@useMYdata

The only independent UK movement of patients, relatives and carers focussed on the use of patient data to save lives and improve outcomes

 United Kingdom
useMYdata.org
Joined July 2016
  • Tweets3.3K
  • Following662
  • Followers2K
To stay in touch with #useMYdata head over to our LinkedIn page: bit.ly/3AKdhrH To watch recordings of our Education Sessions visit: bit.ly/3X8UH3Z To join use My data visit: bit.ly/3AUUzgM
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📢SAVE THE DATE 🗓️ 24 June 2025 📍Leeds UK The UK’s first NATIONAL PATIENT DATA DAY ℹ️ Agenda set by patients for patients and the public 📈Stakeholders from across the patient data world bit.ly/3WtjIaI #NPaDD2025 #useMydata
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"use MY data is a fantastic patient advocacy organisation." @natalie_banner gets the panel discussion underway "Exploring the promise and addressing the challenges of AI-powered genomics" at #GERS20. Ceri Steele bringing the voice of #useMYdata Members to the conversation.
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Help shape the future of #leukaemia diagnosis & treatment. #LRCG @UniofNewcastle would like your opinion about using data in research. If you’ve survived cancer/have a child or relative with cancer/are interested in research, take their short survey: ➡️ forms.office.com/e/EdimF4xgF…
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Looking forward to meeting #patient advocates and researchers at #HDRUKConference this week. Visit our stand to learn about the benefits of #useMYdata membership and our work promoting the trustworthy use of patient data to save lives and improve outcomes. #healthdata #research
Poster advertising the Health Data Research UK (HDRUK) conference. A grid of multi-colour abstract images on a white background. Accompanying text reads, The Grand Challenges in Health Data 5-6 March 2024/Leeds.

ALT Poster advertising the Health Data Research UK (HDRUK) conference. A grid of multi-colour abstract images on a white background. Accompanying text reads, The Grand Challenges in Health Data 5-6 March 2024/Leeds.

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Richard Stephens has been explaining what #useMYdata members and patients want to see happening in research #Transparency #itsgoodtoshare #patientdata
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Next up at #CRUKDataConf24 #useMYdata members Richard Stephens @DebbieKeatley on "Designing data research to create patient and public benefit." @mhairi_aitken @deemtembo @NielsPeek #AntonisAntoniou #PatientDataCitation #itsgoodtoshare #patientdata #patientadvocates #transparency
use MY data Image card displaying white text on blue background that reads, The Patient Data Citation: "This work uses data provided by patients and collected by the NHS as part of their care and support." if you use (our patient data, please acknowledge it. Thankyou."

ALT use MY data Image card displaying white text on blue background that reads, The Patient Data Citation: "This work uses data provided by patients and collected by the NHS as part of their care and support." if you use (our patient data, please acknowledge it. Thankyou."

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All set for #CRUKDataConf24 today & tomorrow #Manchester @CR_UKresearch. Come say hello to #useMYdata Members, learn more about using our #PatientDataCitation in your work. #itsgoodtoshare
Conference display table covered with #useMYdata promotional materials

ALT Conference display table covered with #useMYdata promotional materials

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The LRCG @UniofNewcastle want your opinion about using data in research. If you’ve survived cancer/have a child or relative with cancer/are interested in research, you could help shape the future of leukaemia diagnosis & treatment. ➡️ forms.office.com/e/EdimF4xgF… or scan the QR code
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First UK-wide study of 67 million people reveals gaps in COVID-19 vaccine uptake. Led by @HDR_UK and @EdinburghUni, this research highlights the value of whole-population studies in COVID-19 research and to address other diseases in future. bit.ly/4b0nT31 #usemydata
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