Cydan, an orphan drug accelerator dedicated to creating therapies that improve the lives of patients living with rare genetic diseases.
Cambridge, MA
Joined February 2015
- Tweets265
- Following586
- Followers410
- Likes54
I just signed a @theactionnet petition: Support the Continuation of the Dog Aging Project. Sign here: actionnetwork.org/petitions/…
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Cydan retweeted
FDA Grants Alkeus Pharmaceuticals Breakthrough Therapy Designation for ALK-001 (C20-D3-vitamin A) for the Treatment of Stargardt Disease
alkeuspharma.com/2021-07-14-…
Cydan retweeted
"When we engaged the patient community on their quality of life we learned things that weren't emphasized by physicians or the literature"
- Imran of Babar of @Cydanco with a great segment on how its incredibly helpful for biotech cos to listen to patients
#patientengagement
Cydan retweeted
If you haven’t yet taken the National Burden of Rare Disease Survey – there’s still time -> burdenstudy.org #burdenstudy
Deadline: Monday, August 3rd, 2020
Questions? [email protected]
Cydan retweeted
Navigating the world can be a challenge for our patients, but they are brave and determined! In "We Move!", see these amazing individuals and the variety of ways they get around. #hnrnph2 #ybrp #raredisease #genetics #charity #HNRNPH2AwarenessWeek2020
I’m excited about the @MassChallenge Virtual Startup Showcase on July 16 & 17 @ 12pm CT/ 11am ET. 200+ #startups from 18 countries & 34 states will present ground-breaking solutions to industry leaders. Join from any internet-connected device. #MC20 bit.ly/2YVUmn2
Cydan retweeted
RARE parents are so powerful. @nytimes features 4 rare families in an article outlining the current landscape of #raredisease. #CareAboutRare
ow.ly/ubF750ArWqC
Cydan retweeted
The trillion dollar question. Why are COVID cases increasing while deaths are decreasing? The answer is simple. It's called Simpson's paradox and it's the result of incorrectly pooling data and arriving at a false conclusion. A thread 1/9 #COVID19 #ThursdayThoughts
Cydan retweeted
THREAD: This week tragic reality on ground will overtake events. There are multiple epicenters of U.S. spread. We'll grapple with national epidemic. April will be hard. We'll get through it. Focus must be on slowing spread nationally, support healthcare system, build back in May.
You are in our thoughts !
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Cydan retweeted
THREAD: On #Coronavirus, we may be entering a period of accelerating cases. The country could look very different over next two weeks. We’ll get through this, but need to take steps now to limit the scope and impact of virus. There are things we can do now to help ourselves. 1/n
Today is Rare Disease Day. As a company focused on accelerating impactful therapies for people with rare genetic diseases, we stand proud with the global community. #RareDiseaseDay
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#DYK 72% of rare diseases are genetic and 70% of those rare diseases start at childhood? #RareDiseaseDay
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