Disabled psy therapist, researcher & activist. #MECFS #longCovid. she/her. Animal lover. Here for intersectional social justice
Stroud United Kingdom
Joined October 2020
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Jo Hunt (activism, also @JoElizaHunt for papers) retweeted
However safe this space feels for #pwME & LC
for many reasons some will always feel far more comfortable not sharing the specifics of what theyre going through & the degree to which they're suffering here in a public space
Thinking of those all suffering who are quiet & private
Jo Hunt (activism, also @JoElizaHunt for papers) retweeted
The #MECFS Research Roadmap Report has been published. It is a a cross-sectional, multidisciplinary
discussion of current ME/CFS research, organized by the @NIH.
ninds.nih.gov/sites/default/…
Jo Hunt (activism, also @JoElizaHunt for papers) retweeted
Last night we had a brilliant @FestOfDebate @citizen_network on hosted by @SHU_AWRC
What is Health?
Jack Czauderna (my hero) explained what the Peckham Experiment can teach us about the link between community and health. @EmmaLatimer3
ALT Jack Czauderna explains the lessons from the Peckham Experiment - including the importance of local neighbourhoods and not bossing people about.
Jo Hunt (activism, also @JoElizaHunt for papers) retweeted
How could the same facility that rushes people to the ER to save their lives actively kill someone just down the hall? This is beyond psychologizing physical illness, it seems like these medical staff do not see the humanity in Severe ME/CFS patients; As if we are so sick and decapacitated already that they see some version of the word "invalid" and death does not seem like a loss of human life to them.
1. Carla cannot drink enough water to stay alive nor tolerate an NG tube at home
2. Carla is stuck in NHS care with no other choice or options for care
3. NHS staff are not giving her access to fluids with the same procedure they do within minutes in the ER to non ME/CFS patients
This is not simple neglect, this is not malpractice, this is manslaughter at best and murder at worst.
#SaveCarlasLife
#Dontletmedie
#BringMillieHome
@NHS @NHSuk @DHSCgovuk @CommonsHealth
#mecfs #SevereMECFS #LongCovid #pwME
We don't know what would have happened if we hadn't got involved tonight - and the Chronic Collaboration is just two people from a council house in south London. This is insane #SaveCarlasLife #ExposeMENow
Jo Hunt (activism, also @JoElizaHunt for papers) retweeted
“Disability cuts: Work isn’t the pull Sunak thinks it is”.
A response in @Freedom_Paper to recent welfare reform announcements & some context around the current world of work.
Disabled people contribute - waged or not.
Please RT
#WorkIsntWorking
freedomnews.org.uk/2024/05/1…
Jo Hunt (activism, also @JoElizaHunt for papers) retweeted
#NoToAS
Liz Carr documentary Better off Dead?
Airs on BBC1 9pm
Tomorrow Tuesday 14th May 2024
bbc.co.uk/programmes/m001z8w…
Jo Hunt (activism, also @JoElizaHunt for papers) retweeted
Connecting people & connecting struggles.
#SolidarityInAction
ALT Wooden wheelchair ramp adjacent to a wall supporting a raised green containing a protest camp. Hand painted along the edge of the ramp, in Palestinian flag colours are the words “SOAS Liberated Zone”. Further down the edge of the ramp is a hand painted image of a love heart follow by a 2, then DPAC. In the background on the green are various tents and banners. In the foreground is a section of pavement.
Jo Hunt (activism, also @JoElizaHunt for papers) retweeted
#FundDisabilitySupport
#HandsOffWhaikaha
Please show solidarity to disabled New Zealand activists as they ramp up resistance against the New Zealand Government against cuts to disability support
We are totally with disabled allies in New Zealand
RT
dpac.uk.net/2024/05/464030/
Jo Hunt (activism, also @JoElizaHunt for papers) retweeted
It’s doggie booster day!
My service dogs wear a PM2.5 valved masks inside their airflow muzzles.
I have Common Variable Immune Deficiency, putting me at high risk of hospitalization and death from even minor infections.
ALT A red and white Basenji wears a gray mask under a clear muzzle.
ALT A red and white Basenji wears a gray mask while looking to the right.
ALT A red and white Basenji wears a gray mask.
Jo Hunt (activism, also @JoElizaHunt for papers) retweeted
This has been in the stacks for a while, but with a few updates, it's ready to go.
Explore with us the intersection of the brain retraining methods such as the Lightning Process, the Gupta Program and the Biopsychosocial model applied to ME and Long Cvd.
open.substack.com/pub/longco…
Jo Hunt (activism, also @JoElizaHunt for papers) retweeted
❓📣Who are the academics and researchers living with energy limiting conditions working in social sciences, Disability Studies, medical humanities or related fields?
I know there are many of you out there!
Please reply if this is you
And RT to get the word out 🙏
Jo Hunt (activism, also @JoElizaHunt for papers) retweeted
Sunak’s misleading sick note numbers
The PM implied that 1.35 million were off work because of depression or anxiety. That’s not true
More than 1 million of them – had depression or anxiety as a secondary condition, rather than the reason for which they were signed off
Link ⬇️
Jo Hunt (activism, also @JoElizaHunt for papers) retweeted
Britain is sicker and poorer than it used to be. Sunak’s response? Attack disabled people | Frances Ryan | The Guardian theguardian.com/commentisfre…
Jo Hunt (activism, also @JoElizaHunt for papers) retweeted
‘conditions that could be framed as psychological or psychosocial in nature, and thus amenable to psychosocial interventions, could be exempted from welfare provision and health insurance pay-outs.’
#ME @HealthHubris Brilliant piece on #BPS 👇 healthcarehubris.com/post/su…
Jo Hunt (activism, also @JoElizaHunt for papers) retweeted
Journalists reporting on #SickNoteSunak and all that garbage would do well to learn from this excellent piece by @HealthHubris and report on the fundamentals of what’s really going on here!
@Channel4News @GranadaReports @BBCNews @TheNewsAgents @BBCRadio4
For #severeMEDay I'm sharing a new blogpost summary looking at the political underbelly (structural dimensions) of the #biopsychosocial model - I believe this explains why severely #disabled people are left to rot by the health & social system. #severeME healthcarehubris.com/post/su…
Jo Hunt (activism, also @JoElizaHunt for papers) retweeted
A great example 👇 as to why any #DWP covert surveillance of people claiming #Benefits with #EnergyLimitingConditions #MECFS #LongCovid #PEM #PESE is not fit for purpose : You may see us doing something, but you won’t see us ill and doing nothing …
@LongCOVIDPhysio @long_covid
When you wake up feeling really rough but don't know why and then you remember you actually went out yesterday. I don't think I'll ever fully accept how those of us #pwME are punished just for doing things that everyone else takes for granted.
Jo Hunt (activism, also @JoElizaHunt for papers) retweeted
We saw @GeorgeMonbiot's calls for an ME Inquiry. This got @h_sharland thinking: who could possibly stand in the way?
Well, there's one weasely person who could - & here, Hannah dissects his track record. Important read #BringMillieHome #DontLetMEDie:
thecanary.co/opinion/2024/04…
Jo Hunt (activism, also @JoElizaHunt for papers) retweeted
"Research into [#MECFS] is lagging decades behind because society doesn't take it seriously enough" Professor Chris Ponting
Highlights also include the brief introduction not available in the videos being shared.
Jo Hunt (activism, also @JoElizaHunt for papers) retweeted
We are thrilled to announce that we have secured funding for a research project looking at vagus nerve stimulation for people with ME 🥳
More details in our newest blog post.
This project is in early stages and not yet recruiting - updates will follow
physiosforme.com/post/fundin…