I'm a Forever Friend, Native Queens Girl = Met's Fan. I am a Lupus Warrior and Advocate for the wellbeing of people with lupus and a proud LADA board member.
New York, USA
Joined February 2009
- Tweets1.6K
- Following636
- Followers179
- Likes6.6K
Anne Zablotowicz retweeted
Kudos to Elizabeth for sharing her impactful #Carepartner journey with Miah. @CaringForLupus
Anne Zablotowicz retweeted
Supporting a student with lupus takes more than awareness—it takes practical tools. As students with lupus head back to the classroom, you can play an important role in helping them stay healthy, supported, and engaged in learning. Download our free resources to learn more → RDAM.org
Anne Zablotowicz retweeted
We are thrilled to share that our 26th Annual #Lupus Charity Golf Classic was a tremendous success raising $207, 232 for our education, #awareness, #advocacy and research programs. We also donated a recordbreaking $618,612 to @MMRIResearch @LupusResearch @LupusOrg @carrainc @RheumResearch for lupus research. #LADAOrg
Anne Zablotowicz retweeted
California is one step closer to improving access to life-saving plasma-derived medicines! We call on the California Assembly & @CAgovernor to support #AB2009, legislation that will modernize outdated source plasma regulations. tinyurl.com/3jx2djzp
Anne Zablotowicz retweeted
So honored to work on this project with such amazing and passionate advocates! Thank you @CaringForLupus and Miah and @Annezab 💜
Kudos to #Lupus Advocates Elizabeth SantaCruz and Miah Andrade for sharing their journeys and their desired outcomes for a meaningful treatment during the panel at @FDA Accelerating Product Development for #PediatricLupus #PatientVoice @CaringForLupus @carrainc
Anne Zablotowicz retweeted
Kudos to #Lupus Advocates Elizabeth SantaCruz and Miah Andrade for sharing their journeys and their desired outcomes for a meaningful treatment during the panel at @FDA Accelerating Product Development for #PediatricLupus #PatientVoice @CaringForLupus @carrainc
Anne Zablotowicz retweeted
Thank you Elizabeth & Miah for sharing you insights and elevating the #PatientVoice in #PediatricLupusResearch
#LADAorg
We are honored to represent the voices of #Lupus patients & caregivers at the FDA Workshop on Accelerating Product Development for Pediatric SLE
A heartfelt Thank You to @US_FDA @carrainc and @LADAOrg for the opportunity to participate in this important conversation
#LupusChat
Anne Zablotowicz retweeted
We are honored to represent the voices of #Lupus patients & caregivers at the FDA Workshop on Accelerating Product Development for Pediatric SLE
A heartfelt Thank You to @US_FDA @carrainc and @LADAOrg for the opportunity to participate in this important conversation
#LupusChat
Anne Zablotowicz retweeted
Hey #LupusChat fam! We’re onsite today at the @FDA @UMBaltimore CERSI Public Workshop: Accelerating Product Development for Pediatric SLE. Our Co-hosts @CaringForLupus (and Patient Advocate Miah A.) and @SynceNerd_Carli are in the building to listen, learn, and share experiences.
Anne Zablotowicz retweeted
Some drugs used to treat #lupus are approved for other indications such as chemotherapies, used to treat cancer, and immunosuppressants, used post organ transplantation. Some are known to be teratogenic (causing birth defects) and often compromise fertility in men and women.
Anne Zablotowicz retweeted
Ninety percent of those affected are women; however, men and children are also diagnosed with #lupus. #LupusAwarenessMonth #LupusAwareness
Anne Zablotowicz retweeted
#Lupus is an unpredictable condition in which symptoms come and go (flares) and complications can arise suddenly. We need #innovative research that can identify a reliable method to predict and prevent flares before they occur. #LupusAwarenessMonth
Anne Zablotowicz retweeted
On average, a person with #lupus takes between 8 and 12 medications a day, requiring careful attention to drug interactions and unique allergies and sensitivities.
#lupusawareness #lupusawarenessmonth
Anne Zablotowicz retweeted
With only 7 days to go, are you ready to promote #LupusAwareness during May? Join us by sharing our 31 days of #Lupus facts to educate others about this unpredictable, life altering, dream stealing, and physically, emotionally and financially devastating #Autoimmune disease.
Anne Zablotowicz retweeted
#LADAorg was honored to sponsor the @MasonicResearch 3rd Annual 1958 Gala to support #lupus #autism and #cardiovascular disease research at the @ADKBankCenter. Kudos to @mkontari and the #MMRI Team for hosting such a wonderful event. @KathleenArntsen @Annezab @Dave_Arntsen
Anne Zablotowicz retweeted
The 340B Program’s costs skyrocketed from $6.6B in 2010 to $43.9B in 2021, but patients are missing the savings. We need transparency and reform to support patients in need.
@SenMullin, Congress must pass #340BReform.
cbo.gov/publication/60661
Anne Zablotowicz retweeted
✅ Discover how the #interferon signature status modulates disease #activity, #damage, #remission and #LLDAS attainment with treatment in a large international cohort of real-world patients with systemic #lupus ⬇️ Latest paper from the #SPOCS cohort!
doi.org/10.1093/rheumatology…
Anne Zablotowicz retweeted
Want to see Medicaid’s impact on your community? @ModernMedicaid’s updated #MedicaidDashboard is a one-stop-shop for national, state and district-level enrollment data. Check out the site for more: data.modernmedicaid.org/ @Lupus_Chat @CaringForLupus @LupusMI @CoLN2007 @GHLForg
Anne Zablotowicz retweeted
Check this brief survey out if you don’t like needles and share with others. @Lupus_Chat @CaringForLupus @LupusMI @CoLN2007 @LupusIL @LupusNE @LupusInitiative @IAFaccess @GHLForg @CreakyJoints @US_Pain @carrainc @LupusInitiative @ACRheum @LupusColorado @thelupusrainbow
