We're a nonprofit advancing research across 100+ autoimmune diseases by connecting patient data with science to improve diagnosis, treatment, and outcomes.
United States
Joined October 2016
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Autoimmune Registry retweeted
With a heavy heart, I tell you that my father, Donald Sutherland, has passed away. I personally think one of the most important actors in the history of film. Never daunted by a role, good, bad or ugly. He loved what he did and did what he loved, and one can never ask for more than that. A life well lived.
Autoimmune Registry retweeted
@AutoimmuneReg would like to announce their event: Decoding Data, Trials, and Diagnostics following our Rare Advocacy Summit on Sept 21, 12:30-3pm in San Diego, CA to bring together patient-centered orgs that advocate for autoimmune diseases. To register:
globalgenes.org/community-ev…
Autoimmune Registry retweeted
ARI is supporting a new clinical trial for patients with dermatomyositis who are currently experiencing active muscle and skin disease. The study is to test whether a new medication can help improve symptoms like fatigue. Learn more here: autoimmuneregistry.org/derma… @valorstudyDM
Autoimmune Registry retweeted
We have a new clinical trial opportunity for patients with Warm Autoimmune Hemolytic Anemia. Learn more at autoimmuneregistry.org/waiha…
#autoimmunedisease #warmautoimmunehemolyticanemia #waha #waiha #clinicaltrials #autoimmuneresearch #autoimmuneregistry
Autoimmune Registry retweeted
Did you know that it's #Crohns & #Colitis Awareness Week? Visit @CrohnsColitisFn to see how you can help raise awareness of #IBD: bit.ly/2PchFSB #CCAwarenessWeek #myIBD
Autoimmune Registry retweeted
anyone write a chronic illness blog? Would be interested in reading them especially auto immune ones, any suggestions on to start one people have suggested that it might be good outlet for everything going on #chronicillness #chronicpain #autoimmune #lupus #spoonie #spoonies
Autoimmune Registry retweeted
Our 2018 Alopecia Research Research Summit, "Forging the Future," in NYC has begun! It is a packed house of scientists, industry partners and other NAAF stake holders sharing the latest in alopecia areata research. #2in2020, #NAAF, #forgingthefuture
Autoimmune Registry retweeted
1 week to go until #GivingTuesday! We're inspired by how our community is giving back and inspiring others to do good! Share how you're participating in the global movement.
Autoimmune Registry retweeted
How to Eat Safely and Travel With an Autoimmune Disease! Travel is stressful enough without worrying that sampling the local specialties will make you ill or ruin your trip. ow.ly/Fkau30mFliQ #travel #traveltips #health
Autoimmune Registry retweeted
Today is #WorldArthritisDay- we must all work together to raise awareness of the importance of early diagnosis and access to care from a #rheumatologist
@ArthritisDay simpletasks.org/ #WAD
Autoimmune Registry retweeted
Autoimmune Encephalitis.....Not just a nightmare for kids.
Today is PANDAS/ PITANDS/ PANS Awareness Day and these are all variants of Autoimmune Encephalitis. #pandas #pans #autoimmuneencephalitis aealliance.org/autoimmune-en…
Autoimmune Registry retweeted
Rheumatoid arthritis causes chronic inflammation that affects not only the joints but other organ systems, too. One of the lesser-known symptoms of the condition is brain fog. buff.ly/2P3f3aq
Autoimmune Registry retweeted
A new study finds a higher incidence of autoimmune diseases in people previously diagnosed with stress-related disorders. By Dr. @RobShmerling bit.ly/2L976he #HarvardHealth #autoimmune #stress
Autoimmune Registry retweeted
What is Psoriasis?
Psoriasis is an autoimmune, chronic disease of the immune system, ranging in mild to moderate severity, occurring in approximately 1-3% of the world. #erythrodermicpsoriasis #guttatepsoriasis #inversepsoriasis #plaquepsoriasis
Autoimmune Registry retweeted
Prevalence of Autoimmune Myelofibrosis in Patients With Lupus May Be Underestimated bit.ly/2DsKn0U
Autoimmune Registry retweeted
Comparing more than 106,000 people who had stress disorders with more than 1 million people without them, researchers found that stress was tied to a 36% greater risk of developing 41 autoimmune diseases. wb.md/2MQhLTS
Autoimmune Registry retweeted
International Ataxia Awareness Day (IAAD) is September 25th of each year. It is a rare group of neurological conditions that affect (amongst other things) balance, coordination, and speech. buff.ly/2xOMqqg
Autoimmune Registry retweeted
Join our free #autoimmune registry or donate today at autoimmuneregistry.org!
