Wife, mother, advocate & fundraiser for ALS. Director of Cure for ALS. Community Outreach/webmaster for Emory ALS Center.
Suwanee, GA
Joined September 2011
- Tweets6.3K
- Following265
- Followers678
- Likes5.7K
Karen Duffy retweeted
Yesterday was my fav day of yr w/my fav people. Spent day @ the @stevens_nation Axe ALS Charity Golf Event at VA CC w/my heroes Eric & Amanda Stevens-the most inspiring & amazing people. Love them & their kids Peyton & Dean so much. Raised a ton of money to help fight ALS. If u want to help us please go to axeals.org
Karen Duffy retweeted
“Life is good. Life is beautiful.”
In honor of #LouGehrigDay, Justin Upchurch—husband, father, and avid Braves fan—tells the story of his journey with ALS.
Karen Duffy retweeted
To learn more about ALS and how you can support those impacted by it, visit braves.com/als 🤍
ALT detail of Lou Gehrig Day 4 patch on Braves jersey
Karen Duffy retweeted
As a finalist, Matt was able to award scholarships to Madelyne and McKenna Graf, twin sisters from Holly Springs, NC, who lost their father, Eric, to ALS earlier this year. The scholarship amount provided by @LiveLikeLou4 was also matched by the Atlanta Braves Foundation, Matt, and Chris Sale. Chris has a personal connection to ALS, as he lost his grandmother to the disease when he was six years old.
ALT Matt Olson and Chris Sale present checks to Madelyne and McKenna Graf on field at Truist Park
Karen Duffy retweeted
Before today’s Lou Gehrig Day game, held across @MLB to raise awareness for ALS, @mattolson21 was recognized as a finalist for the Lou Gehrig Memorial Award. This award is given annually to an MLB player who best exemplifies Gehrig’s character and integrity.
ALT Matt Olson acknowledges the crowd during pregame ceremony at Truist Park
Karen Duffy retweeted
On Sunday, June 2, the @Braves and @emoryhealthcare will celebrate ALS Awareness Day. Discounted and group tickets can be purchased with $15 from each ticket purchased going to support the Emory ALS Center. Learn more ➡️ news.emory.edu/stories/2024/…
Karen Duffy retweeted
“Attack life every day.”
In commemoration of Lou Gehrig Day, the Atlanta Braves honor Matt Engleka.
Karen Duffy retweeted
"This is a small but important step toward the goal of making all ALS as a whole a truly treatable disease." -- Jonathan Glass, MD
medpagetoday.com/opinion/sec… @medpagetoday #ALSAwarenessMonth @EmoryMedicine #MedTwitter
Karen Duffy retweeted
Representatives from the NEALS leadership team will be hosting a webinar this Friday, March 27th from 4:00 – 5:00 PM EDT on the impact of COVID-19 on #ALS clinical research. Click here to register: conta.cc/2wB5RGf
Karen Duffy retweeted
To officially announce that thanks to your support and the DOT the GA400 Century will go on! Sen. John Albers called me to inform me the ride will go on. #roswell #ga400 @roswellbicycles
Karen Duffy retweeted
We're closed again this Black Friday and calling everyone for a nationwide day of action. Who's in? #OptOutside bit.ly/33QlYuH
Karen Duffy retweeted
Our friends Amanda and Eric Stevens on the Ellen Show today. I HATE this disease. It only picks the best people......
Karen Duffy retweeted
On Nov. 14, Dr. James Berry @MGHNeurology will lead a webinar on the REFINE-ALS study. He will review edaravone evidence, talk about the use of biomarkers to understand the effect of medical therapies, and discuss how people can get involved in the study. conta.cc/2Nx01u3
Karen Duffy retweeted
“In our mind, those people served our country, those people served the county. Why do they have to have something as simple as their grass serviced, why do they have to pay for that?” Mission Overwatch co-founder Troy Embrey said.
forsythnews.com/magazines-2/…
Karen Duffy retweeted
Thank you!
BIG NEWS: The Miracle For Mom Foundation gives $30,000 donation to @EmoryBrain for research purposes! There is hope for debilitating brain diseases. #MiracleForMom
Karen Duffy retweeted
Every day.
Recipe for a healthy nonprofit: 1. Listen to & honor people who define your mission, 2. Be lean, efficient & effective w/ ltd resources, 3. Never forget the urgency needed in your work (in #ALS, people are dying daily). 4. Be humble & grateful!#NationalNonProfitDay @LesTurnerALS
Karen Duffy retweeted
If you've been inspired by anything I've done in the past, I urge you to help me/us with this. It's time the @US_FDA delivers on its unmet promise.
I signed. I invite everyone to sign - everyone. Name, email, zip code. Read, sign, retweet. Let's get 10k Signatures by July 18th!
15 pALS and cALS wrote a letter to the FDA to hold them accountable for the long overdue ALS guidance document.
When we hand deliver this letter we want your name on it. This is all of our fight. Make your voice heard.
Read the letter and sign it here: iamalsorg.typeform.com/to/EY…
