Again it's all about "belief" with Paul (while misrepresenting NG206 & @NICEComms )
Feel free to believe what you want @PaulGarnerWoof that's fine. But you'll need to provide evidence rated as better than "poor" or "very poor" before NICE reconsider your alternative medicine woo.
I believe NICE ME/CFS guidance harms patients with misinformation. Here is one: keeping people with ME/CFS in the dark, implying the condition is permanent, and disallowing brain retraining and cognitive approaches other than helping people cope. @NICEComms
Malcx retweeted
We are pleased that our response to the recent opinion piece, 'Patients with severe ME/CFS need hope and expert multidisciplinary care' in the BMJ has been published but disappointed by it's commissioning & publication.
ow.ly/vsOE50VVoEx
#VerySevereME #MillionsMissing
ALT thebmj in white text on bright blue background.
Malcx retweeted
Shipping out the first lot of these. I keep hearing that we need to grow our social media, so I figured we’d do a giveaway. Follow our page, and like and share the post for a chance to win a Signature Edition Flik Wing!
Will announce the winner at noon PST a week from today.
Prize will be in the form of a coupon for the value of one Signature Edition Flik Wing, you will just have to pay shipping. (Or I guess optionally a refund if you have already purchased one.)
Probably the best chance you will ever get at winning a draw!
Malcx retweeted
How could this happen in the 21st century? @GeorgeMonbiot traces links between The Revolutionary Communist party, the Science Media Centre & the “biopsychosocial” school which has dominated treatment and research & led to mistreatment of #pwME.
ow.ly/ezBj50TOfil
Malcx retweeted
A prominent @UniofExeter professor has been selected as @UKParliament's new research lead for health, bringing impartial expertise, policy knowledge and a network of research connections to a variety of teams in and out of parliament.
Read the full story: bit.ly/4bYFuaQ
Malcx retweeted
Hitler, in conference with his German generals: "England's situation is hopeless. The war has been won by us. A reversal of our successes is impossible."
Malcx retweeted
Look how #dragonsden used to treat claims of medical benefits from aspiring entrepreneurs...
youtube.com/watch?v=VQ4Bx8za…
They called out the lack of evidence and clinical trials, so why didn't this happen last week or is #MECFS #ME somehow different @BBC ?
Look how #dragonsden used to treat claims of medical benefits from aspiring entrepreneurs...
youtube.com/watch?v=VQ4Bx8za…
They called out the lack of evidence and clinical trials, so why didn't this happen last week or is #MECFS #ME somehow different @BBC ?
Malcx retweeted
Newly released US Gallup poll asks: "What should be the policy in the present European war? Should we declare war and send our army and navy abroad to fight Germany?" 95% of Americans say no.
Malcx retweeted
Oklahoma plans to kill Richard Glossip on May 18. The state's own attorney general has said that this would be a "grave injustice," but other people in Oklahoma are determined to go ahead and kill him. Sound crazy? Keep reading; it gets crazier.
Blitzed through their Falklands podcast @PodBattleground, now rapidly catching up on their Ukraine content. Really hoping @sauldavid66 stops saying "the Ukraine" though, it really grates and seems out of place.
Malcx retweeted
Line of Trees in a Marshy Landscape’, Piet Mondriaan, watercolour, chalk and pastel on paper, 1906.
rathergoodart.co.uk/product/…
Malcx retweeted
NFTs can be used for so many different things that you're inviting history to make a fool of you if you dismiss them. Even if I were sure that most current uses of NFTs were bogus, I'd never dare to say that all possible uses were.
Last night finished season 2 of #AfterLife - Thank you @rickygervais for getting it right and making a joke about, not of ME.
#mecfs #PublishThatGuideline
Malcx retweeted
"She had a physio weekly... after each session she would not be able to stand and her body would shake uncontrollably for hours with her sobbing as it was causing pain...
...it was suggested I use more positive language as there was no way this was caused by the exercises"
Today we have published a blog to share the experiences of a parent of a child with ME
Warning: it is a difficult read, but it is important that health professionals see what life can be like for a parent, and why better treatment and support is needed
physiosforme.com/post/a-pare…
Just finished Chaos Monkeys. A thoroughly entertaining and informative read. The kind of book you want to thank the author for writing after you finish. So thanks @antoniogm