AUTHOR/ACTIVIST/EPILEPSY AWARENESS ADVOCATE Writing about/fighting for disability rights, patient self-advocacy, and the challenges of living with epilepsy.
Somerville, MA
Joined August 2014
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Increase @epilepsyawareness Law Enforcement Officials’ Ignorance About Epilepsy Is Fatal: Inappropriate response to 26-year-old Rhyker Earl’s tonic clonic seizure leads to his death two days later: Law Enforcement Officials’ Ignorance About Epilepsy Is Fatal - Laura Beretsky
Technological advances are increasing surgical options for children with refractory epilepsy in some parts of the world, but access is still ten years behind in developing countries like India. More on my blog: lauraberetsky.com/the-brain-…
Viktorija Senkute, won the 1st ever Bronze medal for Lithuania, making her a local hero. Along with Beth Dobbin and Imogene Clark, she’s an #Epilepsy Ambassador, using her status to elevate #epilepsy awareness. Link: lauraberetsky.com/celebratin…
Whether or not to drive if you have epilepsy is a personal decision to be made with input from one’s neurologist. Remember: disregarding the neuro’s advice can be tragic and fatal. More on my blog: lauraberetsky.com/low-profil…
This week, Dr. Rasian’s neurosurgery team received FDA approval for a clinical trial to test new pre-surgery brain-mapping technology that could increase brain surgeries’ success and safety. More on my blog: lauraberetsky.com/anniversar…
myepilepsyteam.com epilepsytalk.com efa.org CURE Epilepsy, cureepilepsy.org/ Also, many FB discussion pages including Adults with Epilepsy, Defeating Epilepsy, Epilepsy Seizures/Let's Discuss It, Now What Epilepsy Support Grp
A study by Epilepsy Climate Change’s co-founder, Dr. Sisodiya evaluating climate change’s impact on neurological disorders found clear evidence of climate change’s impact on brain conditions, including #epilepsy. lauraberetsky.com/epilepsy-a…
No, because one is still medication-reliant. That's why funding epilepsy research is so critical, until they find a genuine cure. lauraberetsky.com/epilepsyth…
Harvard-based neuroscience team research efforts led to the first ever digital brain map, which will advance cures for neurological conditions like #epilepsy. These kaleidoscopic brain images are from the team's gallery. Gallery link is in my latest blog: lauraberetsky.com/surgeries-…
Happy Mother's Day. Paul Karrer’s poignant commentary (msn.com/en-us/health/other/o…) inspired this blog about the challenges facing parents with #epilepsy, and the children they care for. lauraberetsky.com/balancing-…
I had a kiwi-sized portion of my brain resected--TOTALLY scary, led to a subdural hematoma, a 2nd brain surgery and an end to my seizures. Glitchy, but worth the trip. Such a wild ride I had to write a book about it, hoping to raise epilepsy awareness: lauraberetsky.com/book-relea…
While new funding is being allocated for critical epilepsy research and advances, in Uganda people with epilepsy can’t even access medication. More info here: lauraberetsky.com/sharing-th…
I am delighted to share that Citizens United to Research Epilepsy featured an interview with me on their monthly podcast, Seizing Life. CURE's mission is finding a cure for Epilepsy, a condition that’s been around for millennia but still has no cure: cureepilepsy.org/seizing-lif…
Florida IS purple: In time for #PurpleDay Gov. DeSantis updated the state’s budget stabilizing epilepsy services, a boon for #epilepsyawareness, as it enables org's like #epilepsyallianceflorida to support the 360,000 Floridians with epilepsy. More here: lauraberetsky.com/yes-florid…
Honor #IntEpilepsyDay and #Epilepsy awareness by advocating for more Epilepsy Centers and celebrating the National Association of Epilepsy Centers’ updated guidelines, a boon for #EpilepsyQualityCare. lauraberetsky.com/happy-inte…
If you have refractory seizures, be sure your neurologist is also an epileptologist, ie neuro who specializes in epilepsy. There's a list of them here by state: Find Top Epileptologists by State. (webmd.com)
Honor @IntEpilepsyDay by advocating for more Epilepsy Centers and celebrating the National Association of Epilepsy Centers’ updated guidelines, a boon for #EpilepsyQualityCare. lauraberetsky.com/happy-inte…
Best of luck with the testing. That part can be grueling--may even require that you travel--but it's important.
Did your neurologist run pretests to determine that brain surgery is a safe viable option? If not, be sure to do that first. There's more about my surgery experience on my website: lauraberetsky.com/my-story/ I literally wrote a book about it, which is also available on my website.