@AMENDInfoUSA

We’re here to connect those who are impacted by MEN disorders–patients, family, friends, and providers–with useful resources.

amendusa.org
Joined May 2021
  • Tweets175
  • Following160
  • Followers164
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Welcome to AMEND USA! We're here to rasie awareness, educate, and connect individuals impacted by MEN disorders. We're glad you're here. Visit the link in our bio to view our website and resources! #men1 #men2 #mendisorders
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👏Kudos to AMEND USA @AMENDInfoUSA for its new educational and advocacy activities. 📌ON FOCUS: John Metzcar, AMEND USA President, was featured by the Neuroendocrine Tumor Research Foundation - find out more: incalliance.org/amend-usa-ex… #LetsTalkAboutNETs
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We are hosting our first every community town hall August 31 at 4 pm PT/7 pm ET! We are sharing recent survey results on preferences and programming needs of the AMEND USA community. This will followed by a patient support group meeting. Please share!!!
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@ThyCaInc
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Join us this Thursday 27th August for this month's NETChatter meeting. DM for the link. @PheoPara @carcinoid @CarcinoidNETs @CureNETs @NANETS1 @NETawarenesss @NCFCancer @netcancerday
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We are so excited to join INCA, a global organization dedicated to increasing neuroendocrine cancer awareness and improving its care. We love this warm welcome and can’t wait to get started in the group and community!! @netcancerday #LetsTalkAboutNETs
NET Cancer Day
@netcancerdayAug 3
🔔INCA is thrilled to welcome @AMENDInfoUSA into the global NET patient community to work towards improving NET awareness and care. 👉INCA now represents 37 patient organizations in 29 countries on 6 continents. ✅Read more: incalliance.org/inca-welcome… #LetsTalkAboutNETs
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Come join us and @netcancerfound at Thursday's NET Chatter series!! It features the NCI's Dr. John Glod and his fantastic work with MEN2 and MTC! 1:00 pm ET, 10 AM PT Patients, researchers, and clinicians all welcome! @AmThyroidAssn @ThyCaInc @TheAAES @TheEndoSociety @TheAACE
NET CANCER FOUNDATION@netcancerfoundJul 28
Join us this Thursday 30th July at 6pm UK / 1pm EST for this month's NETChatter. DM for the link. @NCFCancer @PheoPara @AMENDInfoUSA @netcanceraware @carcinoid @netcanceraware @netcancerday @CureNETs #research #zebrastrong #LetsTalkAboutNets
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Join us this Thursday 30th July at 6pm UK / 1pm EST for this month's NETChatter. DM for the link. @NCFCancer @PheoPara @AMENDInfoUSA @netcanceraware @carcinoid @netcanceraware @netcancerday @CureNETs #research #zebrastrong #LetsTalkAboutNets
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We've got big news! We are excited to work with @rezolutebio and raise awareness for their new study.
Image of a comic book quotation bubble with the words big news! AMEND USA is proud to partner with Rezolute Inc. and raise awareness of their upLIFT Phase 3 clinical trial. You could help change the future of treatment for tumor-related hypoglycemia. Visit upliftstudy.com for more info!

ALT Image of a comic book quotation bubble with the words big news! AMEND USA is proud to partner with Rezolute Inc. and raise awareness of their upLIFT Phase 3 clinical trial. You could help change the future of treatment for tumor-related hypoglycemia. Visit upliftstudy.com for more info!

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It’s Rare Disease Day! Watch this video for a quick introduction to MEN disorders. For more information, visit our website: amendusa.org/. #RareDiseaseDay #ShowYourStripes #rarediseases #men1 #men2 #mendisorders
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Happy Rare Disease Day from the AMEND USA team! We hope you join us in supporting and advocating for the MEN community. #RareDiseaseDay #ShowYourStripes #rarediseases #men1 #men2 #mendisorders
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MEN warrior and AMEND USA board member, Thomas Lehrich, shares his experience and passion for advocating for MEN disorders as rare diseases. #RareDiseaseDay #ShowYourStripes #rarediseases #men1 #men2 #mendisorders
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Happy Rare Disease Day! MEN disorders are genetic rare diseases. AMEND USA is dedicated to increasing awareness for these disorders. For more information, visit our website: amendusa.org/. #RareDiseaseDay #ShowYourStripes #rarediseases #men1 #men2 #mendisorders
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A Year-End Message of Gratitude from the AMEND USA Board of Directors - mailchi.mp/1205542ebbec/a-ye…
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Today is World NET Cancer Day! Learn more in our newsletter: mailchi.mp/41bbdc6f1c89/toda…
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Tomorrow is #WorldNETDay — coordinated by @INCAlliance to amplify the voice of the NET community and advance diagnostics, treatment, care, and research. 💜 Donate: amendusa.org/donate/ 🧠 Take the INCA SCAN 2025 Survey: incalliance.org/scan2025/ #LetsTalkAboutNETs

Donate - AMEND USA

Your donation to AMEND USA aids in providing information and support to patients and their families and continued advocacy for the MEN community.

amendusa.org
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📣#pheo #para #PPGL #PHriends . . . Share your experience by responding to the #SCAN2025 Global #NETs Survey. 🌎📝 #LetsTalkAboutNets @HealingNET1 @RonnyAllan1 @NANETS1 @CureNETs @netcancerday @VHLAlliance @AMENDInfoUSA @APheipas @netcancerfound @n_nets @NECancerAus
NET Cancer Day
@netcancerday28 Oct 2025
#NETCancerDay is on November 10th. ✅Share your experience as NET patient, caregiver or healthcare professional through #SCAN2025 Global Survey to advocate for early NET diagnosis and equal access to care: incalliance.org/scan2025/ #LetsTalkAboutNETs #WeSCAN
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So happy to be @NANETS1 representing @AMENDInfoUSA at #NANETS2025!!
Udhayvir Grewal
@UGrewalMD24 Oct 2025
On the sidelines of NANETS poster session. #NANETS25 @PoHienEar @ChandrikhaC @jmetzcar
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3 Ways to Take Charge of MEN: July Newsletter - Stories That Empower: Genetic Insights, Expert Guidance, and Real-Life Experiences - mailchi.mp/efa4d971790b/3-wa…
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Dr James Yao @MDAndersonNews observes that, prior to 2011, the only FDA-approved systemic therapy for pancreatic neuroendocrine tumors was streptozocin! What a remarkable decade-plus of progress in the field 🤯 and yet, for our patients, we have miles to go before we sleep …
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