Living a simple, happy life in the Appalachian Mountains. Nature is my jam! Sjogren’s, Ehlers Danlos, POTS, MCAS Awareness. Gen Xer
Appalachia, VA
Joined April 2022
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Happy Birthday, Catherine! Spending your birthday with your dad is pretty special. The food looks phenomenal.
And let’s be clear, that there are no FDA approved medications for POTS and other forms of Dysautonomia either, which is often a big part of Long Covid. POTS was discovered and has been researched since around 1994 but still no FDA approved medications. 🤦♀️ And most often when you have one of these conditions, you have a plethora more. MCAS, EDS, Sjögren’s, MECFS, and Primary Immune Deficiency are just a few.
Anyone else stocking up on rice and dried beans? Preparation for emergency is always good. I also made Pumpkin Butter and GF Pumpkin bread. Pumpkin Butter is emergency food too, Y’all. 😂 I make mine with maple syrup as a sweetener. The key to pumpkin butter is to stir constantly for 20 minutes to avoid it sticking to the pan. 🎃
This is really great info for both LongCovid and POTS sufferers because they’re essentially the same. Note the use of XOLAIR, especially if you have MCAS. It’s a monoclonal antibody injection. My old Mayo Clinic geneticist that specializes in EDS told me that MCAS is a constant driver of POTS.
I recently said I'm feeling good for the first time since developing long COVID. Lots of people asked for meds that helped the most.
Here's a list and my general approach.
longcovidmd.substack.com/p/m…
Amazing news: Ukraine Russia Ceasefire!
THE CEASEFIRE HAS COMMENCED
The ceasefire between Ukraine and Russia took effect at 4:00am Moscow time on October 27, 2026.
Timing was accelerated two days ahead of schedule to protect the safety of civilians and to facilitate the delivery of critical humanitarian aid. The ceasefire’s geographic area has expanded beyond Oleshky, within the Kherson Region, to provide safe passage for the humanitarian convoys.
General Valery Gerasimov, Joint Chief of the General Staff of the Russian Armed Forces has confirmed.
You can also disagree and still be friends, follow one another on social media etc. How boring would life be without different opinions?
Some diseased patients who’s conditions have no real treatment or relief might feel like they’re in purgatory at times.