Dr. Rowe made the Cover of the Hopkins Children's magazine!!!! Learn more about our clinic's leader history and mission. hopkinsmedicine.org/news/art…

🏃‍♀️💙 Join us for the 10th Annual Rowe’s Research Runners Walk, Run & Roll! 📅 October 18, 2026 📍 Pennsylvania Military Museum + Virtual Every step, roll, donation & share helps support our work at the Johns Hopkins ME/CFS & Related Disorders Program—advancing research and expanding care for people living with #MECFS, #LongCOVID, dysautonomia & related conditions. rowesresearchrunners.org We’re incredibly grateful to the Rowe’s Research Runners community for making this work possible. Join us. Move with us. Help us move research forward. 💙 #RowesResearchRunners #MECFS #LongCOVID #Dysautonomia #JohnsHopkins

We’re excited to share that our clinic director, Dr. Alba Azola, will present on the “Illuminating the Invisible: Infection-Associated Conditions” panel at the NIH/NINDS workshop, Sept. 23–24. Join in person or virtually: mregs.nih.gov/ninds/vf45-44z…

Could 17 minutes change a life? Orthostatic intolerance is one of the most common—and treatable—contributors to fatigue, brain fog, and post-exertional symptom worsening in people with #MECFS and #LongCOVID, yet it is often overlooked. A simple 10-minute passive standing test, paired with careful listening, can uncover important diagnoses such as #POTS and help guide treatment. We're proud to have contributed to this latest CLOSLER clinical pearl highlighting why every clinician should think beyond "fatigue." Read more: Chronic fatigue—17 minutes can change a life #MedEd #Dysautonomia #OrthostaticIntolerance #ClinicalExcellence

It was such a treat to have @ImmunoFever at the clinic today 🤩 Thank you for visiting and sharing your expertise with us—we truly appreciate the insight and care you brought to our patient.

As we approach Long COVID Awareness Day (March 15), we need to talk about more than the illness—we need to talk about the system patients are navigating while sick. In our recent qualitative study (doi.org/10.1016/j.ssmqr.2026…), people living with Long COVID described a healthcare journey marked by siloed specialty care, poor communication between providers, long wait times, and major barriers to diagnosis. Many heard some version of: “That’s not my silo.” But Long COVID is a multisystem condition, and patients cannot divide their symptoms by specialty. When coordination fails, patients become their own care managers—tracking records, connecting doctors, scheduling visits, and advocating for themselves while living with fatigue, brain fog, and post-exertional worsening. Long COVID is exposing deeper structural gaps in how we care for multisystem chronic disease. Awareness must lead to better coordination, clearer pathways to care, and systems designed around patients—not silos. #LongCOVIDAwarenessDay #LongCOVID #PatientAdvocacy #HealthcareSystems #MECFS

Long COVID has revealed deep cracks in the culture of modern medicine. Our systems reward speed, certainty, and narrow expertise — yet chronic, post-infectious illnesses demand time, coordination, and humility. When those are absent, patients are too often dismissed or fragmented across care. This article thoughtfully examines why the current culture of medicine is failing people with Long COVID — and why change is urgently needed. 🔗 sciencepolitics.org/2026/01/… #LongCOVID #ChronicIllness #HealthcareLeadership #PatientCenteredCare

Hot off the press! A Continuous Oral Regimen of High-Dose Cromolyn Sodium Is Effective for Some Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Patients With Mast Cell Activation Syndrome cureus.com/articles/437606-a…

Excited to share this gem! Learn about the clinical evaluation and management of people living with MECFS from the source!

Hot off the press! "Putting the PASC Score to the Test: Clinical vs. Statistical Accuracy in Long COVID Diagnosis" 🧠 Our new study validates the NIH RECOVER PASC Score in our Long COVID clinic colort: - specificity & PPV = 100% - sensitivity ~80%—meaning ~1 in 5 LC patients may be missed. A symptom-triad (altered smell/taste + PEM + reduced sexual desire/ability) performed best (94% sensitivity, 92% specificity). A call for refining diagnostic tools + using clinical judgment to capture patients who “score negative” but clearly have LC. 🔗 doi.org/10.1007/s11606-025-1… #LongCOVID #PASC #PEM #PostViral

Hot of the press! 🧠 Autonomic symptoms are common in post-treatment #LymeDisease. In 210 patients, 4% showed orthostatic tachycardia on a 10-min stand test—more often early in disease & after steroid/antibiotic exposure. Findings highlight overlaps with #POTS and need for autonomic evaluation. sciencedirect.com/science/ar…