@VoiceForIBD

IBD Patient Advocate 💜Hispanic/Latina🇵🇪🇺🇸 #CrohnsDisease & #UlcerativeColitis 🦠 Committed To Finding A Cure🔬🧬 Foundation Nat’l Board of Trustees👩🏻‍💼

instagram.com/voiceforibd
Joined November 2022
  • Tweets1.1K
  • Following911
  • Followers429
478Media
VoiceForIBD retweeted
Maria T. Abreu@ibddocmariaJun 16
Calling all IBD patients! 📢 Join us Sept 27 from 1–5pm for an afternoon of learning, connection & community at the 2026 IBD & Women's Health Conference in LA. Register here: eventbrite.com/e/your-life-y…
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VoiceForIBD retweeted
ACG@AmCollegeGastro3 Oct 2025
This #HispanicHeritageMonth, empower your patients with Spanish language resources and information from ACG! Browse the shareable, printable resources on common GI conditions. 📄 gi.org/patients/brochures ℹ️ gi.org/patients/recursos-en-…
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Women are 3x more likely to develop autoimmune diseases — and IBD is no exception. 🌸 Join our Women’s Health in IBD Conference to explore why gender matters in care. 💪💜 Please register: campaignlp.constantcontact.c… #IBDWomen #WomensHealthIBD #IBDConference
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Next week, Congress will decide: Protect IBD patients or cut health coverage for millions of Americans. Take 30 seconds today to tell your Representative to stand up for those living with Crohn’s disease and ulcerative colitis. Take action with us today: bit.ly/3EJAVXL
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Replying to @doc_ibd
@doc_ibd speaking at #ECCO25 on development of a new classification (Florence) for all IBD. Incredible work by a strong group! @IBDCedarsSinai #ECCO2025
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Urgent: Proposed federal cuts will create a devastating impact on research toward IBD cures and access to care. We need your help – contact Congress now. bit.ly/3QiY6dr
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Always great to see patients like @nataliesparacio and @VoiceForIBD! 🤩 Thanks for being at #CCCongress25 and sharing your patient perspectives! @CrohnsColitisFn
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The NSAC Chair plays a key role in advising the Foundation leadership on strategy & vision for the Foundation’s activities, including research, education, support, and advocacy. Learn more about roles & responsibilities, requirements, timeline, and support bit.ly/47n9F9B
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The whole conference in one slide #AIBD2024 @MRegueiroMD @MLongMD @DrCoreySiegel @NMH_SHanauerMD
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🟣It's Crohn's & Colitis Awareness Week (Dec 1-7)! Let’s shine a light on the 10M+ people 🌎living with #IBD, Crohn’s disease & ulcerative colitis. 💜 Vote for an IBD 🦸🏽‍♂️warrior 🔗tinyurl.com/IBDCC @CrohnsColitisFn @IBDProNews
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Join us for an insightful discussion with Dr. Minesh Patel and our Foundation staff on December 10 to explore the valuable resources available to navigate your IBD journey. You won't want to miss it! Sign up here: bit.ly/3AU97Oi #IBD #CrohnsColitisFoundation
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🙏🏽Pacientes, representantes & cuidadores por compartir vuestro camino.   📡 Debate #PatientExperience sobre el IMPACTO DE LA #EII con @AccuVigo 🗳️ #IBDPolls👇🏽   📣RT & comparte tus 💭! #JuntosMasFuertes #MondayNightIBD
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What a magnifique #MidnightInParis #Friendsgiving w/ @WhatsGabyCookin Remember to cherish the moments & memories that make life so meaningful! ✨ #WGC #WhatsGabyCookin #WhatsThomasEating #WGCFriendsgiving #GabyDalkin #Friendsgiving2024 #LeCreuset #CrateAndBarrel #LittleCityFarm
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Tell your spanish-speaking patients with IBD! Tom we discuss #IBD101, #Diet for IBD & #mental health for our IBD #Hispanic/LatinX community Compartan con sus pacientes con EII! @UMiamiHealth
VoiceForIBD@VoiceForIBD8 Sep 2024
Atención‼️ El @CrohnsColitisFn va tener un webinar en #espanol para los #pacientes viviendo con la #EII el martes 17 de septiembre 📆 con @SandraQuezadaMD @oridamas y el Dr. Murtuza! Compartan con sus pacientes de habla español 🇪🇸 Registrase aquí: bit.ly/4dInD9U
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Your voice matters! The Foundation is conducting an IBD Disease Prevention Survey, and we want to hear from you. If you or a loved one has IBD, share your thoughts on preventing Crohn's disease and ulcerative colitis at the link: bit.ly/4gueX8U
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#AHNSummit25 @AHNGastro 💎Let’s Stop telling pts w #IBD to eat a low fiber diet ! @GIdietitian breaks down #Fiber rich food: ✅The ones that help w diarrhea or constipation, or cause more gas ✅The ones OK to use during flare, remission, or stricture 📸Saving those slides👇🏽
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🆕 on @IBDJournals: actionable steps to better screen, manage, and treat #mentalhealth in #IBD patients >> Consensus Statement on Managing #Anxiety and #Depression in Individuals with #InflammatoryBowelDisease: doi.org/10.1093/ibd/izae151 #IBDPro #letsgothere
Consensus Statement Highlights 1. Initiate and maintain conversations regarding mental and emotional well-being with patients to provide information and support regarding the bidirectional relationship between and co-occurrence of anxiety and depression and IBD. 2. Routinely screen all IBD patients for mental and emotional well-being. 3. Seek out educational opportunities on how to effectively respond to patients who disclose or screen positive for anxiety and depression symptoms. 4. Demonstrate competence in the ability to have an informed conversation with patients regarding various evidence-based treatment approaches for anxiety and depression and effects of treatment approaches. 5. Identify, maintain, and share a list/database of resources (eg, mental health providers, websites, apps) that patients can access to manage and treat their anxiety and depression symptoms. 6. Encourage patients to pursue evidence-based treatment approaches for symptoms of their anxiety and depression.

ALT Consensus Statement Highlights 1. Initiate and maintain conversations regarding mental and emotional well-being with patients to provide information and support regarding the bidirectional relationship between and co-occurrence of anxiety and depression and IBD. 2. Routinely screen all IBD patients for mental and emotional well-being. 3. Seek out educational opportunities on how to effectively respond to patients who disclose or screen positive for anxiety and depression symptoms. 4. Demonstrate competence in the ability to have an informed conversation with patients regarding various evidence-based treatment approaches for anxiety and depression and effects of treatment approaches. 5. Identify, maintain, and share a list/database of resources (eg, mental health providers, websites, apps) that patients can access to manage and treat their anxiety and depression symptoms. 6. Encourage patients to pursue evidence-based treatment approaches for symptoms of their anxiety and depression.

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So thankful for Rocio and how she uses her voice! We want to hear from #IBDologists and patients alike on how to make the greatest impact in the fight against #IBD. #GITwitter
VoiceForIBD@VoiceForIBD2 Aug 2024
Every 4 yrs, the @CrohnsColitisFn develops a #strategicplan to focus priorities on areas that will have the greatest #impact👊🏼 We’re currently seeking comments from all #IBD constituents #patients #caregivers, #HCPs #volunteers from 8/1-8/22! Listen 👂🏼 Draft Plan 🔗 is below👇🏼
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⏰Make a 🌟splash🌟 on back to school night this fall ! 🗞️Submit your work by Nov 1 to #CC360 @IBDJournals Special series 🎯#EIM in #IBD 🔺From “classical” (joints, skin,eyes..) to under-recognized EIM (orofacial, dental, CV, fatigue, kidney stones..) academic.oup.com/crohnscolit…
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.@VoiceForIBD is awesome! Very cool to get a glimpse into the partnership she has with Dr. Parekh (one of our many amazing Professional Members!)
UCI Health@UCIrvineHealth15 Jul 2024
Meet Rocio Castrillon, a true inspiration in the fight against Crohn's disease and for patient advocacy. Today, Rocio is deeply committed to expanding access to quality information and support services. Learn more at bit.ly/3z753sE
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