Kimberly Hicks (@KA_Hicks) header
Kimberly Hicks (@KA_Hicks) profile picture

COO/CFO/Treasurer @OpenMedF | Funding outcome-driven research and changing the global landscape for chronic complex diseases: https://teapawt.net/t.co/3C3mNtIjHk | #mecfs #longcovid

US, Canada, Australia
Joined July 2013
Photo by Kimberly Hicks (@KA_Hicks)Photo by Kimberly Hicks (@KA_Hicks)Photo by Kimberly Hicks (@KA_Hicks)Photo by Kimberly Hicks (@KA_Hicks)Photo by Kimberly Hicks (@KA_Hicks)Photo by Kimberly Hicks (@KA_Hicks)Photo by Kimberly Hicks (@KA_Hicks)
“What you do makes a difference, and you have to decide what kind of difference you want to make.” ― Jane Goodall #inspiration, #legacy
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Congrats @RTHM_Health team. This is such an important step forward for patients, for scaling clinical care, & analyzing disease processes from patient data. With patient feedback and with each iteration this type of intelligent health roadmap offering will become essential for managing chronic complex diseases like MECFS and others.
Big announcement: RTHM’s intelligence platform has officially launched! For too long, people with complex chronic conditions have had to shoulder the burden of managing their medical journey on their own. RTHM’s new platform is changing that. RTHM’s new HIPAA-compliant intelligence platform brings your health story into focus, pulling together records, labs, diagnoses, and symptoms to transform complex data into clarity and suggest the best next steps with your care team, including personalized treatment and workup recommendations. The future of care starts here. We’re excited to share this first release with you, and to keep building what comes next together. Ready to see the bigger picture of your health? Start today (it’s free!): rthm.com/ Please share 🙏 @patientled @doctorasadkhan @exceedhergrasp1 @PlzSolveCFS @MEActNet @putrinolab @remissionbiome @IsabelRamirezRD @bhanlon15 @AngelaMSWinCA @loscharlos @tessfalor @jencurtinmd @BinitaKane @resiapretorius @LeoGallandMD
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Check out the @OpenMedF StudyME platform - recruiting patients globally for research way beyond just OMF-funded projects. Open to all IRB-approved studies for #MECFS, #LongCOVID, and related diseases.
OMF StudyME is a free global participant registry bridging the gap between individuals living with #MECFS, #LongCOVID and related diseases, and the researchers working tirelessly to uncover effective treatments. 👉 Learn more and sign up today: ow.ly/1gWb50V3vHv
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Looking forward to joining @BlackFlagDAO, @almithani, @theNFThinker, @Christintweets, @m_goes_distance, @Matt_McKibbin, and others tomorrow. Sharing with our friends @RenegadeRes, @IsabelRamirezRD, @tessfalor.
DeSci is reshaping research communities, and @getbcard is building the tools to help them fund themselves! Tune in for our DeSci community space with @OpenMedF, @bio_hacker_dao, and other industry frens as we discuss the future of blockchain + science teapawt.net/i/spaces/1PlKQMWykaWKE

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So proud of this collaboration with @getbcard and the innovative approaches to supporting communities like @OpenMedF. So many opportunities to create positive network effects for all and solve big global health issues at the same time.
We're excited to announce the launch of @OpenMedF on BCard! Now you (yes, you!) can easily support OMF's novel collaborative research approach for diseases like ME/CFS and long COVID by signing up for BCard (🇺🇸 only, link below). @OpenMedF is doing something remarkable...
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Canadian non-profits and charities, @canadiancharity is a stellar partner to have on your team, and provides helpful & informative online resources and webinars.
Online courses are not as much fun as in-person. But they save a lot of travel time and cost and are available sometimes 24/7 not once per year or 2. Also you can start and stop at your pleasure. You can even replay Checkout our 19 courses canadiancharitylaw.ca/course…
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Hello @memdotai 👋 just setting up my Twitter flow. Here's my validation code: 5OCSqazfTtY7LnCGIaFL
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Thanks @PutrinoLab for this excellent summary and response, and for your continued and valued work to understand #LongCOVID and similar diseases like #MECFS and others.
We are in our fourth year of work to understand #LongCovid and we now know things about it thanks to science. After being told again by a quasi-well meaning, if uninformed, clinician that LC is just functional neurological disorder (FND). Here’s a 🧵 on why LC IS NOT FND (1/)
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Kudos @r_prior . Blows my mind (and @OpenMedF) that articles like this are still needed in the face of overwhelming scientific evidence of biological basis of #MECFS & #LongCovid
This Post is from a suspended account. Learn more
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ICYMI: Check out the following #research initiatives supported by OMF in 2022: omf.ngo/2022-research-initia… Thanks to you, we’ve made incredible strides in collaborative research that have laid the foundation for OMF to now move forward with small clinical trials for ME/CFS treatment.
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Does ME/CFS Change Molecularly Throughout a Day? Jonas Bergquist & Christopher Armstrong's New Study: bit.ly/3NVNejI This study plans to use high-frequency blood testing—multiple tests over a 6–8-hour period—to evaluate what changes in #MECFS patients over a day.
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ICYMI! This #TripleGivingTuesday is special because we are raising funds for an entirely new arm of research: small clinical treatment trials! Donate now and have your gift tripled: bit.ly/3V81GIp
Will you help us fund small clinical treatment trials this #TripleGivingTuesday? Now is the time to TRIPLE your impact and help us find effective treatments! Learn more: omf.ngo/do-you-want-an-effec…
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Kimberly Hicks retweeted
Could oxidative stress ("redox imbalance") be the link between #LongCovid and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)? A new perspective @PNASNews pnas.org/content/118/34/e202…
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This is a must read regarding healthcare’s failure with chronic complex diseases. See what @OpenMedF is doing to fix this.
"It did not matter that I was an educated medical professional receiving care from the same hospital system in which I worked. The moment I became sick I was just a patient in a bed, no longer credible in the eyes of most physicians." Powerful piece👇 medium.com/@InkOnThePage/lon…
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The monthly letter from Dr. Howard Zucker, @nysdoh Health Commissioner, urges physicians to recognize signs & symptoms of #LongCOVID and to consider diagnosis of #MECFS. Read the full letter: on.ny.gov/3C8YkLM #CountLongCOVID #Millionsmissing #PwME
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While post-viral illnesses are not new, they have been considerably neglected by the public health, medical, and scientific communities. The COVID-19 pandemic is now causing a reckoning with this institutional neglect. blog.petrieflom.law.harvard.…
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Kimberly Hicks retweeted
"#LongCovid has exposed medicine's blind spot". Which blind spot? Previous (post-infection) chronic symptoms, despite a long history of high numbers of patients, have remained very poorly understood and constitutes one of medicine's largest blind-spots. thelancet.com/journals/lanin…
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❤️😭
This guy. Way to go, Brayden! 👏
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