Patient forum for individuals with Inflammatory Bowel Disease #crohns #colitis at the UK's National Bowel Hospital, the ground-breaking @StMarksHospital
London, England
Joined October 2015
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The 2023 IBD Patient Survey is now open. Have your say and help improve care standards for all 🙏🏼👍🏼🌟
@StMarksHospital @BowelsOfStMarks @StMarksIBDPP @LNWH_NHS please help to spread the word. We need to hear from as many patients as possible - help us understand the good, and the not so good to ensure our services are meeting the needs of patients
St Mark’s are hosting an IBD Open Day and we’re so excited! 🌟🙏🏼
Click on the link below to register!
Excited to see you there ❤️ Come talk to us to find out more about the Patient Panel’s work. To get on our mailing list, email [email protected].
This year we are delighted to be hosting an IBD Patient day on Saturday 13th May celebrating World IBD day! This event is in partnership with our amazing clinical colleagues & we would love to see you there. The event is free & registration is now live: eventbrite.co.uk/e/ibd-patie…
Look forward to seeing all those who can make tonight’s meeting 👍🏼
If you’d like to join us and don’t have details, please be in touch!
St Mark's IBD Patient Panel retweeted
Are you living with active Crohn's Disease? You might be interested in the ADDapt trial.
Researchers at King's College have designed a low food additive diet, and they're looking for volunteers to try it for 8 weeks to see if it lowers gut inflammation.
Sending love and strength to all the AMAZING nurses at St Mark’s and the LNWH Trust. We’re very lucky to know you and very grateful for your wonderful care 🙏🏼🥰😘
St Mark's IBD Patient Panel retweeted
Meeting your heroes.. an amazing evening at the @BowelsOfStMarks Supporters Event listening to these phenomenal people tell their stories #stmarksfrontiers @NatsWoodward @jasonbacon @OmarFaiz_SETOC
So well deserved 🌟🌟🌟 Big congrats!
Congratulations to our St Mark's Hospital Stoma & Pouch Care Team for winning Highly Commended Association of Stoma Care Nurse (ASCN) UK Stoma Nurse of the Year 2022 Award! #WeAreStMarks @iasupport @colostomyuk @StMarksHospital @PouchRed @StMarksHospital @uoaa @wocnsociety
St Mark's IBD Patient Panel retweeted
Join our Stoma & Pouch Care team on social media this Saturday 01/10/2022 to celebrate this year's Ostomy Awareness Day! @bowelsofstmarks @StMarksHospital @LNWH_NHS @ColostomyUK @iasupport @UOAA @PouchRed @WOCNSociety @TheWCET #ostomy #ileostomy #colostomy #urostomy #pouch
Another chance to help St Marks with their ground-breaking research 💡🩺🤞🏼
If you can spare 10 mins, please contact Lillian!
Thank you 👍🏼
📣 Call out to patients to join the Pouch fistula QoL study📝. Please get in touch via Twitter or email [email protected] if you can spare 10 minutes to complete an online questionnaire @PouchRed @iasupport @StMarksIBDPP @CrohnsColitisUK @ACPGBI_PLG @pavfcos @philtozer1
Another opportunity to contribute to IBD research 💡🩺🤞🏼
✍️Can you help one of our @NCBDresearch research programme partners with a survey ? Whether you have an ileostomy or colostomy, had one or are due to have one , the team @Ostiqueltd would love to hear about your thoughts, experiences & lifestyle.✅ tlfadmin.com/view-survey/sto…
King’s College are recruiting for a new patient study relating to the effect of certain foods on Crohn’s. If it’s of interest, sign up! 💡🩺🥗💩
Researchers at King’s College London are looking for people with mildly active Crohn’s Disease to take part in a study researching how diet can be used to manage active flares and reduce gut inflammation. To take part, go to:
crohnsandcolitis.org.uk/get-…
Some tips from the amazing St Mark’s Stoma and Pouch Care team for navigating this hot weather 🥵💦🙏🏼
With temperatures set to reach record highs, St Mark's Stoma & Pouch Care team share tips for anyone with a stoma or pouch to help you stay hydrated during the hot weather🌞stmarkshospital.nhs.uk/servi…
#WeAreStMarks #stayhydrated💧
@iasupport @StMarksHospital @PouchRed @colostomyuk
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🙌🏼🙌🏼🙌🏼🙌🏼🙌🏼🙌🏼🙌🏼
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#THANKYOU
Massive congratulations to Team IBD and in particular the IBD Biologic Team who went above and beyond last year and thoroughly deserve this recognition! Teamwork makes the dream work eh!! @BowelsOfStMarks @StMarksIBDPP @LNWH_NHS
Huge congrats to @mlcervantesRN.
So well-deserved 🌟🌟🌟
As St Mark’s patients, we’re so grateful for the amazing wraparound care our specialist IBD nurses provide. Thank you 🙏🏼😘
Congratulations @mlcervantesRN - this years recipient of the Richard Driscoll award for IBD nurse excellence! Judged by peers, it’s an endorsement to be proud of. Congrats also to @joseph_babitha and the rest of #TeamIBD at @StMarksHospital - teamwork at its best! 🎉@LNWH_NHS
Rest In Peace @bowelbabe.
Such gratitude for all you did to raise awareness of bowel cancer and all your legacy will continue to do @bowelbabeF
May your memory be for a blessing 🙏🏼😇
Know the signs: bowelcanceruk.org.uk/about-b…
Looking forward to tonight’s Panel meeting 😊 For the link, email us at [email protected].
Join the IBD Patient Panel for their next meeting: 22/06/22, 6-7.30pm
Topics to be covered include
🔸An update on the move to Central Middlesex
🔸Discussion of a new surgical project
🔸The Patient Carers Participation Group
e: [email protected] for the link!
#WeAreStMarks
Excited for next week’s IBD Patient Panel meeting 💡💬
Topics to be covered include:
➡️ An update on the move to Central Middlesex Hospital
➡️ Discussion of a new surgical project
➡️ The Patient Carers Participation Group (PCPG)
Email us for the link: [email protected]
A huge shout out to all those impacted by IBD today. We're thinking of you!
#WeAreStMarks #WorldIBDDay #crohns #colitis #complexboweldisease
#invisibleillness
#breakingthesilence
For more info. about joining the Panel, please be in touch: [email protected].