Loris Brunetta retweeted
🚨 #SaveTheDate for the 1st TIF Pan American Conference on #Thalassaemia & #HaemoglobinDisorders & 2nd RAIN Summit, happening in Washington D.C. on 11-13 July, 2025!
Join us for this milestone event hosted by TIF and @cooleysanemia!
🔗 tinyurl.com/26f3x6jm
#TIF2025
Loris Brunetta retweeted
📢#EuroBloodNet Dissemination Pill!
20 min to show:
"Limited access to #TranscranialDoppler screening and stroke prevention for children with #SickleCellDisease in EU: Results of a multinational ERN-EuroBloodNet mapping"
24th February 11:00 eurobloodnet.eu/disseminatio…
Loris Brunetta retweeted
📢 February Issue
Editorial on #pregnant & #postpartum individuals in clinical trials
Research:
🔸Sovleplenib Phase 2 Trial
🔸Isatuximab for Multiple Myeloma
🔸Effects of erythropoiesis-stimulating agents
🔸Aspirin for postpartum VTE prophylaxis
👇
thelancet.com/journals/lanha…
Loris Brunetta retweeted
Patients need access to support services, such as the availability of a clinical psychologist as part of the hematology team, to provide support with the emotional aspects of a leukemia diagnosis, especially for patients with acute leukemia
acuteleuk.org/wp-content/upl…
Loris Brunetta retweeted
📣 Big Announcement!
The long-awaited 5th edition of the "TIF Guidelines for the Management of Transfusion Dependent β-Thalassaemia (TDT)" is finally available.
Get your copy now! bit.ly/4jux1Bn
#Thalassaemia #TIF #Guidelines #TDT #Haematology #PatientCare
Loris Brunetta retweeted
How can AI-powered #PersonalizedMedicine strategies help to improve disease management for #SickleCellDisease patients?
Watch the full webinar delivered by @mmanupe (@VHIR_), Eduard van Beers (@UMCUtrecht) and Raffaella Colombatti (@OspedalePadova) to find out 👉 youtu.be/BRMJ9Y5etFY?feature…
Part of our Educational Program for experts exploring the use of AI in #Hematology, launched in collaboration with @ERNEuroBloodNet.
🇪🇺 #EUfunded @EU_HaDEA
Loris Brunetta retweeted
🚨 Dear #SickleCellDisease Community 🚨
We invite patients, caregivers, & families to join a 🌍 global survey on improving #SCD care.
💬 Share your insights!
🔗 EUSurvey - Survey
🌐 Available in 8 languages.
Your voice matters—let’s shape the future of #SickleCell healthcare! ❤️
Loris Brunetta retweeted
@DanieleRaineri è a Damasco, in Siria, ed è stato al carcere assadista di Sednaya, la prigione diventata il simbolo della brutalità del regime di Assad.
Ne avevamo scritto qui: ilpost.link/ypJYF2TZj3
Loris Brunetta retweeted
Mariangela Pellegrini, @ERNEuroBloodNet Educational & Patients Program Manager, presenting @ERICA_RD_EU WP3 ‘Patient Centered Research’, together with Ana Rath and Céline Desvignes at the 4th ERICA General Assembly & ERN Research Conference in Udine!
#ERNeu #RareDiseases
Loris Brunetta retweeted
We presented today at #ASH2024 the uRADAR initiative, under the scope of the RADeep Registry, in ultra rare anemia disorders for promoting clinical research @ERNEuroBloodNet @ERDERA_org
Loris Brunetta retweeted
@ERNEuroBloodNet 6th Progress Meeting is starting now, welcome to the 160 participants! Key actions and results on the different fields of actions will be presented during the day, including guidelines, education, CPMS, data driven research or innovative therapies #EBNMeeting2024
Loris Brunetta retweeted
Proud to be a part of #thalassemia conclave by @ThalassemicsI. Great representation from @MoHFW_INDIA and consensus by participants on #NAT mandate and national programme on #thalassemia prevention! @NITIAayog @JPNadda @shobhatuli
Loris Brunetta retweeted
@ERNEuroBloodNet 6th Progress meeting has just ended, thanks to more than 120 participants during today for all your fruitful contributions!! 👏👏
Stay tuned for the outcomes in the next days! 😊
#ERNeu #EBNMeeting2024
Loris Brunetta retweeted
#TIF's #RenzoGalanelloFellowshipProgramme 2024 kicks off today!
Over the next few weeks, 3 doctors from #Pakistan, #Cambodia, and #Malaysia will undergo intensive training on #Haemoglobinopathies’ Management at the Joint Red Cell Unit of @UCLH, UK.
#MedicalTraining #RGF2024
Loris Brunetta retweeted
🎯 Today we conclude our participation at #ASCAT2024 with the “Presentation of the ERN-EuroBloodNet SCD Patient Educational Sessions”.
✨Thank you to all who attended and shared these enriching and engaging days!✨
#ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure
Loris Brunetta retweeted
Join our PNH Awareness Campaign! 🌟 From Sept 6 to Oct 12, let's raise awareness about Paroxysmal Nocturnal Hemoglobinuria. Share our posts with #PNHAwareness2024, join discussions & support those affected. Together, we can make a difference! 💪 #DidYouKnow #TreatingPNH
Loris Brunetta retweeted
Get that #BackToSchool feeling with GenoMed4All and @ERNEuroBloodNet! 👩🏫
Join our 'AI in Hematology' online training & learn from top European experts at @VHIR_ @iHD_HealthData @HumanitasMilano @Gatv_ETSIT @UMCUtrecht @Unibo @OspedalePadova
Register 👉genomed4all.eu/training-wave…
Loris Brunetta retweeted
📣#FRESH news! The August newsletter of the @ERNEuroBloodNet is out #now!
▶️Read the Newsletter & subscribe: eurobloodnet.eu/newsletter/
🌟Don't miss the latest news in the field of rare haematological diseases and the main achievements of the ERN-EuroBloodNet!
#ERNeu #ERNs