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Rare Cancer Aware

@RareCancerAware

Our goal is to create meaningful public awareness about rare cancers and to support all those affected through education and dedicated support.

 San Diego, CA
rarecanceraware.com
Joined February 2015
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  • Followers368
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Photo by Rare Cancer Aware (@RareCancerAware)Photo by Rare Cancer Aware (@RareCancerAware)Photo by Rare Cancer Aware (@RareCancerAware)Photo by Rare Cancer Aware (@RareCancerAware)Photo by Rare Cancer Aware (@RareCancerAware)Photo by Rare Cancer Aware (@RareCancerAware)Photo by Rare Cancer Aware (@RareCancerAware)Photo by Rare Cancer Aware (@RareCancerAware)Photo by Rare Cancer Aware (@RareCancerAware)Photo by Rare Cancer Aware (@RareCancerAware)
Our DART rare cancers trial, led by @PatelOncology @Dr_R_Kurzrock @youngkwangchae, is testing immunotherapies in 37 different rare cancer types. Learn more at swog.org/news-events/news/20… or call 1-800-4-CANCER teapawt.net/NCIDirector/status/102…
Dr. Anthony Letai (@NCIDirector) profile pictureDr. Anthony Letai@NCIDirector24 Jul 2018
Cancer is not one disease but many. See this video about more than 500 types of #rarecancers: bit.ly/2NGuS5P
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Great example of local fundraising working with physicians to find ways to potentially improve care for a rare and aggressive type of cancer teapawt.net/CUCancerCenter/status/…
CU Anschutz Cancer Center (@CUCancerCenter) profile pictureCU Anschutz Cancer Center@CUCancerCenter22 Jun 2018
Who would have known that ice cream is what funded research for new developments in treating anaplastic thyroid cancer? Learn more here: ow.ly/V1gG30keDIf
Image from CU Anschutz Cancer Center (@CUCancerCenter)
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Alternative options for patients with GIST after imatinib. #GIST #rarecancer teapawt.net/JAMAOnc/status/9912861…
JAMA Oncology (@JAMAOnc) profile pictureJAMA Oncology@JAMAOnc1 May 2018
Among patients with #imatinib-resistant #gastrointestinalstromaltumor (GIST), #dasatinib demonstrates evidence of activity and may be particularly effective in subset with phosphorylated SRC. Learn more ja.ma/2HLnAv0 #sarcoma #GICSM
Eligibility criteria is one of the hottest topics in cancer research, with @ASCO and @CancerResrch weighing in. @rschilsky will bring the conversation to @SWOG at our October meeting in Chicago. For now, see this great story in @statnews: statnews.com/2018/04/05/clin…
Unnecessary exclusions shut patients out of clinical trials

Unnecessary exclusions shut patients out of clinical trials

Many sick patients are being denied the opportunity to test new drugs that might save their lives. It’s time for this to change.

statnews.com
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We're trying to connect patients again, this time patients with Uterine Sarcoma or with T-cell Prolymphocytic Leukemia (T-PLL). Please share and spread the word, #TeamRare, and if you or someone you know has either please get in touch. ❤️
Image from Rare Cancers Australia (@RareCancers)
Image from Rare Cancers Australia (@RareCancers)
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Rates of Merkel Cell carcinoma, a rare skin cancer, are on the rise. People on immunosuppression are at an increased risk. cancernetwork.com/skin-cance…
More research focused on treating metastatic cancer can lead to insurance actually approving treatments for people. Good stuff. cancernetwork.com/radiation-…
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Great people doing amazing things to support rare cancer research teapawt.net/Cycle4Survival/status/…
Cycle for Survival (@Cycle4Survival) profile pictureCycle for Survival@Cycle4Survival1 Mar 2018
More than $30 million has been raised by the #CycleforSurvival community! The money you raise gives researchers and doctors at @sloan_kettering the power to advance rare cancer research. THANK YOU!
Opportunity for combined immunotherapy treatment for people with rare cancers #immunotherapy #rarecancer teapawt.net/SWOG/status/9667817138…
SWOG Cancer Research Network (@SWOG) profile pictureSWOG Cancer Research Network@SWOG22 Feb 2018
Replying to @_rarecancer
@_rarecancer @MicheleRhee @RareDiseaseDay @CheckOrphan @RareCancerAware @RareCancerRF Our @theNCI rare cancers trial offers immunotherapies. Learn more at swog.org/news-events/news/20… #RareDiseaseDay #ShowYourRare
Image from SWOG Cancer Research Network (@SWOG)
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New treatment approved for gasteroenteropancreatic neuroendocrine tumors cancernetwork.com/neuroendoc…
A new injection combining innate and adaptive immune system signaling, hopefully will play out well in human trials med.stanford.edu/news/all-ne…
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Good job Australia! teapawt.net/dlewis89/status/955918…
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A health system offering free genomic testing to patients with rare or advanced cancer? Now there's a good idea delawareonline.com/story/new…
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Overly restrictive eligibility criteria in many clinical trials frequently excludes the people who best represent the population the drug is intended for. #cancer washingtonpost.com/amphtml/n…
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The bacteria in your gut can alter response to PD-1 #immunotherapy cancernetwork.com/news/gut-b…
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Clinical trial aims to learn if adding #immunotherapy and vaccine to #glioblastoma therapy increases survival rate: cancer.gov/types/brain/resea…
Image from National Cancer Institute (@theNCI)
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Great #immunotherapy combo trial open to many types of rare cancers teapawt.net/PatelOncology/status/9…
Sandip Patel MD FASCO (@PatelOncology) profile pictureSandip Patel MD FASCO@PatelOncology20 Nov 2017
Are there rare tumor slots available in a particular histology on DART? The SWOG DART S1609 Accrual Dashboard by Histology: swogstat.org/accrual/dart.ht… #SWOG #Care4Rare #S1609 #DART
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Potential good combination for treating sarcoma teapawt.net/SarcomaAlliance/status…
Sarcoma Alliance (@SarcomaAlliance) profile pictureSarcoma Alliance@SarcomaAlliance19 Nov 2017
The combination of trabectedin (Yondelis) and nivolumab showed action against several types of sarcoma.... fb.me/IVibC7Ch
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Rare Cancer Aware retweeted
UT MD Anderson (@UTMDAnderson) profile picture
UT MD Anderson
@UTMDAnderson18 Nov 2017
Learn about the different types of #immunotherapy: bit.ly/2hwQdko @OncologNews #CancerMoonShot #endcancer
Image from UT MD Anderson (@UTMDAnderson)
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Rare Cancer Aware retweeted
ASTRO (@ASTRO_org) profile picture
ASTRO
@ASTRO_org16 Nov 2017
We encourage Congressional leaders to preserve access to #Medicare services for America’s seniors and #affordable health insurance for #cancer patients.
Image from ASTRO (@ASTRO_org)
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