Raising awareness of cerebrospinal fluid (CSF) leaks * Spontaneous Intracranial Hypotension #SIH / CSF-venous fistula *Iatrogenic Leaks / Chronic PDPH
Joined May 2021
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Upright headache? Think CSF Leak... watch this video to find out more: Upright Headache - my spinal CSF leak youtu.be/TJS2g6DNfHA via @YouTube
CSF Leak Awareness Ireland retweeted
“I felt like my head was going to explode. I never imagined it would feel so terrifyingly real.”
Meet Bernadette, a Dr who suffered a CSF Leak.
Links in the comments
#cerebrospinalfluidleak
#spinalcsfleak
#cranialcsfleak
#intracranialhypotension
#doctor
CSF Leak Awareness Ireland retweeted
This was a truly incredible meeting showcasing the cutting edge of CSF leak care, and bringing together experts from around the globe in one forum to improve care for this important condition.
Thank you to my co-president @WouterSchievink for helping to make this happen.
CSF Leak Awareness Ireland retweeted
@JrgenBeck again shows why he is a master of surgery for #spinalcsfleak
@issclsociety Inaugural Meeting
CSF Leak Awareness Ireland retweeted
@KathaDCwolf presents very interesting data from across a spectrum of CSF disorders @issclsociety Inaugural Meeting
CSF Leak Awareness Ireland retweeted
@DrIanCarroll telling us what is new in Anesthesiology in CSF leak including #PDPH @issclsociety Inaugural Meeting
CSF Leak Awareness Ireland retweeted
Dr. Matt Robbins leads off the Inaugual @issclsociety Meeting in NYC with a New York perspective on #spinalcsfleak
CSF Leak Awareness Ireland retweeted
❗️Act to prevent CSF leaks from medical procedures
#BackCareAwarenessWeek, spotlight on CSF leak prevention:
✅ Atraumatic needles cut PDPH risk from 11% → 4%¹
✅ 26G optimal for spinal anaesthesia²
❌ LP just to confirm low ICP not advised³
🔗 [ jnnp.bmj.com/ ]
CSF Leak Awareness Ireland retweeted
For medical professionals and patients interested in spinal CSF Leak, @issclsociety encourages you to consider attending the Bridging the Gap conference Nov 14-15, 2026 put on by @spinalCSFleak and @AndrewCallenMD
More info here:
isscl.org/meetings
CSF Leak Awareness Ireland retweeted
Endoscopic surgery for ventral CSF leaks has emerged as a minimally invasive alternative to classic intradural surgery. Both have pros and cons, but the alternate approach may be ideal for patients who have failed the initial surgery @spinalCSFleak pubmed.ncbi.nlm.nih.gov/4282…
CSF Leak Awareness Ireland retweeted
🧠 UK CSF Group Meeting 2026
Join us for the official meeting, bringing together specialists from across the CSF community.
📅 Monday 9 November 2026
📍 Royal College of Surgeons, Edinburgh
⏰ 12:30–17:30
Featuring expert lectures, clinical case discussions and research presentations covering hydrocephalus, IIH, CSF leaks, NPH and more.
💷 Residents & Students: £50
💷 Consultants: £75
📢 Abstract submissions are also open!
Find out more & register 👇
qssimulationcentre.com/cours…
#Neurosurgery #Hydrocephalus #CSF #SBNS #MedicalEducation
CSF Leak Awareness Ireland retweeted
🦕 What does the “dinosaur tail sign” tell us about chronic post–dural-puncture #headache?
It appeared in 50% of patients, but also 70% of healthy controls, questioning its diagnostic utility in chronic #PDPH.
@ZanderCharlotte @Niklas_Luetzen
Read more: headachejournal.onlinelibrar…
CSF Leak Awareness Ireland retweeted
Registration is now open for the 4th annual Spinal CSF Leak: Bridging the Gap conference, hosted by @AndrewCallenMD and @CUAnschutz, and sponsored by the Spinal CSF Leak Foundation.
For the agenda and to get tickets for the Nov 14-15 hybrid event, see: secure.qgiv.com/for/SpinalCS…
CSF Leak Awareness Ireland retweeted
"Occurrence of CSF-Venous Fistulas by Spinal Level and Laterality"
doi.org/10.3174/ajnr.A9187
CSF Leak Awareness Ireland retweeted
Should one negative myelogram end the search for a CSF-venous fistula?
Our @TheAJNR study found positive studies occuring in ~1 in 10 patients with suspected SIH after a prior negative myelogram .
Not a mandate; evidence for shared decisions. #SIH
ajnr.org/content/early/2026/…
CSF Leak Awareness Ireland retweeted
Why can you wake up feeling almost normal… then feel progressively worse once you’re upright?
With a CSF leak, there may be less CSF available to support the brain.
CSF normally gives the brain buoyancy.
When CSF volume falls, that support is reduced.
#csfleak #headaches
CSF Leak Awareness Ireland retweeted
Hard to put into words what this means.
A $50M gift to help us transform care for patients with CSF leaks.
I’m incredibly grateful, humbled by the trust, and feel an enormous responsibility to make sure this changes what is possible for these patients.
A remarkable day. And really, just the beginning.
news.cuanschutz.edu/news-sto…
CSF Leak Awareness Ireland retweeted
🌍 Patient Safety Day
CSF leaks are often misdiagnosed, leading to unnecessary suffering
✅ Spot orthostatic headaches early
✅ Timely, accurate care matters
✅ Clinical excellence prevents harm
🔗 See clinical guidelines: csfleak.uk/category/sih-guid…
📣 Share to protect patients!
CSF Leak Awareness Ireland retweeted
New in @TheAJNR: Postpartum CVT & spinal CSF leak can coexist after epidural anesthesia.
3 takeaways:
• CVT → consider CSF leak
• Worsening/nonpostural PDPH → exclude CVT
• If both → anticoagulation + consider blood patch
ajnr.org/content/early/2026/…
