Cydan, an orphan drug accelerator dedicated to creating therapies that improve the lives of patients living with rare genetic diseases.
Cambridge, MA
Joined February 2015
- Tweets265
- Following586
- Followers410
- Likes54
Cydan retweeted
FDA Grants Alkeus Pharmaceuticals Breakthrough Therapy Designation for ALK-001 (C20-D3-vitamin A) for the Treatment of Stargardt Disease
alkeuspharma.com/2021-07-14-…
Cydan retweeted
"When we engaged the patient community on their quality of life we learned things that weren't emphasized by physicians or the literature"
- Imran of Babar of @Cydanco with a great segment on how its incredibly helpful for biotech cos to listen to patients
#patientengagement
Cydan retweeted
If you haven’t yet taken the National Burden of Rare Disease Survey – there’s still time -> burdenstudy.org #burdenstudy
Deadline: Monday, August 3rd, 2020
Questions? [email protected]
Cydan retweeted
Navigating the world can be a challenge for our patients, but they are brave and determined! In "We Move!", see these amazing individuals and the variety of ways they get around. #hnrnph2 #ybrp #raredisease #genetics #charity #HNRNPH2AwarenessWeek2020
Cydan retweeted
RARE parents are so powerful. @nytimes features 4 rare families in an article outlining the current landscape of #raredisease. #CareAboutRare
ow.ly/ubF750ArWqC
Cydan retweeted
The trillion dollar question. Why are COVID cases increasing while deaths are decreasing? The answer is simple. It's called Simpson's paradox and it's the result of incorrectly pooling data and arriving at a false conclusion. A thread 1/9 #COVID19 #ThursdayThoughts
Cydan retweeted
THREAD: This week tragic reality on ground will overtake events. There are multiple epicenters of U.S. spread. We'll grapple with national epidemic. April will be hard. We'll get through it. Focus must be on slowing spread nationally, support healthcare system, build back in May.
Cydan retweeted
THREAD: On #Coronavirus, we may be entering a period of accelerating cases. The country could look very different over next two weeks. We’ll get through this, but need to take steps now to limit the scope and impact of virus. There are things we can do now to help ourselves. 1/n
Cydan retweeted
What a beautiful evening with my huge hearted friends from the industry. Patient oriented pharma going global @ultragenyx @Cydanco @orchard_tx #rareaffairs #RareDisease @MedisonPharma #goingglobal #medisonventures
Cydan retweeted
Finally, ind. BOD members w/ the most orthogonal insights are also often least in-the-know on key operational aspects of the business. This can result in them disengaging, not speaking up much, etc. One way to address this to ask outside of mtgs what THEY see as risks/opp's. 5/5
Cydan retweeted
Cydan is pleased to support the 2019 IARC meeting in DC & collaborating to create new Rx for ataxias. This IARC is the largest ever with more companies, investigators and advocacy groups than any previous IARC. Congratulations @CureFA_org @NAF_Ataxia
Cydan retweeted
Met Linda @NAF_Ataxia - When diagnosed with SCA1 people expected her to prepare for the loss of mobility, and eventually the loss of life. Fortunately, her progression has been slower than expected-
This is her story of how she lives- youtu.be/8qlqFQOrb_4 via @YouTube
Cydan retweeted
Hank Paulson & Thomas Klothgether discussing the need to get SCA community ready for clinical trials with new therapies @NAF_Ataxia. Exciting times with many companies looking at new ways to improve patient lives. @Cydanco supports these efforts.
Cydan retweeted
@Cydanco pleased to sponsor @NAF_Ataxia 2019 SCA Global Conference. Exciting times for SCA with great progress being made.
Cydan retweeted
2 Days to go! Lets go spot the zebra’s 🦓🦓🦓 #ShowYourRare #ShowYourStripes #RareDisease #NORD #RareDiseaseDay2019 #RareDiseaseday
Cydan retweeted
At Tiburio, it's our mission to advance meaningful treatments for patients with serious rare neuroendocrine disorders.
Cydan retweeted
NFPA is a non-metastatic tumor in the pituitary gland in the brain, which results in life-altering and potentially life-threatening consequences for patients.
Cydan retweeted
@Cydanco @WORLDSymposia hearing patients, parents and researchers. In between sessions, Jessica, professional singer, patient advocate and mother to a child with SALA syndrome, treated us to a song-Climb Every Mountain. Amazing voice!
Cydan retweeted
.@Cydanco spinout @TiburioT CEO Abraham Ceesay discusses rare endocrine disorders, the company’s pipeline, and the case for Cydan’s business model on @GlobalGenes #RARECast.
soundcloud.com/rarecast/orph…
Cydan retweeted
Thanks to @CydanCo for identifying a significant unmet need, identifying potentially game-changing treatments, and launching Tiburio.
