Improving access to care & quality of life by wielding the patient voice as a catalyst to advance advocacy, education, awareness & research efforts.

Verona, NY
Joined October 2016
Day 1 of #BIOPACE26 was filled with informative sessions on advocacy, policy access and research and development. #LADAorg loved connecting with KOLs like @nkartatx CEO Paul Hastings and @IAmBiotech CEO John Crowley. #PatientVoice
4
1
12
264
Kudos to @csroadvocacy for bringing rheumatology stakeholders to Capitol Hill to discuss #Access to care and treatment issues with policymakers. #LADAorg is honored to share our #PatientPerspective.
5
5
241
Thank you, @CAgovernor for signing #AB2009 by @PhillipChenCA and @AsmSolache. By modernizing California’s source plasma donation center regulations, this law will ensure that patients who depend on plasma-derived medicines have access to them when they need them most.
6
10
243
#MedicaidMatters to millions of Americans who are in danger of losing their Medicaid coverage, resulting in their healthcare costs increasing and their care delayed. Congress needs to protect #Medicaid. @ModernMedicaid @SenSchumer @SenGillibrand
3
7
143
September is Rheumatic Disease Awareness Month, join us in promoting earlier symptom recognition and diagnosis in #PediatricRheumatology care so that kids can be kids! #RDAM Visit acr.tw/4qK09bI to learn more.
7
12
214
Rare diseases demand immediate, specialized care. #AB1887 removes insurance hurdles that delay treatments and disrupt lives. @CAGovernor, your signature on this bill means faster, easier access to lifesaving therapies for Californians with rare diseases. #SignAB1887 #raredisease
3
7
207
California is one step closer to improving access to life-saving plasma-derived medicines! We call on the California Assembly & @CAgovernor to support #AB2009, legislation that will modernize outdated source plasma regulations. tinyurl.com/3jx2djzp
3
7
177
We are thrilled to share that our 26th Annual #Lupus Charity Golf Classic was a tremendous success raising $207, 232 for our education, #awareness, #advocacy and research programs. We also donated a recordbreaking $618,612 to @MMRIResearch @LupusResearch @LupusOrg @carrainc @RheumResearch for lupus research. #LADAOrg
5
8
3
19
2,537
Bravo to the @FDA, @CARRA and the passionate #patient and #carepartner representatives Miah, Elizabeth, McKenna, Chloe and Nia, and researchers for making the FDA Workshop to advance pediatric #lupus drug development a success! Mike drop! #LADAOrg
3
1
10
528