Deputy Chair, Health Committee, Australian Privacy Foundation. email: [email protected]
Joined March 2016
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Worth a read, especially this bit:
#MyHealthRecord affords some dynamic consent mechanisms, these typically rely on a digitally literate and engaged consumer. These tensions regarding consent sit uneasily with a national system that is unlikely to incorporate individual needs,
Set against backdrop of the Australian #MyHealthRecord, this article examines technoutopian portrayals of digital health, practicalities for engaging stigmatised communities with these imperfect systems, and possibilities for data justice.
bit.ly/EngagingStigmatisedCo…
@thisnewman
ALT Screenshot from an article that says: "In 2018, following government policy changes to Australia’s national electronic health record system, ‘My Health Record’, consumer advocates—including organisations representing people living with HIV, people who use drugs and sex workers—raised concerns about privacy and data security. Responding to these controversies, this study explores the practical, ethical and political complexities of engaging stigmatised communities with digital health systems."
"If all the information is there, such as in #MyHealthRecord ..."
I'd be very surprised.
As it tells you when you log on, there will be no history.
It was designed to be, and is, at best a summary system.
Do have a look, it's probably empty
When it comes to early diagnosis, having access to information as soon as it's available is crucial. As Dr Lawrie Bott notes, "If all the information is there, such as in #MyHealthRecord, you're going to get a better result". See what's in your record: my.gov.au
The article doesn't mention #myhealthrecord, which isn't surprising as it was explicitly designed to not be a communication tool.
Fascinating discussion on #MyHealthRecord @abcmelbourne with @LaTrioli on communication breakdown between hospitals & GPs lets down patients and clinicians, off the back of this article. Pinging @DT4Health @wendywchapman theage.com.au/national/victo…
Don't forget that the Royle Review (2013) expected savings of $400m/year
delimiter.com.au/wp-content/…
So where are those billions?
Excellent piece on reality catching up with #myHealthRecord
My Health Record’s ‘dumb numbers’ versus ‘meaningful use’
wildhealth.net.au/my-health-…
Excellent piece on reality catching up with #myHealthRecord
My Health Record’s ‘dumb numbers’ versus ‘meaningful use’
wildhealth.net.au/my-health-…
Why is Victoria creating its own Health Information Exchange?
youtube.com/watch?v=8OkGpCVH…
This is damning criticism of Australia's #myhealthrecord
After nine years in operation and over $2billion wasted, Victoria is starting again.
"Forget the #myhealthrecord – no one uses it."
@Medicalrepublic
Three numbers that matter: 62%, 40% and 15c
medicalrepublic.com.au/three…
In Nov 2020 Scott Morrison said Gov't had now access to four COVID-19 vaccines and over 134 million doses.
health.gov.au/ministers/the-…
Hollow rhetoric, just like #myHealthRecord #auspol
#VaccineStrollout #COVID19Aus
Health_Privacy retweeted
DON’T 👏🏾 COLLECT 👏🏾 BIOMETRICS 👏🏾 YOU DON’T 👏🏾 NEED 👏🏾
Six Flags To Pay $36 Million Over Collection Of Fingerprints packetstormsecurity.com/news…
Do you suppose he knows that #myhealthrecord has no place for your medical history?
A Shared Health Summary is a snapshot of your current status, not a history, although you might try and put a few words in it because there is nowhere else.
'My patients benefit from the information that I and their other healthcare providers upload to, and view in, #MyHealthRecord' - Dr Steve Hambleton (@stevejhambleton). Read more here: which-50.com/in-defence-of-m…
"The #myHealthRecord is an infrastructure project that was politically motivated as a show pony project by a health minister many years ago ... and was out of date 10 years ago."
@Medicalrepublic, speaking truth to power:
"The ADHA is broken. The #myhealthrecord is finished."
A certain digital behemoth is blocking innovation
medicalrepublic.com.au/a-cer…
My recollection (and the transcript abc.net.au/radio/programs/co…
)
is that he was responding to a question on "an underlying medical condition" and he talks about getting "your diagnosis into the system"
He was rather vague about the context of the advice though
#MyHealthRecord
Read and weep.
The ADHA needs a new camel
13 November 2020
@Medicalrepublic
medicalrepublic.com.au/the-a…
Stigmatised groups least trusting of #myHealthRecord
@Medicalrepublic
medicalrepublic.com.au/stigm…
Discrimination is likely to turn patients off digital health services, undermining the uptake in programs like My Health Record.
Shining a light on an important subject. Worth a read. @DataGuidance
Excited to have my paper on 'Updating data privacy laws to protect against digital harms' published by @DataGuidance - Part 1 here: dataguidance.com/opinion/int…
After 8 years #myhealthrecord is a failure. If it were a success, or even almost a success, NSW wouldn't need to do this:
NSW Health goes to market for statewide single digital health record
itnews.com.au/news/nsw-healt…
@iTnews_au @justinrhendry
"The Committee notes the importance of individuals keeping their My Health Record up to date"
One sentence completely destroys the reliability and usefulness of #MyHealthRecord.
Most people think it happens automatically. It doesn't.
Funny That A Parliamentary Committee On Allergies Has No Recommendation Regarding The… goo.gl/fb/N33z9K #myHR #ehealth