We are a group comprising of individuals who have cp, families and professionals from across Wales who are developing a cerebral palsy register for Wales.
Joined October 2018
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Looking forward to our next Cerebral Palsy Register for Wales Steering group meeting this afternoon.
Cerebral Palsy Register for Wales retweeted
💡💡Do you want an opportunity to work with the Bevan Commission to try out and test new ideas to support a sustainable recovery across Health and Care services in Wales ? Applications for Exemplars Programme Cohort 7 are now open bit.ly/3ia6Kv1💡💡
Cerebral Palsy Register for Wales retweeted
This sounds amazing!
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Cerebral Palsy Register for Wales retweeted
Thank you Giovanni Cioni for your leadership, enthusiasm and dedicated work for @eacd
Cerebral Palsy Register for Wales retweeted
Are you a neonatal nurse or doctor involved in discharging babies from hospital? Please can you kindly complete Sarah’s survey if you haven’t already? Thank you!
@NNAUK1 @NeonatalNurstin @naazmerchant @geraintjl @ShaziaHoodbhoy @OliverRackham @ngozi_ediosagie @Liz_McKechnie
I'm so pleased with the response to my survey investigating differences in the approach to discharge from neonatal care so far. I want to hear from staff at NICUs, LNUs and SCBUs! There's still plenty of time to take part: leicester.onlinesurveys.ac.u…
Good luck in your new home @CP_Cymru
Those with disabilities are particularly affected.
Significant report by the @EHRCwales to the UN Committee. I'll be publishing, along with the other UK children's commissioners, a report to the UN Committee early December. I suspect that there'll be a lot in common with this report out today.
Cerebral Palsy Register for Wales retweeted
Our latest report on children’s rights in Wales raises concerns about how the pandemic is exacerbating existing inequalities. Concerns include more children being pushed into poverty, widening educational inequalities and worsening mental health. Report: bit.ly/2IJndXP
ALT Ruth Coombs: “The impact of the pandemic has been particularly acute for children and young people, affecting all aspects of their daily lives from their mental health and education, to home life and more. We must ensure that decisions being made now consider the long lasting effect on our children’s futures. The Welsh Government must make sure it is adhering to its obligations and put children’s rights at the heart of decision making in Wales
Cerebral Palsy Register for Wales retweeted
We are yet so far as a society from embracing and celebrating developmental difference. We are all different! Let us value each other. Everyone.
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Pain is so important as it directly impacts quality of life.
In a nutshell:
Chronic pain prevalence is high in children with predominant #dyskinetic and mixed #cerebralpalsy.
Pain occurs across multiple body locations.
Less recognized locations include the face, jaw, and temple. onlinelibrary.wiley.com/doi/… @ClareMcKinnon3 @AusACPDM
Cerebral Palsy Register for Wales retweeted
Listen to @jdzwicker & @KShikakothomas discuss the need for monitoring the Convention on the Rights of the Child (#CRC) and Convention on the Rights of Persons with Disabilities (#CRPD). Join the virtual event and sign-up here: ow.ly/McNM50CwEf3
Cerebral Palsy Register for Wales retweeted
We've done this before -so lets get prepared @adultcphub here with support group meetings so you don't have to feel alone.
#lockdown2uk #InThisTogether
@scope @cpscotland @ cpteens
@cpsport @Bobath_Centre @action_cp @CarrieALightley @RADiCALadultCP
Cerebral Palsy Register for Wales retweeted
In these difficult times we must not forget the collateral damage of this pandemic #cerebralpalsyawareness #lifelongcondition @action_cp @Bobath_Centre @CpScotland @scope @nicecharityuk
More coverage of .@thecsp campaign to stop the erosion of rehab services during Covid #RightToRehab attoday.co.uk/csp-warns-that…
Cerebral Palsy Register for Wales retweeted
with senior experts in Gillette Children's Speciality Healthcare, a world renowned centre of excellence for Cerebral Palsy. The event will include a conversation with @lilycollison
and @tommycollison and Tom Novacheck. Register for this free event 👇 eventbrite.ie/e/online-book-…
@Bobath_Centre @BobathScotland @action_cp @Speedincaesar @thepacecentre @CpScotland @CP_Reg_Wales is this something your followers would be interested in?
In this excellent session now.
Very excited to be hosting the Irish Listening and Sharing session tomorrow morning as part of this global event. Thanks to all those who have already registered to attend. If you haven’t done so yet and would like to join us, follow the links #WorldCPDay
Cerebral Palsy Register for Wales retweeted
Today is #WorldCPDay Check out our 5 Free Resources on #CerebralPalsy including journal articles, ebook chapters, podcasts and videos bit.ly/3jB5yhZ @worldcpday
