@tssus

Official twitter page for Turner Syndrome Society of the US, where we advance knowledge, facilitate research and providing support for all touched by TS.

 National
turnersyndrome.org
Joined March 2011
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  • Following16
  • Followers1K
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The 2026 TSSUS National Turner Syndrome Conference Report is out! If you were there, this is a great momento, if you weren’t, this gives you an idea of what it’s like. You can find the report in our September newsletter here: myemail.constantcontact.com/…
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Learning to drive when you have Turner syndrome and nonverbal learning differences can be challenging for most. Learn more: turnersyndrome.org/single-po… #turnersyndrome #tssus #tssociety
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Writing is My Biggest Passion - by Haylee Christ

Hello! My name is Haylee, and this is my TS story! I am so grateful to be able to share it with you, and I pray that it can be a source of inspiration for other individuals going through a similar...

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In this TSSUS blog post, we talk about social challenges related to Turner syndrome and offer suggestions and tips on how to navigate them. turnersyndrome.org/single-po… #tssus #turnersyndrome #turnersyndromeawareness #tsawarenessmonth #turnersyndromesocietyus

Understanding Social Challenges in Turner Syndrome: Navigating Friendships and Connection

by Becky BrownTurner syndrome (TS) is a genetic condition that affects females and is caused by the complete or partial absence of one X chromosome. While much attention is given to the physical...

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Children with Turner syndrome (TS) need daily growth hormone injections to grow. GHT supports more than just attaining height; it helps the whole body grow, including the brain! In this clip, Carly and mom Kayla show us how it’s done! #turnersyndrome #tssus #tsawareness
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February is Turner Syndrome Awareness Month! Help spread the word by sharing this infographic!
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turnersyndrome.org/single-po… Cindy shares her TS story in this TSSUS blog post. #tssus #turnersyndromesociety #turnersyndromeawareness #turnersyndrome #turnersyndromeawarenessmonth

LIfe Is So Terrific Now - by Cindy Koeppel

It’s hard to get some good vibes down, because it wasn't always perfect in life back then. I’m the third child of parents who both came from large families. There where two older brothers, then me,...

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turnersyndrome.org/single-po… In this TSSUS blog post, Gia talks about what it's like to be a mother with Turner syndrome who has a daughter with Turner syndrome as well! #tssus #turnersyndromesociety #turnersyndromeawarenessmonth #turnersyndromeawareness #turnersyndrome

My Daughter and I Both Have Turner Syndrome - by Gia Bugni

The first thing a young uncle said when he saw me as a newborn was, "She has big ears." I grew up pretty "normal", but only reached a height of 4',11". I had a normal puberty and seemed healthy. As...

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turnersyndrome.org/single-po… Krystle shares her TS story and message of hope in this TSSUS blog post. #tssus #turnersyndromeawareness #turnersyndrome #turnersyndromeawarenessmonth #turnersyndromesociety

There is Hope - by Krystle Smith

My name is Krystle. I’m 37 years old. I was diagnosed with rheumatoid arthritis (RA) at 9 months old. At 12, I was diagnosed with Turner syndrome (TS). My TS went undiagnosed for longer than most...

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turnersyndrome.org/single-po… Lindsay shares her TS Story and italks about being proud to be a TS Butterfly. #tssus #turnersyndromesociety #turnersyndromeawareness #turnersyndromeawarenessmonth #turnersyndrome

I'm Honored to Be a TS Butterfly! - by Lindsay Wright

At my kindergarten graduation, my parents noticed that I was quite a bit smaller than my classmates (their feet could touch the floor when they sat in a chair, and mine couldn’t). After my pediatri...

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turnersyndrome.org/single-po… Katie shares her TS Story about deciding to be brave. #tssus #turnersyndromesociety #turnersyndromeawareness #turnersyndromeawarenessmonth #turnersyndrome

It All Started with the Decision to be Brave - by Katie Trahan

My journey with Turner syndrome began when I was 5. I was growing out of my shoes but not the rest of my clothes, and my parents (mostly my mother's intuition) knew they needed to take me to the...

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turnersyndrome.org/single-po… As TS Awareness Month nears its close, I wanted to share my story with you. Thank you for allowing me to speak into your lives through TSSUS, and for trusting in the donation campaigns I'm tasked with creating. #tssus #turnersyndromesociety

My Unlikely TS Story - by Becky Brown

As my 6th year work anniversary just passed, I thought I would share My TS Story with you. Full disclosure – I don’t have Turner syndrome, my children don’t have TS, no one in my family has TS, nor...

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turnersyndrome.org/single-po… Kami shares her TS Story with us in this TSSUS blog post. You can share your too by submitting it here: turnersyndrome.org/share-you… #tssus #turnersyndromesociety #turnersyndromeawareness #turnersyndromeawarenessmonth #turnersyndrome

Turner Strong, Be You - My Life's Theme - by Kami Vermillion

My story begins at the age of 12 years old. My parents were concerned about my lack of growth. I was only 4’5. My mom was concerned I hadn’t started puberty. I am positive God put my pediatrician in...

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turnersyndrome.org/single-po… Kristen shares her TS story about her experience thus far with her daughter. Be sure to share your story for the TSSUS blog as well! #tssus #turnersyndromesociety #turnersyndromeawarenessmonth #turnersyndrome #turnersyndromeawareness

Turner Syndrome is a Gift that was Given to Us - by Kristen McKinney

Anna’s story begins at about 9 week’s gestation. It was around that time that I started to feel like something was different. Let me start by saying that when I’m pregnant, I know things. ALL the...

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turnersyndrome.org/single-po… In this TSSUS blog post, National Director of Member Services, Deborah Rios, talks about how she came to work for the organization and what it means to her. Internally, we call Deborah "the heart of TSSUS". #tssus #turnersyndromesociety #turnersyndrome

My Inspiration is You - by Deborah Rios

My TS journey began nearly 16 years ago. I started as a part-time employee at the Turner Syndrome Society of the United States (TSSUS). Cindy and I shared classroom activities and parties with our...

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In this My TS Story blog post, Katie encourages you to find your fire! #tssus #turnersyndromesociety #turnersyndromeawareness #turnersyndrome #turnersyndromeawarenessmonth turnersyndrome.org/single-po…

Find Your Fire! - by Katie Cooper

I was diagnosed with Turner syndrome (TS) when I was nine, and I can say without a doubt it's been a health journey ever since. As a person with TS, I'm only 5'1", I don't drive as a result of...

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turnersyndrome.org/single-po… Kristy shares her TS story in this TSSUS blog post. You can share your own story by submitting here: turnersyndrome.org/share-you… #tssus #turnersyndromesociety #turnersyndromeawareness #turnersyndromeawarenessmonth #turnersyndrome

Keep Flying, Butterflies! - by Kristy McDonald

Hi, my name is Kristy McDonald. I am 34 years old. I was born hearing impaired, so I’ve worn hearing aids all my life. I was diagnosed with Turner syndrome (TS) when I was 14 years old when an aunt...

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turnersyndrome.org/single-po… Enjoy Leslie's TS Story where she encourages us to give and receive help. #tssus #turnersyndromesociety #turnersyndromeawareness #turnersyndromeawrenessmonth #turnersyndrome

Both Give and Receive Help - by Leslie Heilig

Hi! My name is Leslie Heilig, and I was diagnosed with TS at the age of 16 (maiden name Garcia). I am 60 years old, and I retired from a federal government career of 26 years. I live in Shiloh,...

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