Accelerating the development of effective therapeutics for plexiform and cutaneous neurofibromas

Baltimore, Maryland
Joined May 2023
Interested in becoming the next Francis S. Collins Scholar? Join us for an upcoming Information Session with Dr. Jaishri Blakeley. Wednesday, September 23, 2026 11:00 AM ET We look forward to meeting the next generation of NF1 research leaders! #EndNF #NFResearch
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From discovery to clinical trials, NTAP investigators are advancing NF1 therapeutics and bringing us closer to a cure. Thank you to the Children's Tumor Foundation for bringing the NF community together to share science, spark collaboration, & accelerate progress. #NFConference
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Neurofibromatosis Therapeutic Acceleration Program retweeted
Venture capital is in the room at the NF Conference. We've brought NF innovators and biotech investors together to pressure-test emerging programs on science, strategy, and the path to funding. Faster capital = faster treatments. #EndNF #NFConference
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Neurofibromatosis Therapeutic Acceleration Program retweeted
In case you missed it, our December newsletter is packed with highlights from 2025. - Check out exciting innovations - Learn about upcoming events and resources - Discover how we’re driving impact through entrepreneurship and tech commercialization buff.ly/KjiENf6
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A powerful opportunity to advance innovative therapies and repurpose treatments — accelerating discoveries that can translate into real impact for patients. #EndNF #NFResearch #RareDisease #Innovation
🚨 Application for the 2025 Drug Discovery Initiative is OPEN! NF researchers, this is your chance to advance innovative therapies and repurposed treatments or validate new NF targets. Deadline: February 2, 2026 by 4 PM EST 🔗 Apply now: go.ctf.org/ddi #EndNF
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NTAP is proud to support @VasuLabUCSF and team's research published in @JCI_insight "Tumor heterogeneity underlies clinical outcome and MEK inhibitor response in somatic NF1-mutant glioblastoma" #EndNF #NFResearch
NF1 is frequently mutated in #glioblastoma, yet therapies targeting this alteration often fall short. @VasuLabUCSF & team @UCSF now show NF1 mutant glioblastomas exhibit prognostic signatures with distinct sensitivity to MEK inhibition: insight.jci.org/articles/vie…
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A powerful tribute to Dr. Verena Staedtke’s vision. Huge congratulations to Dr. Bai, @jblakel3, and the NTAP/JH/KKI teams for this exciting step forward. Grateful for the progress — and hopeful for what’s ahead. #EndNF #NFResearch
Honoring Verena Staedtke’s vision, @JohnsHopkins researchers, led by Renyuan Bai w/ support from Jaishri Blakeley at @ntapresearch, are advancing gene therapy for NF1. An AAV vector delivering neurofibromin shows promise + hope for patients. buff.ly/R4pRpoD
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A major milestone for the NF1 community. Congratulations to all involved. Here's to continued momentum in NF research and drug development! #EndNF #NFResearch
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NF1 Researcher? NTAP launched a Scholars program to support early-career PhD-level scientists. LOIs are due on October 20th. Apply today!
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1 day way! Join us tomorrow at 10AM for the Francis Collins Scholars Information session.
Are you an early-career clinician-scientist? Ready to make an impact on NF1 research? Join us for an information session on the Francis Collins Scholars Program. Wednesday, October 1, 2025 @ 10 AM EST 🔗 Register here: forms.office.com/r/nGqDFnN2B… #Research #EndNF #NF1
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Are you an early-career clinician-scientist? Ready to make an impact on NF1 research? Join us for an information session on the Francis Collins Scholars Program. Wednesday, October 1, 2025 @ 10 AM EST 🔗 Register here: forms.office.com/r/nGqDFnN2B… #Research #EndNF #NF1
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Great to host @vlmerker yesterday! She highlighted how many with NF1 lack access to specialty clinics-and how decentralized trials + virtual interventions can help bridge the gap. Exciting work on NF1-health surveillance & proposed mobile apps for pain management.#EndNF #research
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Neurofibromatosis Therapeutic Acceleration Program retweeted
Fueling the next wave of NF research: Nearly $1.5M in Young Investigator Awards will drive cutting-edge science, smarter care & real solutions for NF1, NF2-SWN & SWN. Meet the early-career scientists shaping NF’s future: ctf.org/news/yia2025/
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App open thru 9/8! Junior faculty, fellows, postdocs & PhD students in #NFresearch—apply now for the NFYIF: a career-catalyzing event for mentorship, productivity & community info.ceconcepts.com/nfyif-00… #EndNF #Neurofibromatosis #YoungInvestigators #PostdocLife #PhDlife #ceconcepts
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Incredible time for the Francis Collins Scholars community! Our 7 summer interns shared powerful NF1 research on MPNST, optic gliomas, GI symptoms & neuropsychiatric profiles. Huge thanks to mentors & supporters! #FrancisCollinsScholars #NFResearch
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🚨 Just 20 days left! 🚨 Apply by Aug 13 for up to $50K from the DHART SPORE DRP & CEP Awards to support NF1 & Rasopathy research. Open to clinical, population & basic science investigators. 🔗 dhartspore.org/about/develop… #NF1 #ResearchFunding #DHARTSPORE
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🚨 Double the funding, double the chance! Apply now for the DHART SPORE Developmental Research Program (DRP) & Career Enhancement Program (CEP) Awards. Don’t miss out! 🔗 Apply here: indianactsi.org/funding/oppo… 🗓️ Deadline: August 13, 2025
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Neurofibromatosis Therapeutic Acceleration Program retweeted
The cancer center’s D. Wade Clapp, MD, and colleagues have published their latest findings in the Journal of Neuro-Oncology. Learn more: ow.ly/elPY50Win4s. #ResearchCuresCancer #NCIcomprehensive @JNeurooncol
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Neurofibromatosis Therapeutic Acceleration Program retweeted
We're excited to have @BettegowdaMDPHD from @HopkinsNsurg join us this week for our #Neurosurgery Grand Rounds!
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