Southern Oregon PANDAS/PANS (@OregonPans) header
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I am a mother of a child afflicted with PANDAS/PANS. Here, I want to share my struggles and, hopefully, provide education/awareness.

Central Point, Oregon
Joined September 2019
Photo by Southern Oregon PANDAS/PANS (@OregonPans)Photo by Southern Oregon PANDAS/PANS (@OregonPans)Photo by Southern Oregon PANDAS/PANS (@OregonPans)Photo by Southern Oregon PANDAS/PANS (@OregonPans)Photo by Southern Oregon PANDAS/PANS (@OregonPans)
Southern Oregon PANDAS/PANS retweeted
"Supporting behavioral health services was another point of emphasis in the discussion, which all three legislators agreed would be of high importance in the 2022 session." PANDAS/PANS WA children whose psychiatric suffering could be relieved through access to treatment.
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Southern Oregon PANDAS/PANS retweeted
Check out the Rays of Light Ambassador Program through @PANDASnetwork as a way to share your story in a unique and beautiful way.
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Southern Oregon PANDAS/PANS retweeted
Watch our previously sponsored Grand Round presentations at @OHSUDoernbecher and OHSU Psych on PANDAS/PANS by Stanford Physicians. @UWPedsRes @uwsocialwork @OHSUPediatrics @OHSUNursing @DevoOrigins @UPNursing @AANP @WINMinnesota @orpsychiatric @PsychStudents @publichealthstu
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Southern Oregon PANDAS/PANS retweeted
This is what recovering from #Pans #Pandas can be like for many young people 😢💚 Early diagnosis & appropriate treatment ASAP is crucial. The current situation in the UK is unacceptable 😕
Southern Oregon PANDAS/PANS retweeted
Isn't #PANS #PANDAS the same as traditional #OCD? Actually...No. It's isn't. Learn the difference so you know when to suspect your patient's 𝐎𝐂𝐃 may actually be a #symptom of 𝐏𝐀𝐍𝐒/𝐏𝐀𝐍𝐃𝐀𝐒. #OCDWeek #OCDAwarenessWeek pandasppn.org/pandas-pans-vs…
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Southern Oregon PANDAS/PANS retweeted
PANS is not just pediatric, no matter what it says in the name. The Diagnostic Criteria says - There is no age requirement. Symptoms can linger into adulthood, and symptoms can start in adulthood. aspire.care #panspandasawareness #notjustpediatric #adultshavePANS
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Southern Oregon PANDAS/PANS retweeted
Today is PANS PANDAS Awareness Day. Eating Disorders/Restrictive Eating can be a PANS PANDAS symptom. Learn more about PANS PANDAS. aspire.care/families-parents… Download the 12-page Restrictive Eating Toolkit. #panspandasawareness #anorexianervosa #arfid #eatingdisorder
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Southern Oregon PANDAS/PANS retweeted
Thank you for raising #PANS #PANDAS awareness today! We hope we answered questions and spiked curiosity & interest in those that never knew #strep & other infections can trigger #ocd #arfid #anxiety & an overall decline in #mentalhealth. Learn more at pandasppn.org.
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Southern Oregon PANDAS/PANS retweeted
PPN would like to welcome Susan Swedo, MD to the @PANDASPPN #PansPandasAwareness Tweetchat! Tweet your #PANS #PANDAS questions & follow along with the hashtag #AskSwedoPpn.
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Southern Oregon PANDAS/PANS retweeted
Thank you @PandasPans @RuthCadbury @RobinMillar8 and all at the APPG. This amazing step forward gives families like ours hope that we will one day be able live life rather than just exist in pain with no light. #PANS #PANDAS #hope #action #NeverGiveUp
Today we launched the APPG on PANS/PANDAS. It was a very powerful session with testimony and evidence from parents & medical professionals. Thank you to all those who attended; especially those who told us about how it had impacted them and their families.
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Southern Oregon PANDAS/PANS retweeted
Get ready to feel insulted, shocked and maybe a little smug.

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Southern Oregon PANDAS/PANS retweeted
#PA Game Commission Warns #Hunters of EEE and #LymeDisease Dangers erienewsnow.com/story/412266…
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Powerful GA Study Committee meeting yesterday! Testimonies from Dr. Fier, five families, and one 15-year-old patient. Next step: getting Senate support. Know anyone on the HHS and Insurance/Labor committees? If so, contact us!
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15-year-old Reina Dupree testified at Wednesday’s GA legislative PANS/PANDAS Study Committee meeting and shared this moving, eye-opening letter about her experience with PANDAS and why we need legislation mandating insurance coverage. Thank you, Reina! bit.ly/2BHSVNM
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Don't forget that tomorrow is the next Georgia legislative PANS/PANDAS Study Committee meeting. Sign up on our events page, or if you'd like to testify, PM us.
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Here's a chance for your P/P provider, or new providers, to gain education about this disorder. @NeuroimmuneKids' next private group provider webinar features Jennifer Frankovich MD, Rheumatologist from Stanford PANS Clinic, on Nov. 19 at 6pm CST. bit.ly/2MMYvnd
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