AUTHOR/ACTIVIST/EPILEPSY AWARENESS ADVOCATE Writing about/fighting for disability rights, patient self-advocacy, and the challenges of living with epilepsy.
Somerville, MA
Joined August 2014
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Increase @epilepsyawareness Law Enforcement Officials’ Ignorance About Epilepsy Is Fatal: Inappropriate response to 26-year-old Rhyker Earl’s tonic clonic seizure leads to his death two days later: Law Enforcement Officials’ Ignorance About Epilepsy Is Fatal - Laura Beretsky
Technological advances are increasing surgical options for children with refractory epilepsy in some parts of the world, but access is still ten years behind in developing countries like India. More on my blog: lauraberetsky.com/the-brain-…
Viktorija Senkute, won the 1st ever Bronze medal for Lithuania, making her a local hero. Along with Beth Dobbin and Imogene Clark, she’s an #Epilepsy Ambassador, using her status to elevate #epilepsy awareness. Link: lauraberetsky.com/celebratin…
Whether or not to drive if you have epilepsy is a personal decision to be made with input from one’s neurologist. Remember: disregarding the neuro’s advice can be tragic and fatal. More on my blog: lauraberetsky.com/low-profil…
This week, Dr. Rasian’s neurosurgery team received FDA approval for a clinical trial to test new pre-surgery brain-mapping technology that could increase brain surgeries’ success and safety. More on my blog: lauraberetsky.com/anniversar…
A study by Epilepsy Climate Change’s co-founder, Dr. Sisodiya evaluating climate change’s impact on neurological disorders found clear evidence of climate change’s impact on brain conditions, including #epilepsy. lauraberetsky.com/epilepsy-a…
Harvard-based neuroscience team research efforts led to the first ever digital brain map, which will advance cures for neurological conditions like #epilepsy. These kaleidoscopic brain images are from the team's gallery. Gallery link is in my latest blog: lauraberetsky.com/surgeries-…
Happy Mother's Day. Paul Karrer’s poignant commentary (msn.com/en-us/health/other/o…) inspired this blog about the challenges facing parents with #epilepsy, and the children they care for. lauraberetsky.com/balancing-…
While new funding is being allocated for critical epilepsy research and advances, in Uganda people with epilepsy can’t even access medication. More info here: lauraberetsky.com/sharing-th…
Florida IS purple: In time for #PurpleDay Gov. DeSantis updated the state’s budget stabilizing epilepsy services, a boon for #epilepsyawareness, as it enables org's like #epilepsyallianceflorida to support the 360,000 Floridians with epilepsy. More here: lauraberetsky.com/yes-florid…
Honor @IntEpilepsyDay by advocating for more Epilepsy Centers and celebrating the National Association of Epilepsy Centers’ updated guidelines, a boon for #EpilepsyQualityCare. lauraberetsky.com/happy-inte…
These stories about UK anti-seizure medication shortages UK are scary! As a parent who raised my kids while managing uncontrollable #seizures, I was struck by challenges the UK economy is presenting to those with #epilepsy. lauraberetsky.com/uk-drug-sh…
