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angelmanuk

@AngelmanUK

UK charity(1021882) run by and for those affected by the genetic condition Angelman Syndrome and interested professionals.Our patron is director Gareth Edwards.

 Nuneaton, Warwickshire. UK
angelmanuk.org/about/join
Joined January 2013
  • Tweets2K
  • Following255
  • Followers996
225Media
Photo by angelmanuk (@AngelmanUK)Photo by angelmanuk (@AngelmanUK)Photo by angelmanuk (@AngelmanUK)Photo by angelmanuk (@AngelmanUK)Photo by angelmanuk (@AngelmanUK)Photo by angelmanuk (@AngelmanUK)Photo by angelmanuk (@AngelmanUK)Photo by angelmanuk (@AngelmanUK)Photo by angelmanuk (@AngelmanUK)Photo by angelmanuk (@AngelmanUK)
Happy #InternationalAngelmanDay everyone! To mark #IAD2023 @RCSLT's delighted to be sharing the fabulous #Angelman #GVTwitterTakeover @AngelmanUK @trAACeyc & @JennyPemberton5 did for us on all things #AngelmanSyndrome 😊 wakelet.com/wake/AToMNsCRJrl…
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Today is #InternationalAngelmanDay. "An individual with #AngelmanSyndrome (AS) will light up a room with their smile and laughter." For more infromation, visit our charity partners, @AngelmanUK: angelmanuk.org
Image from RARE Revolution Magazine® (@RareRevolutionM)
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💙We're lighting it blue for International Angelman Day💙 To find out more about AS, follow @AngelmanUK or visit their website: angelmanday.info/what-is-as #IADFEB15 #AngelmanDay2023 #AngelmanSyndrome #meadowhall #sheffield #lovemeadowhall 📸Photography by James Marshall
Image from Meadowhall (@LoveMeadowhall)
Image from Meadowhall (@LoveMeadowhall)
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This is my nephew who has a rare genetic disorder Angleman syndrome @AngelmanUK Tonight Manchester cathedral @ManCityCouncil will be lit up in blue to raise awareness 💕 🧬💙 manchestereveningnews.co.uk/…
'My boy's chest infections and staring was caused by super-rare diagnosis'

'My boy's chest infections and staring was caused by super-rare diagnosis'

Max Ward, nearly two years old, will see the Cathedral lit up blue for World Angelman Day

manchestereveningnews.co.uk
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International Angelman's Day today. Celebrating the one in the family who never stops smiling. Hope you've had a great day bro, so proud of you. 😁 💙 @AngelmanUK #IAD2023
Image from Adam Hughes (@adamhughes2794)
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Attend our information session on 3 November 10:00-11:00 where an #education #law specialist from @irwinmitchell will talk and answer questions about obtaining and amending #EHCPs and challenges with transitions to adulthood. Email: [email protected] to register.
Image from SWAN UK (syndromes without a name) (@SWAN_UK)
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angelmanuk retweeted
BBC Surrey (@BBCSurrey) profile picture
BBC Surrey
@BBCSurrey13 May 2019
Thank you for coming on the programme and talking about the Rally to Mount Etna, @AngelmanRally. Raising #awareness for #AngelmanSyndrome. Good luck, keep us posted on your progress!
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Congratulations to our fantastic finalists in the £100K - £500K Turnover Category: @GrasvenorPrjct @AngelmanUK @DravetUK @Rethink_Rebuild @COINSFoundation @frankwater #CharityFilmAwards #CFA19 #charities View the videos & vote for your favourite: charityfilmawards.com/videos…
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Massive thanks and a huge well done to R in Pr 5 who visited classes today to raise awareness of Angelman Syndrome. N was a great support, well done.
Image from St. Angela's Primary (@St_Angelas_Pri)
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grandson with @angelman syndrome got a hold of his mom's phone...
Image from Dave Walker (@drwalker_rph)
Image from Dave Walker (@drwalker_rph)
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angelmanuk retweeted
Bo Bigelow (@bobigelow) profile picture
Bo Bigelow@bobigelow25 Jan 2019
Congrats to all the films selected for #RAREfest18! Click for info on films, creators. @csfleakinfo @ASAPDawn @PittHopkinsUK @House4B @AngelmanUK @ipopi_info @GeneticAll_UK @Tay_Sachs @AarskogSyndrome @MastCellAction @DBA_UK @shanaliperera2 camraredisease.org/rarefest-…
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A group of three friends are set to ride from @triumphromford to Mount Etna and back to the UK to raise money for @AngelmanUK. Read their story and donate at the link! qoo.ly/uw94g
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Day 13 and please say hello to @AngelmanUK for #RareRevMembersMonth Read about the amazing work they do in giving their patients a voice to be heard, in `The Art of Communication` bit.ly/2vlhVI1 #AngelmanSyndrome
Image from RARE Revolution Magazine® (@RareRevolutionM)
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Replying to @AngelmanUK
@AngelmanUK what a evening we had held on Wed 21 Nov at @FalconsRugby, playing our Fixture RAPTC Apostles vs Durham Clems Pirates followed by our post match raffle, auction and live music. All in support of @AnglemanUK
Image from Andy Stephenson (@AndySte06433083)
Image from Andy Stephenson (@AndySte06433083)
Image from Andy Stephenson (@AndySte06433083)
Image from Andy Stephenson (@AndySte06433083)
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Replying to @timpayne_1 @RAPTC_Official @FalconsRugby @AngelmanUK
Cracking everning @AndySte06433083 @timpayne_1 @Anglemanuk
Image from Andy Stephenson (@AndySte06433083)
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angelmanuk retweeted
Tim Payne (@timpayne_1) profile picture
Tim Payne@timpayne_121 Nov 2018
Great to watch @RAPTC_Official play tonight @FalconsRugby ground, Thanks to Andy and the team, and all for a great cause for @AngelmanUK
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350.000 EURO FOR RESEARCH ON ANGELMAN SYNDROME Call for Applications for Research Grants on Angelman Syndrome Deadline 4th January 2019 #Grant #ASA #Angelman #Angelmansyndrome #Ube3a angelmanalliance.org/index.p… – at Austria
Image from thomas schramm (@thomas_schramm)
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At the Angelman ball an amazing charity that supports us so much as a family. Thankyou is never enough. @AngelmanUK
Image from Emma Hallam (@EmmaHallam6)
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Sheila and Ann have sucessfully completed their Sahara trek and are on their way home. @AngelmanUK
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Don't miss this remarkable story posted by @christinapNYC on @TheMightySite. In her story, she touches on what would be truly meaningful for her and other #caregivers of children with #Angelmansyndrome. themighty.com/2018/10/angelm… #AACAPAM18 #RareDisease
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