Health professionals & individuals with lived experience working together to make a difference for those impacted by Inherited Retinal Diseases.
Joined April 2023
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Vision Loss Priority Setting retweeted
Take a look at our page on Vision Loss in Australia to find out more about the latest JLA PSP:
jla.nihr.ac.uk/priority-sett…
The PSP is currently accepting responses to their initial survey: unsw.au1.qualtrics.com/jfe/f…
We look forward to sharing the progress of this PSP with you all!
Vision Loss Priority Setting retweeted
Help us identify the top 10 research priorities for Inherited Retinal Diseases in Australia by participating in this 5 minute survey unsw.au1.qualtrics.com/jfe/f…
@VisionLossPSP
Vision Loss Priority Setting retweeted
1/ I am loving undertaking the @VisionLossPSP w/ a group of passionate individuals w/ #livedexperience - am v thankful for your patience and sharing your experiences with me. See who I am so privileged to work with on this project in the video below:
Vision Loss Priority Setting retweeted
SAVE THE DATE for our 2024 Inherited Retinal Disease Patient Day! An opportunity for patients & families to learn more about research in this space, & connect with other families, clinicians & researchers. Free rego opens soon. Save the date & stay tuned for more info!
Vision Loss Priority Setting retweeted
Proud to "launch" our @LindAlliance #PrioritySettingPartnership #SteeringGroup - a team of consumers, researchers & health professionals, committed to identifying the top 10 research priorities for #InheritedRetinalDiseases. Follow our progress & participation opps @VisionLossPSP
Vision Loss Priority Setting retweeted
We’re excited to be collaborating with the Behavioural sciences unit at UNSW. Bringing patients, carers and researchers together to identify the priorities to better diagnose and treat #InheritedRetinalDiseases. For more info cmrijeansforgenes.org.au/res… @CMRI_AUS
Be a part of shaping the future of research for the diagnosis & treatment of #InheritedRetinalDiseases.
We are proud to be recruiting #steeringgroup members and partner organisations to join our @LindAlliance #PrioritySettingPartnership. For more info:
youtube.com/watch?v=7PTH1HZf…
Vision Loss Priority Setting retweeted
The Stem Cell Medicine Group at Children's Medical Research Institute is collaborating with researchers at the Behavioural Sciences Unit and University of New South Wales to undertake a Priority Setting Partnership (PSP). Learn more below and at bit.ly/IRD-PSP
Be a part of shaping the future of research for the diagnosis & treatment of #InheritedRetinalDiseases.
We are proud to be recruiting #steeringgroup members and partner organisations to join our @LindAlliance #PrioritySettingPartnership. For more info:
youtube.com/watch?v=7PTH1HZf…