Interested in the impact on siblings of having a brother or sister with congenital heart disease @LizzieBichard
London, England
Joined February 2021
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A little history about our project.....
My name is Lizzie, working as a nurse I am with children and families during difficult times. I always wonder what happens when they leave the hospital? how are they getting on at home? how do these experiences affect the whole family?
ALPS - heArt sibLings ImPact Study retweeted
This #HeartWeek, please consider helping us on our mission to spread this potentially life-saving Think HEART message.
Knowing the signs of congenital heart disease (#CHD) could save a life. ❤
#tinytickersheartweek2025 #thinkheart #congenitalheartdisease #chdawareness
ALPS - heArt sibLings ImPact Study retweeted
Thanks to @CongenitalCNA for the opportunity to discuss the findings from the heart siblings impact study @AlpsHeart in Dublin @bcca_uk
Delighted to be an abstract winner but more importantly to fly the flag for siblings, we won't stop talking about it, watch this space!
ALPS - heArt sibLings ImPact Study retweeted
Congratulations to our abstract winners yesterday Helene Murchan for her poster and @LizzieBichard @AlpsHeart for her oral presentation @bcca_uk
Wonderful day sharing ALPS findings at @bcca_uk @CongenitalCNA in Dublin. Great to see some familiar faces and hear some inspirational professionals who have a passion for Children with CHD and their families 💛💚💜
ALPS - heArt sibLings ImPact Study retweeted
This afternoon starts with three abstract presentations - National audit of CYP cardiac nursing roles, children requiring sedation and experience of siblings @WalshForster @anna_annadi @Jenzer001 @LizzieBichard @AlpsHeart @CongenitalCNA @bcca_uk
Today! Very exciting 😀
We’re really looking forward to the CCNA conference tomorrow - lots of great speakers. Are you joining us? Let us know in the comments @bcca_uk
Delighted to have an abstract accepted to discuss ALPS results!
Let's hear it for the siblings
See you in Dublin 🙌🏼
@CongenitalCNA @bcca_uk
Less than 8 weeks to go until #BCCA2024!
Register now to secure your place & book your flights to #Dublin . The next 50 people to register can use the code: FIRST50 to get £20 off!
cfsevents.eventsair.com/bcca…
#medicalmeeting #cardiology #MedEd #Event #networking
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Great document to help parents support siblings with their feelings! @Sibs_uk
sibs.org.uk/supporting-young…
ALPS - heArt sibLings ImPact Study retweeted
A huge thank you to all the fabulous YPF members, the Patient Safety Partners, GOSH Arts, and all who supported our successful Digital Inclusion workshop 🌟#GOSHYPF #PSPs #healthinequalities #GOSHArts @GoodThingsFdn @GOSHLearnAcad
A great session today, looking at how #digitalinclusion at @GreatOrmondSt can be improved with the #GOSHYPF & #patientsafetypartners
@GoodThingsFdn
#healthinequalities
ALPS - heArt sibLings ImPact Study retweeted
Presenting #patientpublicinvolvement #PPI from our @NIHRresearch feasibility grant to explore the feasibility of a #PedsICU platform @kerry_woolfall @pus27 @pic_pram @ICNARC @PaulMouncey @Doug_Gould1
@ESPNIC_Society #ESPNIC2024 Paper detailing all currently under review
ALPS - heArt sibLings ImPact Study retweeted
Great to see our paper has been published about dental advice for CYP with CHD @CongenitalCNA
@BJCardNursing Dental advice for children and young people with congenital heart disease: a survey of cardiac nurses
magonlinelibrary.com/doi/ful…
@GaskinKerry @CongenitalCNA
#CHD #ACHD
ALPS - heArt sibLings ImPact Study retweeted
It's my last day @gloshospitals today! Here's an overview of our achievements over 18 months of NMAHP research culture, capacity, capability building @100_m_p_h @CraigBradleyRN @suz_cro @SLovett81 @GHFT_Excellence @uow_TCSNM @teamCNO_ @drjoanne_cooper
ALPS - heArt sibLings ImPact Study retweeted
CHF are proud to be part of The Newborn Screening Collaborative and share 'A Rare Find'.
This film is just one part of a broader campaign to push the subject of screening and to work towards positive progress within the current UK screening programme.🩷
#NewbornScreening
Fantastic podcast on supporting siblings of children with additional needs! Focus on communication + information sharing which mirrors findings from the heArt sibLings impPact Study
(ALPS)
#congenitalheartdisease
#chdawareness
@echoukcharity @CHFed @LHM_UK
open.spotify.com/episode/3tp…
ALPS - heArt sibLings ImPact Study retweeted
The Happiness Hub is a valuable resource where you can access all our online workshops, filled with insightful content and practical tips. 💙 For more information visit: bit.ly/3NDtumg
ALPS - heArt sibLings ImPact Study retweeted
World Mental Health Day
Join one of our steering groups to be part of our community. Your participation in a steering group will help us to monitor how well we are reaching our organisational aims.
Contact us now for more information on how to join.
#WorldMentalHealthDay23
ALPS - heArt sibLings ImPact Study retweeted
The September collection from @PICJournalWatch is now ready to view on this link picujournalwatch.com/journal… including AricleOfTheMonth: picujournalwatch.com/journal…. Range of #PARDS #Renal #Neurology #CICU & #Retrieval @Dr_Hari_Krishna @DrToyinOcholi #PCCS2023
ALPS - heArt sibLings ImPact Study retweeted
We are pleased that we could help 17 children with heart conditions receive their INR machines this year so far
CHF has been a major provider of INR machines to families that meet the referral criteria. If you experience difficulty obtaining an INR machine please let us know
ALPS - heArt sibLings ImPact Study retweeted
Great to see @LizzieBichard presenting her #PhD work on siblings of children with congenital heart disease @AlpsHeart at the International #PedsICU nursing science forum
