Advocate for Usher syndrome community
Manchester, UK
Joined October 2013
- Tweets116
- Following41
- Followers111
- Likes116
Very rare opportunity to fund #ushersyndrome-specific research. All donations given before Tues 5th December will be doubled, so please don't hold back! secure.thebiggive.org.uk/pro…. #ushfamily @Usherkidsuk @UsherCoalition teapawt.net/Usherkidsuk/status/935…
Please take a look and follow @usherkidsuk to find out more about the support they want to provide for the #ushfamily in UK #ushersyndrome
Sometimes it takes a while for Usher kiddos to get the hang of the sunglasses regime.... #takebackthelight2020 and #USHEQX
Heading to LA for auditory habilitation 4 yrs ago. Where will our search for an Usher cure take us? #destinationushercure @UsherKids #USHEQX
Here's where all our journeys begin. Big shout out to our #ushfamily and #usherkidsaustralia #USHEQX #ushersyndrome
Incredible account of resilience post-#ushersyndrome diagnosis. Thanks @UsherKids working for awareness and a cure teapawt.net/UsherCoalition/status/…
#OwntheEquinox Day 17: "We could change things because now we were two..." @UsherKids #USHEQX #UsherSyndrome usher-syndrome.org/our-story…
#ushfamily going for gold at the Paralympics, fantastic! teapawt.net/UsherCoalition/status/…
4 Usher paralympians! @becca_meyers (USA Swimming) @JackHodgsonJudo (GB Judo) @katiek23 (AUS Triathlon) Amanda Cameron (NZ Cycling) #USHEQX
All families living with #ushersyndrome Event 17/09 Manchester. Thnx 2 host @genienetworks + sponsor @mollywatttrust
The equinox campaign gives our Usher community a voice, here's mine.... usher-syndrome.org/our-story… #USHEQX #ushersyndrome #owntheequinox
Big thank you to @mollywatttrust for sponsoring our #usheqx event 17/09/16 and supporting the next generation living with #ushersyndrome
Thx for RT @LindsayGrahamUK @usher_syndrome @UsherIreland @UsherCoalition Day 1 of #usheqx led to an Usher family signing up for event, yay!
It's that time of year again #usheqx This year I'm determined to connect families living with #ushersyndrome in UK. Event: 17/09 Manchester
Chloe Joyner retweeted
I'm proud 2 be a @sensetweets ambassador & happy 2 give my time 2 such important issues #denial #acceptance 19/7 sense.org.uk/content/usher-p…
Chloe Joyner retweeted
#USH2016 is sold out! @UsherChair shares why this is a GREAT problem to have. #USHFamily usher-syndrome.org/our-story…
To UK parents of Usher children... any ideas for 2nd annual #ushersyndrome Awareness Day on 17th Sept? What does our community need?
Chloe Joyner retweeted
Great to read about #ushersyndrome research blindness.org/foundation-new…
Chloe Joyner retweeted
@carolbrill is the most inspirational woman in Ireland! #deafblindness #IamNotInvisible teapawt.net/rtenews/status/6471727…
An online campaign has been started calling for #deafblindness recognised as a unique disability grabyo.com/g/v/gdgTPlJDMD4
Chloe Joyner retweeted
We really need to expand the reach of @UsherCoalition in China and Asia: ncbi.nlm.nih.gov/pmc/article…. LC:@Used2c #USHFamily
Chloe Joyner retweeted
An online campaign has been started calling for #deafblindness recognised as a unique disability grabyo.com/g/v/gdgTPlJDMD4