I am a mother of a child afflicted with PANDAS/PANS. Here, I want to share my struggles and, hopefully, provide education/awareness.
Central Point, Oregon
Joined September 2019
- Tweets55
- Following73
- Followers94
- Likes118
Southern Oregon PANDAS/PANS retweeted
"Supporting behavioral health services was another point of emphasis in the discussion, which all three legislators agreed would be of high importance in the 2022 session."
PANDAS/PANS WA children whose psychiatric suffering could be relieved through access to treatment.
Southern Oregon PANDAS/PANS retweeted
Check out the Rays of Light Ambassador Program through @PANDASnetwork as a way to share your story in a unique and beautiful way.
Southern Oregon PANDAS/PANS retweeted
Watch our previously sponsored Grand Round presentations at @OHSUDoernbecher and OHSU Psych on PANDAS/PANS by Stanford Physicians. @UWPedsRes @uwsocialwork @OHSUPediatrics @OHSUNursing @DevoOrigins @UPNursing @AANP @WINMinnesota @orpsychiatric @PsychStudents @publichealthstu
Southern Oregon PANDAS/PANS retweeted
Isn't #PANS #PANDAS the same as traditional #OCD? Actually...No. It's isn't. Learn the difference so you know when to suspect your patient's 𝐎𝐂𝐃 may actually be a #symptom of 𝐏𝐀𝐍𝐒/𝐏𝐀𝐍𝐃𝐀𝐒. #OCDWeek #OCDAwarenessWeek pandasppn.org/pandas-pans-vs…
Southern Oregon PANDAS/PANS retweeted
PANS is not just pediatric, no matter what it says in the name. The Diagnostic Criteria says - There is no age requirement. Symptoms can linger into adulthood, and symptoms can start in adulthood.
aspire.care
#panspandasawareness #notjustpediatric #adultshavePANS
Southern Oregon PANDAS/PANS retweeted
Today is PANS PANDAS Awareness Day.
Eating Disorders/Restrictive Eating can be a PANS PANDAS symptom.
Learn more about PANS PANDAS.
aspire.care/families-parents…
Download the 12-page Restrictive Eating Toolkit.
#panspandasawareness
#anorexianervosa #arfid #eatingdisorder
Southern Oregon PANDAS/PANS retweeted
Thank you for raising #PANS #PANDAS awareness today! We hope we answered questions and spiked curiosity & interest in those that never knew #strep & other infections can trigger #ocd #arfid #anxiety & an overall decline in #mentalhealth. Learn more at pandasppn.org.
Southern Oregon PANDAS/PANS retweeted
PPN would like to welcome Susan Swedo, MD to the @PANDASPPN #PansPandasAwareness Tweetchat! Tweet your #PANS #PANDAS questions & follow along with the hashtag #AskSwedoPpn.
Southern Oregon PANDAS/PANS retweeted
Many anxiety disorders are misdiagnosed as learning disorders, ADHD and depression. Know the signs in this helpful article bit.ly/AnxietyChildrenSFK #ADHD #childhooddepression
Southern Oregon PANDAS/PANS retweeted
Thank you @PandasPans @RuthCadbury @RobinMillar8 and all at the APPG. This amazing step forward gives families like ours hope that we will one day be able live life rather than just exist in pain with no light. #PANS #PANDAS #hope #action #NeverGiveUp
Southern Oregon PANDAS/PANS retweeted
Powerful GA Study Committee meeting yesterday! Testimonies from Dr. Fier, five families, and one 15-year-old patient. Next step: getting Senate support. Know anyone on the HHS and Insurance/Labor committees? If so, contact us!
Southern Oregon PANDAS/PANS retweeted
15-year-old Reina Dupree testified at Wednesday’s GA legislative PANS/PANDAS Study Committee meeting and shared this moving, eye-opening letter about her experience with PANDAS and why we need legislation mandating insurance coverage. Thank you, Reina! bit.ly/2BHSVNM
Southern Oregon PANDAS/PANS retweeted
Don't forget that tomorrow is the next Georgia legislative PANS/PANDAS Study Committee meeting. Sign up on our events page, or if you'd like to testify, PM us.
Southern Oregon PANDAS/PANS retweeted
Here's a chance for your P/P provider, or new providers, to gain education about this disorder. @NeuroimmuneKids' next private group provider webinar features Jennifer Frankovich MD, Rheumatologist from Stanford PANS Clinic, on Nov. 19 at 6pm CST. bit.ly/2MMYvnd
Southern Oregon PANDAS/PANS retweeted
Stolen Childhood, a documentary produced by Novaturient Productions, directed by Christina Magnoli, and written by Sierra Nutkevitch, is now available on Amazon Prime Video and Vimeo OnDemand! Comment to get info on running a screening in your community to spread awareness.
Southern Oregon PANDAS/PANS retweeted
Get this! Research confirming a virus 🦠 connection to onset of severe neurological symptoms! A misdirected immune response?! Say it ain’t so! Could it be? 💡
“The research, published Monday in the journal Nature… instagram.com/p/B38j9DIgUBN/…
Southern Oregon PANDAS/PANS retweeted
PPN will be at the #AAP19 conference providing #PANDAS/#PANS resources to physicians at Booth 124. Dr. Susan Swedo will be available to speak with you & provide resources! pandasppn.org/exhibiting #outreach #OCD #anxiety #behaviorchanges #strep