All about #LongCovid paid work/not being in paid work #Benefits including energy limiting conditions: Dr Clare Rayner, Dr Jenny Ceolta-Smith and Pen Scribbler

Joined October 2023
1/ We will add here links to resources for workers and stakeholders on #WorkingWithLongCovid some we were involved in. These are mainly U.K. but some have transferability to other countries. Please share and tag us to other resources 🐝 #LongCovid
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Replying to @WillowLymeInfo
X/Twitter can be very annoying at times. Try reading on from here for the rest of the thread 👇🏻
Replying to @_CatintheHat
THE BIG REVEAL: Scotland’s IPC team have decided to place COVID in the R1 category. That means they consider that COVID: ▪️does NOT cause severe disease ▪️is UNLIKELY to spread to the community ▪️and there IS prophylaxis or treatment readily available. nipcm.hps.scot.nhs.uk/media/…
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Thanks @covidinquiryuk The lives and deaths of the social care workforce matter very much. Data is the bedrock for parity of pandemic protection and commemorations.
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We should support people who can work into employment. You don't do that by cutting the already meagre support disabled people rely on to live. Restricting eligibility doesn't mean less people will be disabled, just that more will be in poverty. That's not the Labour way.
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Meanwhile as a former Nurse I’m now disabled by Long Covid. Dismissed by an uncaring NHS, they have the audacity to say I can’t prove I caught it at work. The UK was in lockdown where else could it have come from…
£50 MILLION of taxpayers' money to "SG Recruitment" for PPE! Tory peer helped secure the deal WHILE holding a financial interest in its parent company! More than HALF the supplies were unsuitable! £24 MILLION lost. Company now in liquidation! 🚫 Do YOUR job @metpoliceuk
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TW suicide & #LongCovid research 👇 When previously advocating with #LongCovid groups this is something we warned about in our written U.K. government submissions @WorkingWithLC We must have #SuicidePrevention @LC_Physio @SupportingHH_UK
Sometimes it is with a heavy heart that the increasing relevance of particular research projects is brought home. So too with our funded project on "living death, social death and #suicide amongst #LongCovid patients in the Netherlands and Germany".
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🚨 My new paper on small fiber #neuropathy in NONPAINFUL conditions is published. Neuropathy is traditionally defined by neuropathic (tingling, numbness, burning, shooting) pain, but there are neurologic and non-neurologic conditions where objective findings of small fiber neuropathy are highly prevalent despite the pain being absent or minimal. I outline comprehensive treatment options for small fiber neuropathy with both evidence-based and emerging therapies in the Table. 🧠 clinmedres.org/content/24/3/…
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People who insist exercise is medicine have the burden of proof. That is their assertion and therefore their obligation to prove it…or not. People who ask for proof do not have the burden of providing it because they are not making the assertion. Them’s the rules. That is all.
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Interesting preprint: SARS-CoV-2 is evolving to become less recognisable to human B cells, while also escaping existing antibodies.
In new study, we show that SARS-CoV-2 has evolved decreased inherent antigenicity in humans, as quantified by a ~3-fold decrease in the number of naïve human B cells that can bind the spike RBD. doi.org/10.64898/2026.10.15.…
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Kindly vote for my daughter and podcast partner in the Top Host podcast contest! Vote daily and share. We'd appreciate it. Let's get the long Covid story on @iHeartRadio tophost.org/2026/Ty-Godwin #LongCovid #cancer #cancersucks
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– Are you gonna stay dry forever, or what?
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Replying to @cv_cev
@cv_cev Pleased to support this letter from our allies at CVF. Everyone should be able to access safe healthcare. Neither staff nor patients should pick up an infection simply due to being in a healthcare setting. Anyone can become clinically vulnerable
Our open letter to UK infection control leads went today. Patients can be asked to remove their FFP2 or FFP3 mask, or swap it for a surgical one, while staff can now choose a respirator if treating a patient with respiratory symptoms. clinicallyvulnerable.org/let… #RightToMask
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Who wants to come to a mask and lateral flow negative test required concert on Saturday with me? Also remote option available, see below. lso.co.uk/whats-on/drake-mus… My friend is one of the artists being showcased & they're amazing.
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📢A benefits system should enable Disabled people to live their lives, not make them afraid to live them. We are calling for a fairer benefits system for all. Join us in #DismantlingTheActivityTrap tomorrow👇 tinyurl.com/4ba7n9cz
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👇important question as part of a U.K. research study Please share @LC_Physio @sunsopeningband @SupportingHH_UK @CounsellingSam @alitwy @benking01 @BAMEOTUK @UKFCOT
Have you ever been made to feel guilty for resting? Rest, Free Time and Disability questionnaire - if you are interested in addressing this question and others, please visit this page: breadrosesdisability.uk/ques… #Rest #Disability #DisabledTwitter #DisabilityTwitter #FreeTime
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When Disabled people are repeatedly framed as a cost, it affects how society sees us. @Channel4's The Experiment confronts ableism, segregation and the consequences of devaluing Disabled lives. Read a blog on the programme here: disabilityrightsuk.org/news/…
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6 years ago today I contracted #LongCovid Ill health retired from Nursing at 36, I’ve lost my career, my health, my independence and financial security. I’m not the Mum, Wife, Nurse or friend I want to be. I miss it all, and I’m angry that the #Covid decision makers walk free
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