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Our goal is to create meaningful public awareness about rare cancers and to support all those affected through education and dedicated support.

San Diego, CA
Joined February 2015
Photo by Rare Cancer Aware (@RareCancerAware)Photo by Rare Cancer Aware (@RareCancerAware)Photo by Rare Cancer Aware (@RareCancerAware)Photo by Rare Cancer Aware (@RareCancerAware)Photo by Rare Cancer Aware (@RareCancerAware)Photo by Rare Cancer Aware (@RareCancerAware)Photo by Rare Cancer Aware (@RareCancerAware)Photo by Rare Cancer Aware (@RareCancerAware)Photo by Rare Cancer Aware (@RareCancerAware)Photo by Rare Cancer Aware (@RareCancerAware)
Our DART rare cancers trial, led by @PatelOncology @Dr_R_Kurzrock @youngkwangchae, is testing immunotherapies in 37 different rare cancer types. Learn more at swog.org/news-events/news/20… or call 1-800-4-CANCER teapawt.net/NCIDirector/status/102…
Cancer is not one disease but many. See this video about more than 500 types of #rarecancers: bit.ly/2NGuS5P
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Eligibility criteria is one of the hottest topics in cancer research, with @ASCO and @CancerResrch weighing in. @rschilsky will bring the conversation to @SWOG at our October meeting in Chicago. For now, see this great story in @statnews: statnews.com/2018/04/05/clin…
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We're trying to connect patients again, this time patients with Uterine Sarcoma or with T-cell Prolymphocytic Leukemia (T-PLL). Please share and spread the word, #TeamRare, and if you or someone you know has either please get in touch. ❤️
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Clinical trial aims to learn if adding #immunotherapy and vaccine to #glioblastoma therapy increases survival rate: cancer.gov/types/brain/resea…
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Rare Cancer Aware retweeted
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Rare Cancer Aware retweeted
We encourage Congressional leaders to preserve access to #Medicare services for America’s seniors and #affordable health insurance for #cancer patients.
A blood test shows promise for detecting #pancreaticcancer at its earliest stages cancer.gov/news-events/cance… #NCICancerCurrentsBlog #archive
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Are you a Gastrointestinal Stromal Tumour (GIST) patient? You may be eligible for this BET inhibitor trial. Details at rarecancers.org.au/trials, just search for NCT01587703. #trials #cancer #COSA17
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We're connecting patients again, this time with T-cell Prolymphocytic Leukemia (T-PLL). Please retweet and spread the word, #TeamRare ❤️
What is CAR T-cell therapy? It involves changing a patient’s immune cells in the lab so they'll attack cancer cells cancer.gov/publications/dict…
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FDA recently approved nivolumab (Opdivo) for some patients with advanced liver cancer: cancer.gov/news-events/cance… #NCICancerCurrentsBlog
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Rare Cancer Aware retweeted
Great presentation @PatelOncology & Dr.Chae at #SWOGonc SWOG DART #Immunotherapy (anti-CTLA-4&anti-PD-1) in #rarecancer @SWOG – at Chicago, IL
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Rare Cancer Aware retweeted
Researchers w/ @UCLAHealth discovered potential combo treatment for glioblastomas by disrupting glucose intake. ucla.in/2xuQdqs
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On the blog: Recent Advances in Measuring Response to Immune Checkpoint Inhibitors. sm.aacr.org/Rhgl30fKJ0m
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Tell Congress that medical research should be a national priority. It only takes a minute! #RallyMedRes #FundNIH thndr.me/5A9txe
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Tumor infiltrating lymphocytes (TILs) levels emerging as marker for higher response to immunotherapy #ESMO17 @myESMO esmo.org/Oncology-News/TIL-L…
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For patients with #cancer displaced by Hurricane #Harvey, NCI's Contact Center and @ASCO are resources: cancer.gov/contact/emergency… #cancer
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September is National Blood Cancer Awareness Month! Visit lymphoma.org/lightitred to learn more. #LightItRed
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Rare Cancer Aware retweeted
Great to see that the @boulter_lab, which is doing so much good work on #cholangiocarcinoma, is expanding! teapawt.net/boulter_lab/status/883…
There is a #wnt #postdoc available in my lab. Vacancy num:040216 more info here: ed.ac.uk/igmm/work-with-us/v…
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