SICK WITH M.E SINCE 1996. CAUGHT LYME IN 2014. NO TREATMENT FOR EITHER. EVERYONE DESERVES TREATMENT 💙💚
Joined April 2009
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- Following4.3K
- Followers2.2K
- Likes9.6K
supportinginvestinme retweeted
Just a reminder of why we're doing what we're doing today @GeorgeMonbiot @TimesONeill @iEllieFry @BBCHughPym #SaveCarlasLife #ExposeMENow
CW: distressing
We want you to meet Carla #SaveCarlasLife #ExposeMENow
With family's permission we're sharing some videos of her experience in West Middlesex hospital.
This first video is what happens when she is exposed to bright light. Staff won't cover the door window.
supportinginvestinme retweeted
Thank you so much to everyone who supported us online today - trending at number two is remarkable. Lucy and Abbie send their love and we'll update you on any developments throughout the day #BringMillieHome #DontLetMEDie We're off to get warm now
supportinginvestinme retweeted
Update about Millie
Petition
change.org/p/save-millie-s-l…
Fundraiser
justgiving.com/crowdfunding/…
#BringMillieHome #MilliesevereME #SevereME #pwME #saveMillie
supportinginvestinme retweeted
Torture may seem extreme to those without ME but I can't think of a more appropriate word. I have never been in hospital but know the agony the smallest movement, quietest sound, minimal light, softest touch can be. When that continues it's torture.
#BringMillieHome #DontLetMEDie
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supportinginvestinme retweeted
#SevereME -18 year old Millie is deteriorating rapidly in hospital due to their continuous psychologising of her very severe ME #BringMillieHome #DontLetMEDie @gmcuk @rcphysicians
@rcpsych @NHSuk
🔹A parents worse nightmare
🔹A child severely ill, they can't eat, move or tolerate sensation
🔹Yet instead of care, investigations treatment
🔹Disbelief - Dismissal - Danger
🔹Social services - Psych assessments - Patient Blame
🔹This must stop
#DontLetMEDie #BringMillieHome
supportinginvestinme retweeted
They're back online #BringMillieHome #DontLetMEDie
supportinginvestinme retweeted
5 Star luxury, white sand, crystal clear warm waters. Total pure Fijian paradise.
supportinginvestinme retweeted
My simple message is the world needs to wake up to Myalgic Encephalomyelitis.
I was hospitalised in 2006 it was horrendous. Lot of the treatment questionable. I live with the trauma now.
How is the treatment still like this 18yrs later?
#BringMillieHome #DontLetMEDie
@gmcuk
supportinginvestinme retweeted
#BringMillieHome is trending at #2 in the UK. Please keep using the hashtag and #DontLetMEDie to fight the abuse of Millie McAish and people with M.E all over the UK.
ALT United Kingdom trends. 1. Trending #Eclipse2024 2. Politics-Trending #BringMillieHome Trending with #DontLetMEDie #SevereME
supportinginvestinme retweeted
#BringMillieHome #DontLetMEDie
@RCPhysicians @rcpsych @gmcuk we demand you publicly support the 2021 NICE guidelines for M.E. #MEcfs & reject the BPS model for ME & GET immediately.
Your refusal to do so is leading to a catastrophic absence of life saving care for #pwME
supportinginvestinme retweeted
Sophia Mirza was wrongfully sectioned in 2003 because doctors didn't understand #MECFS. This caused a deterioration which ultimately led to her death. 20yrs later and it happened to Millie. It has been lifted but Millie continues to be mistreated.
#BringMillieHome #DontLetMEDie
supportinginvestinme retweeted
My simple message is the world needs to wake up to Myalgic Encephalomyelitis.
I was hospitalised in 2006 it was horrendous. Lot of the treatment questionable. I live with the trauma now.
How is the treatment still like this 18yrs later?
#BringMillieHome #DontLetMEDie
@gmcuk
supportinginvestinme retweeted
Millie is in 🏥 suffering from gastroparesis caused by severe #MyalgicEncephalomyelitis. Drs insist she has an eating disorder. There's a risk she could starve to death if she's forced to stay there + not treated properly. Pls #BringMillieHome. #DontLetMEDie @gmcuk @RCPhysicians
supportinginvestinme retweeted
Please all sign and publicise this, it is very much needed as there are NO PROTOCOLS to treat SEVERE ME in the #NHS NO PROTOCOLS! That is ridiculous! A disease that has existed for decades that people are dying from and the NHS has no provision for it?!
Please sign and share.
Despite undisputable biological evidence of severe neuro-immune disease #MECFS, NHS cont’ to psychologise & fail severe patients like Millie #BringMillieHome #DontLetMEDie @VictoriaAtkins @TheSun @gmcuk @rcpsych @MetroUK We DEMAND a protocol 4 severe ME organise.network/actions/pet…
supportinginvestinme retweeted
With #MEcfs it's dangerous to go to the hospital. But Millie had no choice. She needed life saving help. But she is treated by doctors who have no clue about her illness + refuse to listen to experts, making her sicker in horrible ways 💔
#BringMillieHome #DontLetMEDie
supportinginvestinme retweeted
Lots of things go well in healthcare but with ME things can often go awfully wrong as well. Even to the point of people dying. We now see the same happening with Millie. #DontLetMEDie
Ignorance, neglect and abuse shouldn't be part of Health Care.
Please #BringMillieHome
#pwme
supportinginvestinme retweeted
#BringMillieHome #DontLetMEDie @gmcuk @RCPhysicians @rcpsych @RachelMaskell @JulianSturdy @GMB Millie went to hospital for a simple procedure & has been held for months against her will bc they believe she has a psychological disorder rather than M.E. she’s been diagnosed with
supportinginvestinme retweeted
Live from outside the Royal Lancaster Infirmary for Millie #BringMillieHome #DontLetMEDie teapawt.net/i/broadcasts/1jMJgmdMN…
supportinginvestinme retweeted
We are so grateful for all the support from the community, Millie’s family would like to share the below update.
#BringMillieHome #MilliesevereME #SevereME #pwME #saveMillie
ALT Black background with white writing: Update from Millie’s family: Millie’s family are extremely grateful for the outpouring of support and solidarity that the community has shown Millie. Millie’s ME is deteriorating in hospital and she is desperate to be in the calm and safe environment of her home with an appropriate feeding solution ASAP. Millie and her family are thankful to supporters for raising awareness. They ask that all messages please remain factual, respectful and highlight the most robust research about Myalgic Encephalomyelitis. Please be mindful that it is not helpful to Millie or her situation if messages towards staff or the hospital are abusive.