ChronicallySomething

mental health support (Australia) Lifeline - 13 11 14 Beyond Blue - 1300 22 4636 Mensline - 1300 78 99 78 Blue knot - 1300 657 380 (9am - 5pm trauma) 1800respect - 1800 737 732 the butterfly foundation (eating disorders) - 1800 33 4673 (8am - midnight)

I am going to have a mental breakdown if they keep doing this stuff they can’t find out what is wrong with me 25 years multiple haemarrhages blood loss shock and every system impacted everything normal or non specific abnormal also #chronicillness #chronicpain #spoonie #spoonies

I had an appointment today the fatigue was so intense that just staying upright took energy so I did a first and called the hospital asked for a wheelchair and I’m very thankful that they could arrange that also #chronicillness #chronicpain #disabilitytwitter #spoonies

the PTSD flare and spoon depletion you get after GP appointments… #chronicillness #chronicpain #disabilitytwitter #spoonies “you only had lightheadedness collapsed and had a seizure” ONLY? “the immunologist refused the referral” “the clinic refused the trial”

there has been a lot of grasping at straws to defend the Cornell 7 and blameshift etc but this is amongst the most ridiculous defence, yes a high intoxicated person may do irrational things like this after being given more alcohol and drugs after they resisted initially also

dr: it’s all in your head me: I had a haemorrhage dr: oh that was different it was something else me: what? dr: weight me: #chronicillness #chronicpain #disabilitytwitter #spoonies

I was told to call a mental health hotline for my recent medical trauma and I was couple minutes in the person said I’m going to stop you there it’s exhausting to just listen to, I completely mentally shut down after that also #chronicillness #chronicpain #mentalhealth #spoonies

tired of this rapists deny it happened if they can’t deny it they’ll claim that it was consensual if that doesn’t work they blameshift the victim if that doesn’t work they use mental health defence and their potential to advocate leniency and the system enables then also

just got a $1254 ambulance bill one of 5 ambulance bills because of the Covid infection and them refusing to initially treat or admit me and they attempted to charge me $1400 for paxlovid the medical system is making a fortune on this… #covid #chronicillness #chronicpain #auspol

my specialist used the somatoform label again recently and my GP showed me the notes of all of the psychologically scapegoating meanwhile here’s proof of photos, scans, blood tests and scans of actual physical issues also #chronicillness #chronicpain #disasbilitytwitter #spoonies

my chronic illness journey *organ removal complications* “weight” *haemorrhage* *haemorrhage blood loss shock* “weight” *intense infection* “anxiety” *multi system conditions* “somatoform” #chronicillness #chronicpain #disabilitytwitter #spoonies

um? these comments? and about dysautonomia being part psychological? I believe that my autonomic issues are from actual nerve damage as do my specialists you can’t improve actual nerve damage with mindset also

I used to think that the ER would take organ issues seriously that the ER would take spinal issues seriously that the ER would take a haemorrhage seriously that the ER would take immune compromised with an intense infection seriously I was wrong… #chronicillness

my new haematologist did two tests and said that he may be done and he says this days after I had a covid infection and multiple bleeding episodes and not knowing what is causing the constant bleeding and haemorrhages also #chronicpain #chronicillness #disabilitytwitter #spoonies

“the system is actively withholding life-saving medications from vulnerable people strictly to cut costs” “You were fighting for your life, and the system treated your survival as an expense line on a budget” please IMPROVE PBS COVID ANTIVIRALS ACCESS @Mark_Butler_MP @AlboMP

my specialist literally said how did you get it (Covid a month ago) “you never go out anywhere?” and I’m like someone brought it in also #chronicillness #chronicpain #disabilitytwitter #spoonies

I got up for like a minute and the oxygen levels and heart rate dropped then I laid down the the heart rate more than doubled also #chronicillness #chronicpain #disabilitytwitter #spoonies

medical care should not only be for the privileged, tamiflu is $45 privately but paxlovid is $1400, to find that out during an active intense covid infection in the ER as a disabled immune compromised women being tested for blood cancer was abhorrent also @Mark_Butler_MP @AlboMP