare Brain Diseases research project – The Case of Phenylketonuria"
#PKUDAY2024 #adultPKUawareness
🔍Read the report here: bit.ly/4eL8aqv
Tim Buckinx retweeted
It’s so important for companies to understand why people with epilepsy need specific considerations in the workplace. Tragic losses like these should never happen. With a little knowledge, this would’ve been avoided.
Make sure you don’t fail your employees
epilepsy.org.uk/training
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Tim Buckinx retweeted
Excited to join @aparitohealth for their upcoming webinar where our CEO @timbuckinx will share insights and perspectives from our work at @wrepihunter ! #dailylifeimpact #epilepsy
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Tim Buckinx retweeted
With @BBCStoryWorks 📹 & @medtecheurope 🧠 🇪🇺 I share my excitement re #MedTech, its possibilities, the need for managing it well, & how it can and already is leading to improving people’s quality of life 👇🏻.
linkedin.com/feed/update/urn…
Examples of people and company’s leading when it comes to MedTech and the epilepsies, include:
- @SBeniczky, @FiladelfiaGene1, @AllanBayat, @Elegardella, @NazaninAzarine1, at @Filadelfia_DK 🇩🇰
- @krispmelb from the @UNSW 🇦🇺
- @UNEEG_medical 🇩🇰
- @epilepsy_london team from @KingsIoPPN 🇬🇧
- @BenHBrinkmann & @jsirven from @MayoClinic 🇺🇸
- @timbuckinx & the @wrepihunter team 🇧🇪
- @JNys86, @hdanneels & the @byteflies team 🇧🇪
- @SeerMedical 🇦🇺
- Daniel Goldenholz from @bethisraellahey 🇺🇸
- Christine Maher from the @Sydney_Uni 🇦🇺
…& so many more!
#epilepsy #neurology #mentalhealth #psychiatry
Tim Buckinx retweeted
It’s a wrap! After an open discussion on unmet needs engaging Michelangelo Mancuso (@EANeurology), Anna Jansen (@EPNSnews) and the audience, the concluding remarks from Frédéric Destrebecq bring the event on a rare brain disease ecosystem to a close.
Tim Buckinx retweeted
We turn the focus to patients and caregiver priorities, with a personal testimony from Tim Buckinx (@wrepihunter) and interventions from Matt Bolz-Johnson (@eurordis) on #MentalHealth and rare conditions and Orla Galvin (@EUneurology) on rare #neurology.
Tim Buckinx retweeted
Super powerful testimony of @timbuckinx at @EU_Brain ‘Towards a Rare Brain Disease Ecosystem’
Rare Diseases come with an emotional and financial impact and risk for isolation for the individuals living with rare diseases as well as their families
#RareDiseaseAwareness
Tim Buckinx retweeted
The main purpose of #RareDiseasesDay is to raise awareness about rare diseases and their impact on the lives of those affected.
Discover the programme & register now 👉 braincouncil.eu/event/toward…
Tim Buckinx retweeted
On the occasion of the #RareDiseasesDay, join us to explore what can be done to improve the lives of people living with a rare disease!
📅 29 February 2024
🕙 10:00-14:00
📍 Brussels & Online
Discover the programme & register now 👉 braincouncil.eu/event/toward…
Tim Buckinx retweeted
🌟 Exciting news! 🌟 Our phase 3 prospective study for absence seizures is featured in the Epilepsia journal Special Issue! 🎉📚 So thankful about the world's leading journal of original scientific research and commentary in epileptology. 🌍💡
🔗 hubs.la/Q02gzZz90
Pain: the common factor in touching music and health entrepreneurship linkedin.com/pulse/pain-comm… via @LinkedIn
What a great event avoiding the typical needle in the haystack inefficiencies! Indeed great conversations!
What a team! Pitching to companies at Rare Neurology-CNS partnering event to advance the science in chromosome disorders assoc with refractory #epilepsy. Some exciting opportunities to follow up for both @Ring20 and #UKRET
🙏@ronijort and team
#speeddating
