Qingyang Li (@conge) profile picture

Qingyang Li

@conge

Rare disease advocate for Familial Chylomicronemia Syndrome. https://teapawt.net/t.co/E9tpMxIHOX Run, read, meditate, write: https://teapawt.net/t.co/u53S0fsPhV

 Seattle, WA
Joined March 2008
  • Tweets7.9K
  • Following1.5K
  • Followers671
316Media
Photo by Qingyang Li (@conge)Photo by Qingyang Li (@conge)Photo by Qingyang Li (@conge)Photo by Qingyang Li (@conge)Photo by Qingyang Li (@conge)Photo by Qingyang Li (@conge)Photo by Qingyang Li (@conge)Photo by Qingyang Li (@conge)
The 3rd Annual FCS Summit brought our amazing FCS community together in Milwaukee for learning, laughter, and shared experiences. From inspiring presentations to meaningful conversations, this Summit reminded us how strong we are when we come together. #LivingWithFCS
Image from The Foundation for Triglyceride Disorders (@TGDisorders)
Image from The Foundation for Triglyceride Disorders (@TGDisorders)
Image from The Foundation for Triglyceride Disorders (@TGDisorders)
Image from The Foundation for Triglyceride Disorders (@TGDisorders)
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FCS is a disorder in which the body cannot properly break down triglycerides. The Foundation for Triglyceride Disorders helps connect patients with caregivers and clinicians to provide education, resources, and community. ow.ly/zCH450ZV97f #FCS #TGDisorders #livingwithFCS
Image from The Foundation for Triglyceride Disorders (@TGDisorders)
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Today, celebrating 10 years of progress, the FCS Foundation officially becomes The Foundation for Triglyceride Disorders 🎉 Same mission. Bigger reach — FCS, MCS, sHTG, TiP & more. No one should navigate this alone. tgdisorders.com/ #TriglyceridDisorders #FCSFoundation
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Qingyang Li retweeted
Qingyang Li (@conge) profile picture
Qingyang Li@congeApr 29
The Fred Saremi Memorial FCS Foundation Virtual 5K livingwithfcs.networkforgood…
The Fred Saremi Memorial FCS Foundation Virtual 5K

The Fred Saremi Memorial FCS Foundation Virtual 5K

The FCS Foundation mission is to establish a global support network to promote advocacy and education for patients and caregivers living with FCS. The FCS Foundation provides patients, caregivers,...

livingwithfcs.networkforgood.com
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Join Community Connections 💬 A supportive virtual space for people living with #FCS & caregivers, guided by rare disease psychologist Dr. Al Freedman. 🗓 May 13, 2026 | 6–7:30 PM ET Connect, share, or just listen. ow.ly/kGn450YYjtt Thanks to @ionispharma & @ArrowheadPharma
Image from The Foundation for Triglyceride Disorders (@TGDisorders)
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Qingyang Li retweeted
Ionis (@ionispharma) profile picture
Ionis@ionispharma25 Sep 2025
We’re thrilled our medicine for familial chylomicronemia syndrome (FCS) has been shortlisted for the @Citeline 2025 #ScripAwards in the Best New Drug Award category. We are honored to be recognized! citeline.com/en/awards/scrip… #LivingwithFCS #RareDisease
Image from Ionis (@ionispharma)
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Qingyang Li retweeted
Ionis (@ionispharma) profile picture
Ionis@ionispharma17 Sep 2025
Severe hypertriglyceridemia (sHTG) occurs when triglycerides exceed 500 mg/dL, posing risks such as acute pancreatitis and cardiovascular disease. HCPs, learn more: tgaware.com/associated-risks…
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Qingyang Li retweeted
梅西Mercy (@Mercy_okx) profile picture
梅西Mercy
@Mercy_okx1 Sep 2025
对话V2EX创始人Livid：从60块钱比特币说起，「他」和「他们」的十四年

对话V2EX创始人Livid：从60块钱比特币说起，「他」和「他们」的十四年

Article · @Mercy_okx
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Livid (@Livid) profile picture
Livid
@Livid5 Aug 2025
a month
Image from Livid (@Livid)
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SIGN UP for the FCS Foundation Virtual 5K Help raise awareness for Familial Chylomicronemia Syndrome (FCS) a rare genetic disorder. 📅 June 11, 2025 📸 Share your pics with #livingwithFCS #FCS2025K 🔗 survey.alchemer.com/s3/82859…
Image from The Foundation for Triglyceride Disorders (@TGDisorders)
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Qingyang Li retweeted
RuShiWoWen (@BuddhistSay) profile picture
RuShiWoWen@BuddhistSay25 May 2025
分享自《佛说解忧经》 rushiwowen.co/r/cmajnef0i000… 来自 如是我闻 - AI 帮你读佛经
Image from RuShiWoWen (@BuddhistSay)
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📣NEW expert clinical review from the NLA on #FCS. 📄Read the full-length article: ow.ly/rhJK50VBAv7
Image from National Lipid Association (@nationallipid)
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Thank you to our member partners: @foundationofnla @nationallipid @ASPCardio @livingwithfcs @TheAACE Learn more: nationaltriglyceridealliance…
Front Page - National Triglyceride Alliance

Front Page - National Triglyceride Alliance

The National Triglyceride Alliance is an independent working group dedicated to creating a healthcare landscape where the treatment of high triglycerides becomes a core tenet of patient care. WHO WE...

nationaltriglyceridealliance.com
National Triglyceride Alliance (@NatTgAlliance) profile pictureNational Triglyceride Alliance
@NatTgAlliance28 Mar 2025
The National Triglyceride Alliance has formed! We are dedicated to the advancement of clinical practice in the management of high TGs + stand at the forefront of educating + advocating 4 the proactive treatment of high TGs. Supported by: @ionispharma @ArrowheadPharma @Amarincorp
Image from National Triglyceride Alliance (@NatTgAlliance)
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Qingyang Li retweeted
Ionis (@ionispharma) profile picture
Ionis@ionispharma1 Nov 2024
For someone #livingwithFCS (familial chylomicronemia syndrome), every meal can be a challenge. To close out #FCSAwarenessDay, watch to understand how an evening out can cause anxiety. To learn more, visit: livingwithfcs.org/patient-st….
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#Depression and #anxiety are common among people #livingwithFCS. A very restrictive diet makes eating stressful, and is a constant reminder of the risk of #Pancreatitis #FCS10gFatChallenge requires of you to follow a strict low in all fats diet for just 1 day. #FCSAwareness
Image from FH Europe Foundation (@fhpatienteurope)
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The rarest day of the year is finally here: it's #RareDiseaseDay! 🦓 Tag us in your posts today as you #ShowYourStripes and check out our website to add to our "Faces of Rare" dedication wall, download social media graphics, and more: bit.ly/2BrULms🦓
Blue background with text reading, "Today is Rare Disease Day. Show Your Stripes for the 1 in 10 Americans with a rare disease." with cartoon zebras and NORD and Rare Disease Day logos.

ALT Blue background with text reading, "Today is Rare Disease Day. Show Your Stripes for the 1 in 10 Americans with a rare disease." with cartoon zebras and NORD and Rare Disease Day logos.

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Ionis Pharmaceuticals ( @ionispharma ) announced that #Olezarsen received #OrphanDrugdesignation from #FDA for familial #chylomicronemia #syndrome - please check the link for more information ow.ly/Wfir50QCP95 #rarediseases #orphandrugs
Image from Rare Diseases (@CheckOrphan)
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Qingyang Li retweeted
MrBeast (@MrBeast) profile picture
MrBeast
@MrBeast22 Jan 2024
I’m gonna give 10 random people that repost this and follow me $25,000 for fun (the $250,000 my X video made) I’ll pick the winners in 72 hours
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Qingyang Li retweeted
Action FCS (@ActionFCS) profile picture
Action FCS@ActionFCS3 Nov 2023
Demonstrating one of the difficulties of eating away from home #fCSAware2023 #FCS10gFatChallenge @fhpatienteurope
Image from Action FCS (@ActionFCS)
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Qingyang Li retweeted
Jill Prawer (@JillP358) profile picture
Jill Prawer@JillP3583 Nov 2023
Supper of gnocchi, passata, courgette, onion, garlic, shitake mushroom, herbs and a bit of low-fat ham. Yum! >1.5g fat. Had another coffee, 2 apples and a satsuma, a crumpet and marmelade (2.1g fat). Day total >8g fat #FCS10gFatChallenge #FCSAware2023 @ActionFCS @fhpatienteurope
Image from Jill Prawer (@JillP358)
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