Fighting ALS while loving the people who live with it. All thoughts and tweets are strictly my own.
Joined March 2011
- Tweets1.8K
- Following525
- Followers432
- Likes4.7K
Thank you @Juleshighoctane !!! Everyone at @ALSTDI is sooo grateful, and sending you guys so much love!!
Join me in battling #ALS by donating to the ALS Therapy Development Institute: als.net/donate. If you're unable to donate, spreading the word also helps - use the hashtag #ALS to help raise awareness and support the cause. Big shout out and much love to Maria and Jules!
Thank you MA and Jules for sharing your trust in @ALSTDI !
An anonymous donor will be matching all donations made because of you!!
Join me in battling #ALS by donating to the ALS Therapy Development Institute: als.net/donate. If you're unable to donate, spreading the word also helps - use the hashtag #ALS to help raise awareness and support the cause. Big shout out and much love to Maria and Jules!
Carol Hamilton retweeted
In response to @ConanOBrien’s desire to speed research for ALS at @ALSTDI, an anonymous donor has pledged to match all donations made up to $25,000, in response to his wonderful tweet! als.net/donate/?soc=conan
Join me in battling #ALS by donating to the ALS Therapy Development Institute: als.net/donate. If you're unable to donate, spreading the word also helps - use the hashtag #ALS to help raise awareness and support the cause. Big shout out and much love to Maria and Jules!
Carol Hamilton retweeted
Thank you @ALSTDI for an incredible discussion and tour this morning highlighting your work in ALS drug discovery and scientific research! We are thankful to partner in the quest to #endALS together. #livelikelou #alstdi #ALSresearch #lougehrigsdisease
Carol Hamilton retweeted
Join us for an exciting Town Hall unveiling the innovative ALS Trial Navigator – a comprehensive resource designed to empower individuals and caregivers in navigating the complex landscape of ALS clinical trials. You can register for this session here: als.net/als-town-hall/
Carol Hamilton retweeted
In Nevada, we got to stop at HUDL Brewing Company in Las Vegas for a road trip kick-off party and visited our friends Skip, Joe, and Teresa! 🌵 🍻 Find out where the RV is now here: rb.gy/n7pbny
Carol Hamilton retweeted
How can you help? DM us your favorite brewery and their contact info and we will invite them to join our program and try and get them added to one of our routes! Read the announcement to learn more about the roadtrip here: als.net/news/announcing-the-…
Carol Hamilton retweeted
It’s time! We are thrilled to officially announce the Ales for ALS Roadtrip Across America, and to FINALLY show off the @AlesforALS RV that has hit the road with National Director of the Ales for ALS program, Mike Shannon. als.net/news/announcing-the-…
Carol Hamilton retweeted
Mike joined us at the Tri-State Trek this past June and we won't stop trekking until we find treatments for him and everyone with ALS. #GivingTuesday #EndALS als.net/donate/givingtuesday…
"My name is Mike. I am a 31-year-old neurologist, and in March of 2023, I was diagnosed with ALS." Read Mike's story here: als.net/news/giving-tuesday-… Donate to ALS research here: als.net/donate/givingtuesday…
Carol Hamilton retweeted
We loved getting to show our friend Hop, from @HopOnACure and @zacbrownband, around the labs at @ALSTDI! Recently, Hop On A Cure gave a grant of $100,000 to go towards helping us expand the ARC study. You can learn more about ARC here: als.net/arc/
Carol Hamilton retweeted
To capture the essence of what makes the White Coat Affair so special, ALS TDI asked community members who attended last year’s event to share their thoughts on the significance of the White Coat Affair, and what keeps them coming back. als.net/news/magic-of-the-wh…
Carol Hamilton retweeted
We can't wait to see everyone this Sunday at the ALS TDI Walk for Research!!! You can still register to join us in Newton, MA here: fundraise.als.net/walkforres…
Calling all kids! Join the awesome Brady Yozwiak in his efforts to Rake For ALS!!
Who’s in?!! 🍂🍁🌿ALS 🔚
Jen and Brady’s project began simply. They named their raking business “Clayton Rakes,” after the name of their street. Then, word got out about their mission to support ALS TDI, and they raised more than $60,000 for ALS research! Read more here: als.net/news/rake-for-als/
Grateful to all of the people with ALS who have contributed data to make this collaborative work possible.
#ALSReseachCollaborative
Let’s do this @Team_Thriving and @RyansMom2 !
ALS TDI is pleased to announce we have received a substantial grant from the CDC, $480,000 annually for up to three years, to initiate a comprehensive research project dedicated to identifying the lifestyle risk factors associated with ALS. Learn more: als.net/news/als-tdi-awarded…
Carol Hamilton retweeted
Study by @ALSTDI and MGH Reveals New Potential for Use of Accelerometers In Tracking ALS Disease Progression. These promising findings could have significant implications for the use of accelerometers as outcome measures in ALS clinical trials. nature.com/articles/s41467-0…
Carol Hamilton retweeted
There is still time to register for tomorrow's ALS Town Hall to learn more about our new collaboration with @UniteGenomics ! als.net/als-town-hall/
We are so grateful to @HopOnACure for their incredible support of the @ALSTDI ALS Research Collaborative (ARC)!
Thank you!!
This lady blows my mind. ❤️ you, @LorrisPodcast
We are in AWE of our friend, Lorri, host of the "I'm Dying to Tell You" podcast and person living with ALS for 19 years, who just completed 400 miles for her virtual Tri-State Trek! Here you can read more about Lorri, her ride, and her drive to #EndALS: als.net/news/lorri-carey-tri…
Carol Hamilton retweeted
The ALS TDI Leadership Awards are presented to people who have been nominated by our community in recognition of their exemplary leadership in the ALS space. Nominations for the 2023 Leadership Awards will be collected through September 4th. als.net/news/als-tdi-2023-le…
