
ALT "I don't think healthy /not-chronically-ill people realize how many years of your life can disappear while you're waiting to see a new doctor, waiting for test results, waiting for insurance approval, waiting for a new treatment to work and another and another forever." Credit: Lynn @brickandbutton #ChronicIllness #MySeveralWorlds #ChronicIllnessReminders #TheChronicLife #DisabilityMatters

ALT Rosie Barrett, writes on Severe ME and hospital care Rosie Barrett, full time carer for her sister who has very severe ME, writes for ThereForME‘s website about the way that hospitals fail people with ME/CFS and what is needed to support patients better. She writes about the UK but readers from around the world will recognise shared issues. Hospitals should be places of healing – but for people with severe ME, they are often sources of harm. The NHS urgently needs to create sensory-safe spaces. These aren’t ‘nice-to-haves’ – they are essential for people with ME and others with complex neurological conditions. The one-size-fits-all approach to hospital care simply does not work for patients like Alice. from Sensory Hell and Medical Harm by Rosie Barrett on the ThereForME website


























