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Spectrum Mum

@SpectrumMumUK

With a child on the #Autistic Spectrum and #PANS #PANDAS, I live and breath special needs. I fundraise and campaign for all things right.

 Wigan, England
panspandasuk.org
Joined September 2014
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Photo by Spectrum Mum (@SpectrumMumUK)Photo by Spectrum Mum (@SpectrumMumUK)Photo by Spectrum Mum (@SpectrumMumUK)Photo by Spectrum Mum (@SpectrumMumUK)Photo by Spectrum Mum (@SpectrumMumUK)Photo by Spectrum Mum (@SpectrumMumUK)Photo by Spectrum Mum (@SpectrumMumUK)Photo by Spectrum Mum (@SpectrumMumUK)Photo by Spectrum Mum (@SpectrumMumUK)Photo by Spectrum Mum (@SpectrumMumUK)
@BPNA_org my son has been horrifically affected by #PANS Antibiotics and ibuprofen have been his lifeline. A #CAMHS psychiatrist referred us to #neurology because his presentation was suggestive of underlying health concerns, yet you think Psychotropic drugs are the answer!! 😭
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This is an appalling case of work related #disabilitydiscrimination to a 22 year old #autistic man. Please HELP him. m.facebook.com/story.php?sto… @WigToday @GranadaReports @thismorning @JeremyVineOn5 @vicderbyshire @lorraine @
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Could any of you imagine coping with tics like Olivia has too, for many the struggle is real, hard, painful and exhausting with no medical care offered, please sign help and sign the petition to change things for them petition.parliament.uk/petit…
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Spectrum Mum retweeted
Neil Clark (@NeilClark66) profile picture
Neil Clark
@NeilClark666 Aug 2021
Remember when ‘Vaccine Passports’ for travel were first announced we were told they would be strictly temporary while Covid lasted. But now Shapps openly says they will be forever. The same, of course, would be the case for domestic vaccine passports too. #NoVaccinePassports
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This should not be on the front page of @thetimes.
Image from Kathy Gyngell (@KathyConWom)
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Replying to @NurseDiane2020 @MRadford_HEECN @drmarkporter @NursingTimes @theRCN @BBCBreaking
I wish the disbelief by professionals and the blame for various neurological issues solely to be due to anxiety was a rare occurrence but unfortunately so many receive a similar response #MECFS #pans #pandas. Devastated, reading this. @BPNA_org what are your thoughts?
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Watch the CME accredited webinar on the role of the adaptive immune system & genetic risk factors for post infectious #encephalitis, #PANDAS, & #PANS. pandasppn.org/cme #research
Image from PANDAS PHYSICIANS NETWORK (@PANDASPPN)
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This is absolutely heartbreaking! 😭
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How many patients locked into our MH system are on drugs that don't work? Who is looking for the root cause of adults neuropsychiatric illness? Misdiagnosed with ASD Bipolar Tourette's anorexia depression & suffering OCD? Could it be #pans #pandas ? facebook.com/groups/31078549…

The International Immune Behavioural Health Support Group for Adults...

Updated 22 October 2022: This group is managed by volunteers of EXPAND, The European Immuno-neuropsychiatric Association. EXPAND is a pan-European...

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Spectrum Mum retweeted
Sarah Hughes (@SHughesDr) profile picture
Sarah Hughes@SHughesDr31 May 2021
“...we have identified a robust serum profile of 19 signature cytokines and growth factors...associated with PANS/PANDAS, representing the first biomarker for this enigmatic disease...” @BPNA_org @PandasPans columbiaagalliulab.org/?page…
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Replying to @AmySwee88869856 @itvnews @rachyoungeritv @NHSuk
Absolutely @AmySwee88869856 tics can be symptom of #Pans #Pandas & should be ruled out to make sure child is on correct treatment pathway. We need these conditions highlighting in the media along with fact that lack of correct treatment is causing unnecessary prolonged suffering
Image from Joanne Holloway (@CharmingAngelCo)
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Replying to @itvnews @rachyoungeritv
@rachyoungeritv @itvnews Important to mention #PANSPANDAS should be investigated as the cause of #tics Many children are suffering with this condition right now without any help from the #NHS @NHSuk
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