BLACKSWAN FOUNDATION (@BLACKSWANFound) header
BLACKSWAN FOUNDATION (@BLACKSWANFound) profile picture

BLACKSWAN FOUNDATION

@BLACKSWANFound

Foundation supporting Research on #RareDiseases worldwide. This channel is no longer fed; follow us on Bluesky https://teapawt.net/t.co/sWzt2hczRg

 Switzerland
blackswanfoundation.ch
Joined February 2010
  • Tweets990
  • Following386
  • Followers1.9K
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Photo by BLACKSWAN FOUNDATION (@BLACKSWANFound)Photo by BLACKSWAN FOUNDATION (@BLACKSWANFound)Photo by BLACKSWAN FOUNDATION (@BLACKSWANFound)Photo by BLACKSWAN FOUNDATION (@BLACKSWANFound)Photo by BLACKSWAN FOUNDATION (@BLACKSWANFound)Photo by BLACKSWAN FOUNDATION (@BLACKSWANFound)Photo by BLACKSWAN FOUNDATION (@BLACKSWANFound)Photo by BLACKSWAN FOUNDATION (@BLACKSWANFound)Photo by BLACKSWAN FOUNDATION (@BLACKSWANFound)Photo by BLACKSWAN FOUNDATION (@BLACKSWANFound)
BLACKSWAN FOUNDATION retweeted
Mary Wang (@marywangCM) profile picture
Mary Wang@marywangCM18 Mar 2023
Going to @irdirc conference and #REACTCongress is like going to an extended family reunion, in a good way. It’s the best community! And @EJPRareDiseases m&m’s are just irresistible! – at Berlin, Germany
Image from Mary Wang (@marywangCM)
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BLACKSWAN FOUNDATION retweeted
RE(ACT) Community (@react_community) profile picture
RE(ACT) Community@react_community18 Mar 2023
Terrific presentations in #diagnostics, #gene, #celltherapy, and new technologies, but how to bring treatments to #raredisease patients? The #REACTCongress 2023 will explore it with the Last session of the #REACTCongress 2023, “Systems thinking towards #access.” #RAREvolution – at Berlin, Germany
Image from RE(ACT) Community (@react_community)
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BLACKSWAN FOUNDATION retweeted
RE(ACT) Community (@react_community) profile picture
RE(ACT) Community@react_community17 Mar 2023
Day 3 and time for the session on #Gene and #Cell #therapy, and we start with the outstanding presentation of Guillaume Canaud #REACTCongress #irdirc #ejprd #blackswanfoundation #RAREvolution – at Berlin, Germany
Image from RE(ACT) Community (@react_community)
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BLACKSWAN FOUNDATION retweeted
ERDERA (@ERDERA_org) profile picture
ERDERA@ERDERA_org15 Mar 2023
Day 1/4 of the RE(ACT) Congress & IRDiRC Conference: ✅ Meet Dr. Olivier Menzel (@OlivierMenzel) Chairman & Founder of the Blackswan Foundation on the first day of the event! – at Berlin, Germany
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BLACKSWAN FOUNDATION retweeted
RE(ACT) Community (@react_community) profile picture
RE(ACT) Community@react_community15 Mar 2023
It's time for the opening ceremony at the #REACTCongress with Ruxandra Draghia-Akli, the Queen 👑 and co-founder of @irdirc #irdirc #ejprd #blackswanfoundation #RAREvolution
Image from RE(ACT) Community (@react_community)
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BLACKSWAN FOUNDATION retweeted
RE(ACT) Community (@react_community) profile picture
RE(ACT) Community@react_community15 Mar 2023
This is a start for the #REACTCongress 2023 in collaboration with @irdirc and @EJPRareDiseases @BLACKSWANFound #irdirc #ejprd #blackswanfoundation #RAREvolution
Image from RE(ACT) Community (@react_community)
Image from RE(ACT) Community (@react_community)
Image from RE(ACT) Community (@react_community)
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BLACKSWAN FOUNDATION retweeted
RE(ACT) Community (@react_community) profile picture
RE(ACT) Community@react_community10 Jan 2023
Happy New Year, 33% discount for the first 15 registrations! Register Now!
RE(ACT) Community (@react_community) profile pictureRE(ACT) Community@react_community22 Dec 2022
🎁🎄 Xmas gift! Get 25% off your registration fee for the RE(ACT) Congress & IRDiRC Conference. 🏷️Use the coupon "REACTXMAS". 🚨(Discount valid until December 25th) ℹ️ Speakers, registration, & more: react-congress.org/ #raredisease #RAREvolution #REACTCongress
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BLACKSWAN FOUNDATION retweeted
ERDERA (@ERDERA_org) profile picture
ERDERA@ERDERA_org7 Nov 2022
🚨At the RE(ACT) Congress & IRDiRC Conference, you'll get the opportunity to see @irdirc members Anneliene Jonker & Marc Doom's presentation during the « Therapeutic Development, innovative clinical trials, precision medicine » session Registration & more: bit.ly/2PXAgGu
Image from ERDERA (@ERDERA_org)
Image from ERDERA (@ERDERA_org)
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BLACKSWAN FOUNDATION retweeted
Blue Matter (@BlueMatter1) profile picture
Blue Matter@BlueMatter119 Jul 2022
Summary from our recent Breakfast Club meeting in Zug >> The guest speaker was @OlivierMenzel, founder and CEO of the non-profit @BLACKSWANFound, dedicated to R&D for new #raredisease therapies. Olivier discussed #patientcentricity in rare diseases >> bit.ly/3cn2Td5
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BLACKSWAN FOUNDATION retweeted
RE(ACT) Community (@react_community) profile picture
RE(ACT) Community@react_community1 Nov 2021
We are thrilled to announce that Pr. Harvey Lodish, founding member of the @WhiteheadInst for Biomedical #Research and Professor of #Biology and Biological Engineering at the @MIT, has joined the RE(ACT) Discovery Institute Advisory Board! bit.ly/3COp6cB #RAREvolution

#research #scientificcommunity #rarediseases #react #rarevolution #blackswanfoundation | RE(ACT)...

We are thrilled to announce that Prof. Harvey Lodish, founding member of the Whitehead Institute for Biomedical Research and Professor of Biology and Biological Engineering at the Massachusetts...

linkedin.com
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Speaking at Theme 3 Share, Care, Cure: Transforming care for #rarediseases by 2030, we'll hear from the fantastic Victoria Hedley @arediseaseseu @jwmdrc. Find out about the full line up of speakers for the 14-15 May #ECRD2020 online conference: rare-diseases.eu/programme/
Image from EURORDIS-Rare Diseases Europe (@eurordis)
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BLACKSWAN FOUNDATION retweeted
Rare Genomics (@RareGenomics) profile picture
Rare Genomics@RareGenomics25 Mar 2020
The RG RareWear initiative strives to bring patients and wearable technology providers together to empower rare disease condition management through wearable and monitoring devices. Visit our website raregenomics.org/rarewear/ho… to learn more about our program and participate in it!
Image from Rare Genomics (@RareGenomics)
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Tomorrow is #RareDiseaseDay Since 2007, the 🇪🇺 has invested more than €1.4 billion in over 200 collaborative & interdisciplinary #raredisease projects through successive Framework Programmes for R&I. Find out more 👉europa.eu/!XC73fB #EUHealthResearch
Image from ジョルジオ・アリベルティ || Giorgio Aliberti (@EUAmbJapan)
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BLACKSWAN FOUNDATION retweeted
ERDERA (@ERDERA_org) profile picture
ERDERA@ERDERA_org17 Sep 2019
Replying to @irdirc
@irdirc #chair Prof #LuciaMonaco talking abt #irdirc #actions n #goals 🙌🔴 ➕ upcoming @react_community n @irdirc co-joint #conference, #March- #berlin! #registration is #open! #joinus!! #ejprd #raredisease #generalassembly #research #medicine #patient #innovation #diagnosis
Image from ERDERA (@ERDERA_org)
Image from ERDERA (@ERDERA_org)
Image from ERDERA (@ERDERA_org)
Image from ERDERA (@ERDERA_org)
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BLACKSWAN FOUNDATION retweeted
RE(ACT) Community (@react_community) profile picture
RE(ACT) Community@react_community17 Sep 2019
#BLACKSWANFoundation is in da place! #ejprd #RAREvolution #REACTCongress #RareDisease
ERDERA (@ERDERA_org) profile pictureERDERA@ERDERA_org17 Sep 2019
#ejprd #generalassembly #registration is almost done ✅ let’s begin! @irdirc @BBMRIERIC @EatrisEric @Telethonitalia @Chris_Evelo @react_community @EvaBS14
Image from ERDERA (@ERDERA_org)
Image from ERDERA (@ERDERA_org)
Image from ERDERA (@ERDERA_org)
Image from ERDERA (@ERDERA_org)
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BLACKSWAN FOUNDATION retweeted
RE(ACT) Community (@react_community) profile picture
RE(ACT) Community@react_community22 Jul 2019
6th edition of the #REACTCongress #2020 and the 4th edition of the #IRDiRC Conference #RAREvolution @BLACKSWANFound @irdirc @eurordis @rarediseasesint
ERDERA (@ERDERA_org) profile pictureERDERA@ERDERA_org19 Jul 2019
#RE_ACT #Congress 2020 & @irdirc #Conference, #Berlin, #Germany, 11-14 March 2020 #Registrations will open soon: #StayTuned 🤩 @react_community ejprarediseases.org/index.ph… #News #raredisease #science #research #patient
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BLACKSWAN FOUNDATION retweeted
RE(ACT) Community (@react_community) profile picture
RE(ACT) Community@react_community9 May 2019
2day of the #REACTCongress, this morning session: cell & #genetherapy for #raredisease #RAREvolution
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BLACKSWAN FOUNDATION retweeted
RE(ACT) Community (@react_community) profile picture
RE(ACT) Community@react_community8 May 2019
Dear @Cydanco thank you so much for your support and for involvement in advancing #raredisease research! #sponsor #REACTCongress
Cydan (@Cydanco) profile pictureCydan@Cydanco8 May 2019
This week, #Cydan is at @react_community's RE(ACT) Congress America. We're invested in the advancement of rare and orphan disease research and are excited to make connections and immerse ourselves in cutting-edge research. #RAREvolution #raredisease
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BLACKSWAN FOUNDATION retweeted
RE(ACT) Community (@react_community) profile picture
RE(ACT) Community@react_community4 Apr 2019
Special discount for the American edition of the #REACTCongress 2019 to be held at the Sheraton Center Toronto Hotel in Toronto, Canada, from May 8-10, 2019. > 50% off When registering please enter the following promotional code: HAPPYCRAZYRATE (300USD / 400CAD) #RareDisease
Image from RE(ACT) Community (@react_community)
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BLACKSWAN FOUNDATION retweeted
RE(ACT) Community (@react_community) profile picture
RE(ACT) Community@react_community11 Mar 2019
Registration are open for the RE(ACT) Congress AMERICA 2019, 5th International Congress of research on #raredisease #RAREvolution #blackswanfoundation @CIHR_IRSC @raredisorders @ncats_nih_gov @eurordis @CHEOhospital @irdirc @UDNconnect Register here ---> lnkd.in/dWy7wAJ
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