Long COVID Physio is an international peer support, education and advocacy, patient-led association of physiotherapists living with Long Covid.

Everywhere
Joined September 2025
Replying to @LC_Physio
Please follow this account for news and notes from our international organization led by physiotherapists living with Long Covid and their allies. We continue to advocate for improved education and research for people living with #LongCovid, as well as to provide peer support.
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Long COVID Physio retweeted
3/3 🌟#PoTSAwarenessDay🌟 Please watch our 4 minute 'What is PoTS' video below and via this link: youtube.com/watch?v=XoKmJA-o… Help us spread awareness and understanding by sharing this video with friends, family and anyone who may not know about #PoTS. Every share makes a difference! potsuk.org #MedTwitter #TeamGP #MECFS #Disability #LongCOVID #Dysautonomia #InvisibleIllness
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Mask up & stay safe everyone! 😷🦠🫀
YOUR ATTENTION: 🚨Every new COVID-19 (re)infection elevates your cardiovascular risk profile. Even mild cases can raise the odds of a heart attack, stroke, heart failure, and other CV events for months to years afterward. Risk is higher with more severe illness, yes, but it’s certainly not limited to severe disease. Updated vaccination will show some mitigation(infection severity↓) but doesn’t give you a risk-free pass! #AvoidSars2 #AvoidReinfections #UpdateVaccination ➡️Supportive links: 1. Xie et al., Nature Medicine (2022): Long-term cardiovascular outcomes of COVID-19 (elevated risk even in non-hospitalized patients, graded by severity). nature.com/articles/s41591-0… 2. American Heart Association news release (2024) on the UK Biobank analysis (≈2× risk of heart attack/stroke/death for up to 3 years after any COVID-19 infection). newsroom.heart.org/news/covi… 3. Lindgren et al., Journal of Internal Medicine (2026): Nationwide Swedish matched cohort (nearly doubled long-term MACE and death risk in hospitalized cases, persisting beyond year 1). onlinelibrary.wiley.com/doi/… 4. Hadidchi et al., Journal of Human Hypertension (2026): Elevated CV outcomes (including in non-hospitalized patients) among those with pre-existing hypertension. nature.com/articles/s41371-0… 5. CARTESIAN study, European Heart Journal (2025): Accelerated vascular aging / arterial stiffness after COVID-19, including mild cases: academic.oup.com/eurheartj/a… ➡️These five links give a clear progression from the early 2022 data through 2024–2026 confirmation!!
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Long COVID Physio retweeted
1/3 🌟 #PoTSAwarenessDay 🌟 potsuk.org Please view our new ✨What is PoTS✨ leaflet in the image thread below. To download the leaflet: potsuk.org/wp-content/upload… Please also watch our popular 4 minute 'What is PoTS' video in the thread below and via this link: youtube.com/watch?v=XoKmJA-o… GP guide: potsuk.org/wp-content/upload… Share to raise awareness 💜 #MedTwitter #MECFS #EDS #TeamGP #MCAS #PoTS #Disability #LongCOVID #Dysautonomia #InvisibleIllness @DrSdeG @LC_Physio
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Today is PoTS Awareness Day Many people with Long Covid have PoTS, with studies showing that anywhere between 11% to over 50% of people with Long Covid also meet the diagnostic criteria for PoTS. To find out more about PoTS, head to potsuk.org/ #LongCovid #PoTS
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TW suicide & #LongCovid research 👇 When previously advocating with #LongCovid groups this is something we warned about in our written U.K. government submissions @WorkingWithLC We must have #SuicidePrevention @LC_Physio @SupportingHH_UK
Sometimes it is with a heavy heart that the increasing relevance of particular research projects is brought home. So too with our funded project on "living death, social death and #suicide amongst #LongCovid patients in the Netherlands and Germany".
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Long COVID Physio retweeted
I mean, if pacing, symptom-contingent exercise, and therapeutic breathing was really fixing the hemodynamic problem through improved autonomic functioning, why would someone need even more hemodynamic support? 🤔
Replying to @sunsopeningband
I think the inclusion of interventions to support hemodynamic functioning in autonomic rehabilitation implicitly acknowledges that sympathetic activation *could* be compensating for impaired circulation rather than causing it. That's a different model than sympathetic excess.
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Long COVID Physio retweeted
5/5 Medication use in #PoTS. View further medication options and details here: potsuk.org/managingpots/medi… #PoTSAwarenessDay
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Long COVID Physio retweeted
4/5 Symptom management in #PoTS. View more information about lifestyle changes: potsuk.org/managingpots/gene… #PoTSAwarenessDay
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Long COVID Physio retweeted
3/5 #PoTS testing, investigations & diagnosis. View further information here: potsuk.org/about-pots/diagno… #PoTSAwarenessDay
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Long COVID Physio retweeted
2/5 Brain fog can be one of the debilitating symptoms that people with #PoTS experience 🧠 It is thought to be due to reduced blood flow to the brain whilst being upright (and subsequent residual symptoms during recovery). Please view more detailed information on our website: potsuk.org/managingpots/cogn… #PoTSAwarenessDay
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Fantastic information from @UKPoTS on #PoTSAwarenessDay Many of our #LongCovid members suffer with this debilitating condition Educational resources for both patients and HCWs on their website potsuk.org/
1/5 Happy 7th 🌟#PoTSAwarenessDay🌟 Postural Tachycardia Syndrome (PoTS) can be a life altering and debilitating health condition. #PoTS is an abnormality of the autonomic nervous system, which controls all bodily functions that we don’t have to think about. Individuals experience orthostatic intolerance, which means that they mostly experience symptoms when in an upright position. The majority of people with PoTS also have other related medical conditions such as hypermobile Ehlers-Danlos Syndrome, allergies, Long Covid and ME/CFS- all of which can make symptoms worse. If you are new here please take the time to view the image thread below to learn some basics about PoTS: 🟣 Symptoms 🟣 Tests/Investigations/Diagnosis 🟣 Treatment- lifestyle changes & medication View our website to learn more about symptoms: potsuk.org/about-pots/sympto… #MedTwitter #TeamGP #ChronicIllness #LongCovid #InvisibleIllness #MECFS #EDS #MCAS @DrSdeG @elisaperego78 @DrSarahJarvis @mermhart @cpgale3 @LongCovidAdvoc @LC_Physio @MEAssociation
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Long COVID Physio retweeted
And, a gentle reminder that we don't identify PEM with a simple screening tool. This study reminds us why. The Way To Do It™️ is still a combination of screening and evaluation by a skilled clinician as described in the NIH/NINDS Common Data Elements. commondataelements.ninds.nih…
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Long COVID Physio retweeted
BBC Sport approached @number10gov for a response to my letter to @andyburnham . The @DHSCgovuk responded and unfortunately this statement isn’t anything we didn’t already know. There are also fundamental inaccuracies within it. Please also bear with me; I’ve had an extremely large amount of messages and I’m operating with a very limited capacity. @Ed_Miliband @tessamunt @JoPlattLeigh @KatieFalkingham @BBCSport @BBCNews @UKLabour @ThereForME_UK @YvetteCooperMP
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Thank you to the Inquiry Core Participants who signed with us: @CovidJusticeUK @JohnCampaign @LongCOVIDPhysio @LongCovidSOS @long_covid, Covid Bereaved Families for Justice Cymru, Scottish Covid Bereaved and David Osborn.
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Our open letter to UK infection control leads went today. Patients can be asked to remove their FFP2 or FFP3 mask, or swap it for a surgical one, while staff can now choose a respirator if treating a patient with respiratory symptoms. clinicallyvulnerable.org/let… #RightToMask
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Long COVID Physio retweeted
We’ve been blown away by the response to my interview with @BBCSport & @KatieFalkingham , thank you so much to everyone who has taken the time to read and engage with it ❤️ millions of views across multiple platforms really is immense. We have since written to @andyburnham , calling on the @UKLabour government to fund research into this horrific illness. I know there’s so much more we could say, but with limited capacity, we’ve tried to focus on the lack of funding, resources in the NHS and how much it’s actually costing the government. As you can see on the slides, it has been drastically underfunded compared to other illnesses and it is currently costing the UK Government far more than it would cost to fund research. ME is most often a post-viral illness. Therefore, since the start of the Covid pandemic, we’ve seen cases increase drastically and they will continue to increase. We need funding into research urgently. With estimates of people with ME being around 1.35 million, this is a lot of lives destroyed. I’ve had thousands of messages on multiple platforms since sharing my story so please bear with me ❤️ Thanks to @ThereForME_UK and @wecrunchme for the stats.
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Replying to @globalhlthtwit
Prof Costello, have you seen Scotland’s new IPC guidance (it covers Wales too as they share the same NIPCM)? It completely changes the approach to IPC, supposedly to address the findings of the Covid Inquiry M3 report… …but actually downgrades mitigations even further! 🧵
🏴󠁧󠁢󠁳󠁣󠁴󠁿NEW IPC GUIDANCE Scotland has quietly introduced a brand new approach to respiratory infection prevention & control in healthcare. This change has MAJOR consequences for both patients & staff. The story behind it is quite extraordinary so grab a cuppa & I’ll explain… 🧵
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Long COVID Physio retweeted
The latest Covid Inquiry report on Module 6 fails to mention the Module 3 findings about the true transmission of COVID-19. It’s by aerosol/ airborne transmission for which surgical masks, hand washing and gowns do nothing. Only airborne mitigations protect. Why no mention?
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Long COVID Physio retweeted
It also evidences deliberate falsification of official documents (s.10). ARHAI Scotland's deeply flawed reports exerted great influence on policy makers & IPC guidance authors. The same group recently published new IPC guidance for Scotland & Wales reducing protection of HCWs /4
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